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davidinvegas
@davidinvegas

Posts: 18
Joined: Dec 20, 2018

Inability to live a normal life.

Posted by @davidinvegas, Dec 20, 2018

I have always had a hard time living what I would deam a normal life. I probably don’t need to break it all down. My epilepsy has never been fully under control. 32 years or so. The number of seizes isn’t the problem, although 1 is to many. About 2 a month, very severe. A lot of injurys over the years. Mostly head injuries. Getting to be a real problem on my mental outlooks. I have had a lot of changes in my life over the past 6yrs. Rainging from divorce too mom passing away, selling her house. Me moving and not being able depend on anyone. Taking care of business is feeling farther and farther away. Afraid, embarrassed and just plain lost. Getting work is proving to be tough mentaly and physically. Leaving it at lost, scared, can’t see any kind of light in my personal tunnel.

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@davidinvegas

Questions about why I don't drive or can't climb latters or anything I know not to do. If they ask why I don't have drivers license or what is it that limits me. First interview went great. I did get to go over my resume and really talked myself up with all my work history and what I've done to qualify me for job. I was only asked if I had a driver's licence, no I have state id. She didn't ask why.

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Hi @davidinvegas
I'm glad that this interview went well. Facing and conquering your fears will give you confidence for the next interview and help you to be more at ease. Good work!

Hi davidinvegas@davidinvegas
The reason is (My epilepsy has never been fully under control. 32 years or so, the number of seizes isn’t the problem, although 1 is to many) might create uncomfortable situation and not able to control normal life. Most of the time the businesses applications have a column where the applicant tells if s/he need a special needs or accomodation during the work. Which I believe the main goal of that is to empower and enhance the employees for achieving their goals and help preventing any unsatisfied results or disturbances during the work which would affect the employees and the company. I feel how important is for everyone of us today to be safe and live the life with its full expectations without worries. Good luck for you!

@gailb

@davidinvegas

I'm happy your interview went well. The interviewer can't ask you why you don't have a driver's license. If driving is not part of the job, they can't ask you anything about it. They probably want to know if you have a driver's license because they will do a background check and sometimes use your license number for that. They will check motor vehicle records to see if you lost your license due to DUI, etc. They usually only go back 7 years of your history. The basic thing I told all interviewers was only ask questions relevant to the job–nothing else. You shouldn't volunteer extra information about your health until you have been hired. If you have other questions, I'm happy to answer them.

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@gailb
Good morning Gail,
I wish the ADA had been around 48 years ago when I applied for a badly needed job. I don’t remember how Epilepsy came up, but the second that word left my lips she looked me in the eye and said “We don’t hire cripples” then wadded up my application and threw it away and walked off. Although I don’t remember much, I certainly remember how painful that experience was and how she made me feel after nearly half a century.
Have a wonderful day,
Jake

@jakedduck1

@gailb
Good morning Gail,
I wish the ADA had been around 48 years ago when I applied for a badly needed job. I don’t remember how Epilepsy came up, but the second that word left my lips she looked me in the eye and said “We don’t hire cripples” then wadded up my application and threw it away and walked off. Although I don’t remember much, I certainly remember how painful that experience was and how she made me feel after nearly half a century.
Have a wonderful day,
Jake

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@jakedduck1– That's just horrible. Back then people got away with saying and doing so much. It was criminal.

@jakedduck1

@gailb
Good morning Gail,
I wish the ADA had been around 48 years ago when I applied for a badly needed job. I don’t remember how Epilepsy came up, but the second that word left my lips she looked me in the eye and said “We don’t hire cripples” then wadded up my application and threw it away and walked off. Although I don’t remember much, I certainly remember how painful that experience was and how she made me feel after nearly half a century.
Have a wonderful day,
Jake

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@jakedduck1 O how awful! Today she’d lose her job! How did you manage it personally? Me, I would have cried for weeks!

@becsbuddy

@jakedduck1 O how awful! Today she’d lose her job! How did you manage it personally? Me, I would have cried for weeks!

