How did you manage the pain side effects of Prolia?

Attached is my osteoporosis spreadsheet. Make one for yourself. This spreadsheet is from 1999. I am now 70. The T-score that they all use is based on a 32 year old's bone density. The Z score is based on your age. Hmmm. We all know that as you age from 30 on, we lose some bone. Some of us lose more bone at a faster rate as we all know. But look at how long it took you to get where you are right now. Before you take this drug or any injectable drug, get online and research it. Go to the Amgen website and review the tables there. This quote is taken from their medication guide. "• Increased risk of broken bones, including broken bones in the spine, after stopping Prolia. After your treatment with Prolia is stopped, your risk for breaking bones, including bones in your spine, is increased. Your risk for having more than 1 broken bone in your spine is increased if you have already had a broken bone in your spine. Do not stop taking Prolia without first talking with your doctor. If your Prolia treatment is stopped, talk to your doctor about other medicine that you
can take." So when you have to stop taking it at the 3 year level, what happens? Another drug? My endocrinologist agreed to prescribe physical therapy for resistance training. I have been doing that for almost 2 years. I have been doing strength training for 3 years. In the past 4 months I have enrolled in a balance class with other adults. I go to each one every week. My balance class costs me $30 a MONTH and it is ran by a physical therapist. We all get individualized help because we are not all at the same level of fitness. My physical therapist for resistance training is paid for by insurance. My strength training is done by a physical therapist and I do pay for that myself but it's worth it. If you aren't familiar with any good physical therapists, contact a good orthopedic clinic. They can recommend a great one. That's where mine came from. I get my next bone density this summer.

Hi kay 71. Thank you for the post about Prolia. Since I can't decide which poison to take.I have had dental issues in past and had all my upper teeth removed and a permanent denture put in. Finally all is well there and I read about Prolia possibly causing side effects. I have a hyper thyroid which decelerated my bone loss. My left arm is changed by 12% from my Dexa from last year. I have no choice and scared. I may have to choose Tymlos. Anyone on this board used Tymlos? Also Kay71 why didn't they give you Tymlos?

I was recovering from stage 1 breast cancer and was given Letrozole which is an estrogen blocker to keep breast cancer away. The oncologist told me I had to take Prolia along with it as a prevention of osteoporosis. She never checked my bone density which later I found my report and it was fine. When I told her about the jaw problem, she wouldn’t believe me and said it was only for prevention anyway so I could stop taking it. She became very rude and got mad and slammed out the door. She realized she had messed up. It was a bad experience but I’m gradually getting better. It just shouldn’t have happened. I will never take anything again.

I was recovering from stage 1 breast cancer and was given Letrozole which is an estrogen blocker to keep breast cancer away. The oncologist told me I had to take Prolia along with it as a prevention of osteoporosis. She never checked my bone density which later I found my report and it was fine. When I told her about the jaw problem, she wouldn’t believe me and said it was only for prevention anyway so I could stop taking it. She became very rude and got mad and slammed out the door. She realized she had messed up. It was a bad experience but I’m gradually getting better. It just shouldn’t have happened. I will never take anything again.

@kay71 I think we have all had times when we trusted a doctor much and didn't check things out ourselves. I'm sorry this happened to you. Of course your bone density could be fine then but with the new medication it may have decreased from estrogen being blocked, but it seems to me that she should have you checked after a certain amount of time before prescribing prolia.
I had sort of an opposite situation. My PCP didn't bother getting my bone density checked because with all of my activity he assumed it would be fine, or so he said, despite my taking prednisone which is known to damage bones.
JK

Was the K2 suggested by Mayo? I have seen a lot of chatter about K2 being taken. Ty

I had the same thing with Fosamex...no one was watching and I was on it too long!

Was the K2 suggested by Mayo? I have seen a lot of chatter about K2 being taken. Ty