Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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@merpreb

@tmmmrlts– Well that sound reasonable. Who was your appointment with? Can you say what the results are? Perhaps I can help.

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Dr Lillard Pulmonary and Dr Lavalle Infectious disease There are only 3 that are normal. They did a CBC with differential, igg,ige, iga,igm, comprehensive metabolic panel, c reactive protein, sfmc sedimentation rate, rheaumatoid factor, and a Ana.

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@tmmmrlts

@merpreb She told me I didnt have to take it out on her. I told her i wasn't i just want answers. I have all the test results and I just want to know what they mean

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@why were you seeing a nurse and not your doctor for test results?

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We haven't seen a dr yet the nurse called with the results but all he gave her was the ones that were normal

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@tmmmrlts

Today makes 30 hours without cigarettes. For both of us. Hopefully we can keep it up.

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Yeah yeah yeah! You've got this!

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@tmmmrlts

Dr Lillard Pulmonary and Dr Lavalle Infectious disease There are only 3 that are normal. They did a CBC with differential, igg,ige, iga,igm, comprehensive metabolic panel, c reactive protein, sfmc sedimentation rate, rheaumatoid factor, and a Ana.

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We have had 2 cigarettes since I posted we quit. ☹

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@tmmmrlts– Ok. It looks like, from my own experience that the blood work is aimed at inflammation and arthritis, but I'm not a doctor and this is just a guess. Is he still on the antibiotic? Is he feeling better?
BTW- Having explanations to your tests results is a key to understanding and your right. What I do when I get test results is I look up any word that I don't understand- every single one. I write down their meanings and ask the doctor what they mean or how they fit together for an overall picture .
I can't stress this enough but everyone here should be researching their illnesses, what they mean, what tests show, and their meanings and look up everything you don't understand.

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@merpreb

@tmmmrlts– Ok. It looks like, from my own experience that the blood work is aimed at inflammation and arthritis, but I'm not a doctor and this is just a guess. Is he still on the antibiotic? Is he feeling better?
BTW- Having explanations to your tests results is a key to understanding and your right. What I do when I get test results is I look up any word that I don't understand- every single one. I write down their meanings and ask the doctor what they mean or how they fit together for an overall picture .
I can't stress this enough but everyone here should be researching their illnesses, what they mean, what tests show, and their meanings and look up everything you don't understand.

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Yes they did check on rheumatoid arthritis because his mother had it. I have been trying to look up all the test. Yes he is still on 2100 3 times a week. no he is feeling worse and is throwing up and running a fever up to 101.

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I need help with lung infection

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@lindasfowler– Linda I'm glad that you found us and welcome to Mayo Clinic. What kind of lung infection do you have? I know nothing about your history so it's difficult to even ask questions. Can you tell me a bit about your history? Are you under a doctor's care?

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@tmmmrlts

Yes they did check on rheumatoid arthritis because his mother had it. I have been trying to look up all the test. Yes he is still on 2100 3 times a week. no he is feeling worse and is throwing up and running a fever up to 101.

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@merpreb the dr called us back finally he has scheduled a cat scan which was done Monday the 21st and they scheduled another bronchoscopy for the 28th next Monday. He says that honeycomb lung is not the end stage of pulmonary fibrosis. But everything i have read including the results from the last cat scan says different. They have me all confused

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@timmmrlts-i understand your confusion and probably very frustrated. Why did you think that he had end stage pulmonary fibrosis? He can read films and has probably viewed lots of honeycomb lungs. Has any other given a second opinion on this?

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@merpreb He was using a lung dr here in town and he said it first. And his lung dr out of town and his infectious disease dr have all said it. And the cat scan results state that.

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