Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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@tmmmrlts

@merpreb He was using a lung dr here in town and he said it first. And his lung dr out of town and his infectious disease dr have all said it. And the cat scan results state that.

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@@tmmmrlts- It sounds like the doctor was making a general statement, not just in regard to your husband. I don't know what is in store for you for the next few months, I'm sorry.
Let me ask you a couple of questions. How did you get your husband out of the house to the doctor's? If he's not completely bed ridden than perhaps it's not your husband's time.

https://pulmonaryfibrosisnews.com/2017/11/07/pulmonary-fibrosis-end-stage-what-to-expect/
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@tmmmrlts- Ok, I'm not a doctor but the radiologist's report sure does state that he's at end stage PF. What does this new doctor say about what needs to be done now?

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@tmmmrlts

Dont know if it will open or not

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@tmmmrlts -Don't forget, I'm not a doctor or radiologist. Some doctor's don't look at films, they just read the report.

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@tmmmrlts I might suggest that you not put reports like this on a public forum. It's your husband's private report. I'm sorry. I was able to open it.

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@merpreb

@@tmmmrlts- It sounds like the doctor was making a general statement, not just in regard to your husband. I don't know what is in store for you for the next few months, I'm sorry.
Let me ask you a couple of questions. How did you get your husband out of the house to the doctor's? If he's not completely bed ridden than perhaps it's not your husband's time.

https://pulmonaryfibrosisnews.com/2017/11/07/pulmonary-fibrosis-end-stage-what-to-expect/

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He can still walk and my mom and dad both died of copd. My mom was 69 and not bed ridden until the last week of hers. My dad was 84 and he wasn't bedridden either he could walk with a walker. Until he went to the hospital.

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@merpreb

@tmmmrlts I might suggest that you not put reports like this on a public forum. It's your husband's private report. I'm sorry. I was able to open it.

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@merpreb I was wanting you to see what it said I'm sorry

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@merpreb

@tmmmrlts -Don't forget, I'm not a doctor or radiologist. Some doctor's don't look at films, they just read the report.

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He says there are treatments and things he can do. But I have not found anything that says that. We will find out more Monday i guess.

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@tmmmrlts

He can still walk and my mom and dad both died of copd. My mom was 69 and not bed ridden until the last week of hers. My dad was 84 and he wasn't bedridden either he could walk with a walker. Until he went to the hospital.

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@tmmmrlts - Has your husband said anything about feeling that he was dying- NOT that he wanted to die. Do you think that he's at end stage? Many times patients have outlived their test results. What do you think?

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@tmmmrlts

He says there are treatments and things he can do. But I have not found anything that says that. We will find out more Monday i guess.

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@tmmmrlts- Then bring up the discrepancy of what the scans say and he says! You need to get this squared away in your mind!

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