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C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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@losthope Have you been to see an Infectious Disease Specialist? I have been told by two doctors that they are the specialist one needs to get the meds right. They are the one who know, or are supposed to know, how the disease works. I am really sorry to hear what is going on with you. It sounds so hard This is such a hard hard disease.
@annapocono I know what you mean. I was even told that if I had been taking probiotics at the time I took the clindamycin that I might not have even gotten cdiff! I feel like I need to get a medical degree. It makes me think that they have no idea what works. It's very scary and frustrating.
Amen to that!
I had the FMT after being very ill for 4 months. I failed Flagyl, vancomycin & Dificid. It’s been 2 weeks. I had mine through an endoscopy that my dr went past the stomach into the small intestine so that it would be past the stomach acid. I’m still not far enough out to know if it has worked. I sure hope it does. I’m down to 85 pounds & need to get well. I had to try it. I was out of options.
@sandyabbey I have been sick since September. I also weigh 87 pounds. My fmt via colonoscopy is next Monday, March 25. I am dreading it! I have very little faith that this will do it. I don't think I will ever be rid of it. I am ready to give up.
My GI told me to take Florastor but not to take it with the Vancomycin. He said to wait TWO hour after taking the RX and then take it. I did the same thing with my 4th Cdiff bout while I was taking Dificid.. That was last October and so far I'm doing okay. I do have days when I have a loose BM, especially after I eat a lot of salad or cabbage. My heart goes out to all of you still dealing with this terrible thing. In 2018, I was sick with it from April to October. All because I took Clindamycin. As far as the weight goes, I put back on everything I had lost between Thanksgiving and Christmas. I wish I could have kept it off. But I don't want that kind of diet ever again.
I feel your pain but please don’t give up. I am still fighting the battle and I feel the same some days. I also work around cancer patients and I feel like I could have it worse but pray I never do. Cdiff is definitely a terrible disease and it needs to be studied more to improve the treatment. God bless you. Prayers sent
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1 Reaction@losthope Sometimes I think if some of the doctors got this, I bet we would see a big change in treating it!
Was it expensive or hard to get a prior auth from insurance
I did go to infectious disease doctor she said my issues are no cdiff. Has anyone else felt like they have a knot in the middle left side of their abdomen? I no longer have diarrhea but have days when I go to the bathroom 6 to 8 times a day. I am still losing weight and have a nawing feeling most of the time. They want me to have another colonoscopy and the thought of the prep makes me sick. I am so frustrated. This will be my second one in 4 months plus 4 ct scans. I have had so many tests done with only one thing showing up a thickening in my colon. Anyone else having weird issues