How do you manage daily life with IBS-D?

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I'm taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

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Profile picture for srobison @srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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How is Mayo Clinic Gastroenterology in Jacksonville, FL. I NEED ADVANCED CARE ASAP.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

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I have IBSD and recurrent CDIFF for nine years due to mistakes by Physicians in Gastroenterology and ID in FL. For real treatment I have to go to NY or MA. Not familiar with Viberzi. Does anyone have Zinplava information. Will Mayo Clinic offer it in 2017

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Profile picture for safetyshield @safetyshield

srobison I also have IBS=D and it really was out of control. After my first meal within an hour of going outside I would get diarrhea and it was bad. So when I finally went to a gastroenterologist he gave me amitriptoline, dyclomine and Put me on over the counter fiber like Metamucil and yogurt which I take daily. This combo seems to be working. I rarely get diarrhea and if I do I take something over the counter. These combos are still working for me. I hope this was helpful

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Yes, it is helpful and gives me some hope. Thank you.

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Profile picture for philjody @philjody

I understand your problems--I also have suffered with IBS for years. Used Alosetron for a year and for some reason it quit working. Dr. switched me to Viberzi I had severe cramps and was throwing up--Dr. said try to stick with it--I am looking for a second opinion. Anyone have a diet suggestion?

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Yes, I certainly did and I'm trying to absorb all this great information...thank you.

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Profile picture for philjody @philjody

I understand your problems--I also have suffered with IBS for years. Used Alosetron for a year and for some reason it quit working. Dr. switched me to Viberzi I had severe cramps and was throwing up--Dr. said try to stick with it--I am looking for a second opinion. Anyone have a diet suggestion?

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Did you read my comments? About vegetables and protein simple and clean diet. Processed foods are very effective and are causing problems. The best is steamed or cooked vegetables with olive oil or chicken broth. Low salt. No bread, carbohydrates, and sugars. I am learning about the behavior of the liver. Never suspected bread and sweets causing diabetes, triglycerides, GERD, Crohn's, high blood pressure, and inflammation pain sometimes called arthritis. I have all those under control understanding how the liver works. The liver loves vegetables specially raw. I heard of incidents people healing eating raw vegetables. I've tested it and it takes the inflammation pain down in one hour. I am scared of the bacteria concentration therefor I cook the vegetables. But if I eat things I shouldn't and get a lot of pain I eat raw vegetables specially broccoli and cauliflower. I take charge of the pain quickly. The secret is the medical science must learn how to test the liver to know the quantities of free radicals, toxins, fat, and other trouble makers that accumulates in the liver. How is the liver functioning as the person is suffering from IBS or Crohn's. If doctors had to pay for our medicines from their own pocket I wonder what they will advise. It will be a totally different treatment I am sure. I am convinced since 1960 that the liver controls our health. I almost lost part of my intestines to correct diagnosis of severe inflamación causing a lot of pain medication not able to stop. A doctor in Italy knew what to do immediately when he touched my pain and I fainted. He cleaned my liver. I was brand new for 3 years and never lost part of my intestines. I can't convince the Doctors in USA that there are treatments that removes inflammation, allergies, Crohn's, IBS, arthritis, memory problems just by understanding the liver. Why is it that nutritionist know it and our medical doctors don't know it. It makes me very upset specially when they will not listen. I heard the liver have about 500 functions so easy to get us sick even one of the function if not working properly. I hope Mayo Clinic does something about it.

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Profile picture for srobison @srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

Jump to this post

I understand your problems--I also have suffered with IBS for years. Used Alosetron for a year and for some reason it quit working. Dr. switched me to Viberzi I had severe cramps and was throwing up--Dr. said try to stick with it--I am looking for a second opinion. Anyone have a diet suggestion?

REPLY
Profile picture for falconfly @falconfly

Thank you. What medication did your doctor give you when you had diarrhea after eating the first meal of the day as I have that trouble also. You said it helped you.....

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falconfly if stress, certain company or bad news causes my IBS-D than I would be on the pot all day. Good luck

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Profile picture for srobison @srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Thank you and everyone for all the words of wisdom...

REPLY
Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @srobison, welcome to Connect. I'd like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
- Cauda equina http://mayocl.in/2aWudfX
- Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

Jump to this post

Have you tried eating gluten free combined with fodmaps. I have suffered for many years with IBSD. The last 10 years became impossible diarrhea for months with no relief along with severe abdominal pain. Once I started the gluten free with fodmaps life looked a lot better. I can not tolerate vegetables or fruit on a daily basis. Once in a while I can do it without too much discomfort. I usually have sweet potatoes with a protein for dinner and eggs and gluten free bread for breakfast sometimes gluten free oatmeal. Good luck

REPLY
Profile picture for srobison @srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

Jump to this post

srobison I also have IBS=D and it really was out of control. After my first meal within an hour of going outside I would get diarrhea and it was bad. So when I finally went to a gastroenterologist he gave me amitriptoline, dyclomine and Put me on over the counter fiber like Metamucil and yogurt which I take daily. This combo seems to be working. I rarely get diarrhea and if I do I take something over the counter. These combos are still working for me. I hope this was helpful

REPLY
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