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@becsbuddy
Hey buddy,
I had worse problems than that to worry about. That was in Phoenix (We lived in Central California) where my Dad was sent for 6 months after being paralyzed (C5 Quadriplegic) from the neck down avoiding a drunk driver who just drove off leaving my him trapped inside his turned over truck fearing it was going to catch on fire since fuel was leaking out. God Bless the fireman. My seizures were happening so often. Plus insurance battles, etc.
In the scheme of things, just a little bump in the road of life. But something that still ticks me off. Had my Dad known, he would have let her know “How the Cow Ate the Cabbage.”
Thanks kids,
Jake

@davidinvegas
Good morning David,
How ya doing buddy? Are you getting along okay?
Have you gotten a new roommate yet? How’s everything on the job front going? Hope your feeling more confident now. E is just another speed bump on the road of life. Take it slow and easy and you’ll be great. After having E this long you already know the changes you have to make in your life. I understand you face some real fears but keep them in perspective and you’ll get through them.
Enjoy and embrace life my friend, try not to fear it.
Wishing you Health & happiness David, take care,
Jake

@huygirl1

I suffer from anxiety for the first time in my life and I’m 40 years old! I have been nauseous for 8 months now and tried various meds and for 8 months I have been taking Xanax or clonopin but now it’s only Xanax! I had my gallbladder out 3 weeks ago hoping that would cure the nausea but it hasn’t! I’m sick all of the time and it’s making it hard to want to live and enjoy life! Does anyone else suffer from anxiety and have nausea all the time? I have had major tests done to rule out other issues and otherwise I’m “supposedly” healthy! I take zofran for nausea every day several times a day! I feel like I’m getting addicted to Xanax and needing more! Please any suggestions?? Thanks

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@huygirl1 I, too, started getting nauseous and vomiting all the time. Also had my gallbladder out. Sent to outpatient rehab because of instability, etc. Was t until 6 months later and I was begging for an MRI—felt like I’d had a stroke. Got one and the neurologist eventu

@becsbuddy

@huygirl1 I, too, started getting nauseous and vomiting all the time. Also had my gallbladder out. Sent to outpatient rehab because of instability, etc. Was t until 6 months later and I was begging for an MRI—felt like I’d had a stroke. Got one and the neurologist eventu

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@huygirl1 I hit the wrong button and didn’t finish! The neurologist diagnosed Clippers disease and I was put on high dose steroids. My husband also made an appointment at the university hospital. People say I’m getting better but I’m not myself yet. Local, community hospitals don’t know how to treat this—have never heard of it! Ask for an MRI (beg for it) and go from there. I wish you luck—it’s been a journey

Hi, @becsbuddy and @huygirl1 – if either of you would like to read about the gallbladder surgery experiences of others and perhaps share some input of your own, you might check out this thread on gallbladder surgery https://connect.mayoclinic.org/discussion/gallbladder-surgery

@davidinvegas – thinking of you. How are things going this week?

@lisalucier

Hi, @becsbuddy and @huygirl1 – if either of you would like to read about the gallbladder surgery experiences of others and perhaps share some input of your own, you might check out this thread on gallbladder surgery https://connect.mayoclinic.org/discussion/gallbladder-surgery

@davidinvegas – thinking of you. How are things going this week?

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On bus. Was going to welfare before cardiologist but need to go to cardioligist, not enough time. See if Dr. Can get pacemaker working. Still looking for job. I'm limited in type of work, taking longer than wanted. One day at time.

@davidinvegas
Inch by inch, anything’s a cinch David.
Wishing you luck at the Cardiologist’s and in the job hunting. Hope your Seizures have improved or at least aren’t any worse.
Best of luck buddy, hang in there,
Jake

@davidinvegas

On bus. Was going to welfare before cardiologist but need to go to cardioligist, not enough time. See if Dr. Can get pacemaker working. Still looking for job. I'm limited in type of work, taking longer than wanted. One day at time.

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Hi davidinvegas! Don’t give up! Don’t EVER give up! You can do this……….Karen

@karen00

Hi davidinvegas! Don’t give up! Don’t EVER give up! You can do this……….Karen

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No giving up for me. I have my life to live and still lots to learn. 4 great kids I need to love and mentor. Going to see neurosurgeon about vns surgery. Tired of lawyers and waiting. Need to make big decision. Work to live or have confidence in ss. Is disability tough with E? Seems to be.

@davidinvegas
Hi David,
When you see the Neurosurgeon ask if the VNS is ineffective, can/will he remove the coils from the Vagus nerve. Back in the day they just shut if off and often still do. Some people however have problems and need the unit removed (the coils.) Make sure s/he is experienced in both putting it in as well as removing it. Make it clear your talking about the coils.
Not sure what you mean by “Is disability tough with E?” Do you mean getting on disability or getting enough money or something else?
Best of luck,
Jake

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