Inability to live a normal life — lost, scared
I have always had a hard time living what I would deam a normal life. I probably don't need to break it all down. My epilepsy has never been fully under control. 32 years or so. The number of seizes isn't the problem, although 1 is to many. About 2 a month, very severe. A lot of injurys over the years. Mostly head injuries. Getting to be a real problem on my mental outlooks. I have had a lot of changes in my life over the past 6yrs. Rainging from divorce too mom passing away, selling her house. Me moving and not being able depend on anyone. Taking care of business is feeling farther and farther away. Afraid, embarrassed and just plain lost. Getting work is proving to be tough mentaly and physically. Leaving it at lost, scared, can't see any kind of light in my personal tunnel.
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Hi @davidinvegas
I'm glad that this interview went well. Facing and conquering your fears will give you confidence for the next interview and help you to be more at ease. Good work!
Hi davidinvegas@davidinvegas
The reason is (My epilepsy has never been fully under control. 32 years or so, the number of seizes isn’t the problem, although 1 is to many) might create uncomfortable situation and not able to control normal life. Most of the time the businesses applications have a column where the applicant tells if s/he need a special needs or accomodation during the work. Which I believe the main goal of that is to empower and enhance the employees for achieving their goals and help preventing any unsatisfied results or disturbances during the work which would affect the employees and the company. I feel how important is for everyone of us today to be safe and live the life with its full expectations without worries. Good luck for you!
@gailb
Good morning Gail,
I wish the ADA had been around 48 years ago when I applied for a badly needed job. I don’t remember how Epilepsy came up, but the second that word left my lips she looked me in the eye and said “We don’t hire cripples” then wadded up my application and threw it away and walked off. Although I don’t remember much, I certainly remember how painful that experience was and how she made me feel after nearly half a century.
Have a wonderful day,
Jake
@jakedduck1- That's just horrible. Back then people got away with saying and doing so much. It was criminal.
@jakedduck1 O how awful! Today she’d lose her job! How did you manage it personally? Me, I would have cried for weeks!
@becsbuddy
Hey buddy,
I had worse problems than that to worry about. That was in Phoenix (We lived in Central California) where my Dad was sent for 6 months after being paralyzed (C5 Quadriplegic) from the neck down avoiding a drunk driver who just drove off leaving my him trapped inside his turned over truck fearing it was going to catch on fire since fuel was leaking out. God Bless the fireman. My seizures were happening so often. Plus insurance battles, etc.
In the scheme of things, just a little bump in the road of life. But something that still ticks me off. Had my Dad known, he would have let her know “How the Cow Ate the Cabbage.”
Thanks kids,
Jake
@davidinvegas
Good morning David,
How ya doing buddy? Are you getting along okay?
Have you gotten a new roommate yet? How’s everything on the job front going? Hope your feeling more confident now. E is just another speed bump on the road of life. Take it slow and easy and you’ll be great. After having E this long you already know the changes you have to make in your life. I understand you face some real fears but keep them in perspective and you’ll get through them.
Enjoy and embrace life my friend, try not to fear it.
Wishing you Health & happiness David, take care,
Jake
@huygirl1 I, too, started getting nauseous and vomiting all the time. Also had my gallbladder out. Sent to outpatient rehab because of instability, etc. Was t until 6 months later and I was begging for an MRI—felt like I’d had a stroke. Got one and the neurologist eventu
@huygirl1 I hit the wrong button and didn’t finish! The neurologist diagnosed Clippers disease and I was put on high dose steroids. My husband also made an appointment at the university hospital. People say I’m getting better but I’m not myself yet. Local, community hospitals don’t know how to treat this—have never heard of it! Ask for an MRI (beg for it) and go from there. I wish you luck—it’s been a journey
Hi, @becsbuddy and @huygirl1 - if either of you would like to read about the gallbladder surgery experiences of others and perhaps share some input of your own, you might check out this thread on gallbladder surgery https://connect.mayoclinic.org/discussion/gallbladder-surgery
@davidinvegas - thinking of you. How are things going this week?