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Inability to live a normal life — lost, scared
I have always had a hard time living what I would deam a normal life. I probably don't need to break it all down. My epilepsy has never been fully under control. 32 years or so. The number of seizes isn't the problem, although 1 is to many. About 2 a month, very severe. A lot of injurys over the years. Mostly head injuries. Getting to be a real problem on my mental outlooks. I have had a lot of changes in my life over the past 6yrs. Rainging from divorce too mom passing away, selling her house. Me moving and not being able depend on anyone. Taking care of business is feeling farther and farther away. Afraid, embarrassed and just plain lost. Getting work is proving to be tough mentaly and physically. Leaving it at lost, scared, can't see any kind of light in my personal tunnel.
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@jakedduck1 @davidinvegas Like Leonard says, who determines what is normal? Think to a time when your issues might not have been so severe. That may be your normal, and what you want to aspire to. Perhaps rather than convincing yourself there will be a problem, work towards a mindset that things will go well, that there may be some minor glitches in the road, but those will be handled on a case-by-case basis and won't be something you experience all the time. Twist your thinking, and visualize how you want things to turn out. Hope this helps!
Ginger
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4 Reactions@gingerw makes a good point, @davidinvegas. Sometimes it is helpful to visualize a new normal. As I posted earlier, however, it is hard to know what feelings might be from anxiety and depression and which ones might be from medication and the brain disorder. We are all wishing the best for you. You have a supportive community here on Connect.
You are a strong person and we are in your corner.
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7 ReactionsHello @davidinvegas
I subscribed to The Mighty, which is a daily newsletter for people dealing with chronic illnesses. Today they had an article on employers who are hiring people to work from their homes. You came to mind, so I thought I would share the link with you. Just click on the link and see if it offers any new ideas for you
https://themighty.com/2019/02/work-from-home-jobs-remote-disability-february/?utm_source=newsletter_chronic_illness&utm_medium=email&utm_campaign=newsletter_chronic_illness_2019-02-08
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4 ReactionsHi, @davidinvegas - just wanted to check in with you and see how it's going. You'd mentioned your anxiety was getting hard to handle. Has the therapist been helpful with that? Have you gotten to talk to your doctor about your medications and any side effects from them mentally and physically, like you talked about, that you might be experiencing?
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6 Reactions@davidinvegas
Hey Dave,
So how are things. Have you found a job yet. We are concerned about you buddy. You have friends here who want to help if they can. Hope your Seizures and anxiety are better. I hope you post soon and let us know how your getting along.
Take care,
Jake
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2 Reactions@tdib, hi you mention not driving which I also have problems with but in the rural area where I live I have no choice but to be at home alone I'm 30 miles from my doctors any family, my family wouldn't bother to come to my house to see me so to keep any kind of relationship I have to go to them when they find time for me. How do you find people to be friends with all my friend have drifted away from me ,now noone even bothers with a phone call to me. So I'm living a lonely life as a shut in the only places I go are the grocery store or a doctor appt. I know I'm not a real outgoing person have always been shy and it seems it's pretty easy to forget I even exist. I don't know how to get out to make new friends that one of the main reasons I'm here on connect. Any input on how to keep family and friends from forgetting about you?
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3 Reactions@tdib I also read the mighty they do have heplful and some inspiring articles to read . They would be worth looking into.
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3 Reactions@tdib Welcome to Connect. I am of the firm belief that we cannot force family or friends. We can't force them to forget you nor can we force them to remember you. It is my experience, and of course yours may differ widely, that there are some friends and family that were beneficial to us in the past and supported us and something happens and they are no longer in a supportive role. Friends and family like that we just don't need! So what have I done myself? I have sourced out new friends that make me feel good about myself, that perhaps see the majority of my views in the same way but with enough difference to make me think and look at the bigger picture. I get out of my comfort zone and stretch myself physically, emotionally and mentally. It doesn't matter whether you're living physically close to people or not. You still reach out. The phrase that came to mind as I was thinking about a reply is, "you're the captain of your own ship." It seems like that was something that my dad used to tell me every so often. He knew the struggles that I had dealing with family while growing up. He was not a source of the abuse that he felt powerless to assist me in escaping it. Hope this helps.
Ginger
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5 ReactionsA normal life? I have no idea what normal is or ought to be. Seems everyone has a different normal.
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4 Reactions@tdib - I know that @gailb has talked about making a number of new connections and friends this past year, so she may have some ideas for you.
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4 Reactions