How did you manage the pain side effects of Prolia?

1) Has anyone made a comparison chart of the options? and side effect data?
2) I am 69 and envision having to change along the way - because of time limits they recommend?
3) There is some chance I had radiation treatment for in my teenage years and I have been told this eliminates certain choices among the osteoporosis drugs? Has anyone else hear this?
4) In 2017 my DEXA SCAN came out mild osteopenia wo I was shocked to suddenly find my bones to be breaking. Could the statin I was taking be involved? There is a rare side effect involving tendons and ligaments I've heard about?
5) Are there environmental factors - I live where a cornfield is being churned up for further development - air full of dirt with chemicals?

I believe that any medicine that's only been out 5 or 10 years is a chance of being dangerous. Because the doctors themselves don't know the long-term effects of them. When I got pregnant with my daughter I smoke cigarettes and my doctor wanted to put me on that pill to help me stop. And I told her no because women have been having babies for a thousands and thousands of years smoking cigarettes. So depending on what medicine you're on I wouldn't do it either. And even if you look it up on Facebook half of the stuff on there is fake

I agree I agree I agree. And I do agree with you about getting exercise. Not only does he give you energy, it helps you mentally cuz when you walk or run when you think the most

I have had 2 shots of Prolia and am anxious to get this poison out of my body. It is terrible. Not only do I have hair loss but also a lot of pain in my legs and back, especially bad if lying down. Prior to these shots, I was very healthy. My time is now spent trying to find out how to get off this without additional problems. This drug should be pulled from the market!!!

Yes, it happened to me! My last shot was May 6th, 2019 and I’m still recovering! May never recover. My oncologist told me I had to take it because of a cancer medicine without even checking my bone density. It turned out she was just doing this as a prevention and almost cost me my life. I don’t have osteoporosis and had no dental issues! I am feeling better but not fully we’ll yet.

Hi, I had a positive experience with Prolia. I’ve been battling osteoporosis and osteopenia throughout my 50s. I’m currently 58 and recently broke my pelvis and several ribs. Apparently, no one wants to put me back on any medication.
I was on Prolia shots for 2 years and they worked well for me without apparent side affects. I returned bone density levels high enough to stop getting injections.
I understand that some folks have negative side affects. I expected to have them with my bad dental genetics and history but fortunately did not. After discussing the options available at that time, insurance coverage, and my medical history, we settled on Prolia injections. Eventually I realized andit was confirmed by the staff that I was the only woman receiving them in their very large practice.
The drug company rep and BCBSTX were all very helpful when I had to order the shot every 6 months myself, and have it sent to the doctor’s office.
My health has since deteriorated, so I would have to have the discussion again with my gynecologist about what medicine is the best approach. I’ll be giving her a call to let her know about my recent bone breakage to keep her in the loop.

@gldnrtrvrlvr hi just want to ask a question. If Prolia is discontinued, it must be replaced with another osteoporosis medication. All the gains in bone density are rapidly lost and fractures may occur. Did you fracture before taking Prolia? While on Prolia? Or at some point after discontinuing Prolia?
I am surprised that you were advised to stop taking Prolia. Here you are told to make sure you get your next injection within the 6months (give or take a week or two) "for your own protection". Translation: we dont want you to fracture.

I have a DEXA scan score of -5.7, but I REFUSE to take any of these drugs. I talked to a bunch of women who had very negative side effects to bisphosphonate drugs. I tried Fosamax - but had too many side effects. I thought about Prolia - but you get a shot and it lasts six months? Does that mean if it doesn't agree with my body - I will have side effects for six months. I told the doctor I had to find another path. Instead of discussing my options, she walked out of the exam room. So I began doing serious research. The bisphosphonate drugs work by not allowing the dead bone to leave your body as it usually does - in your urine. It keeps the old bone where it is, and when you get a DEXA scan, your bones look like you have had bone growth. It's just that old dead bone sitting there. When you stop taking the drug, you pee out all that "bone growth." In the meantime, you are lucky if you didn't have any side effects. Some of those side effects are very dangerous - osteonecrosis comes to mind. I talked to two women who had to have their jaws rebuilt. I turned instead to nutrition. Vitamins D3 and K2 (mk4 mk7) are the answer. A nutritionist has posted an excellent article about vitamin K2 - it's called The Ultimate Vitamin K2 Resource and his name is Chris Masterjohn. You can do a search for it. I will post a link here but it might be removed by moderators. Basically, vitamin K2 (mk4 mk7) sends all the calcium to your bones - not to your kidneys and not to your arteries. This is a big deal. And D3 is necessary for bone growth. I also take some calcium because I cannot eat enough, and I take a bit of potassium. I added 3 mg of boron in the morning and again at night - and ALL my arthritis symptoms are GONE - it's like magic. This is a small dose of boron, and you have to be careful with boron. Of course, you must run all of his by your doctor. Don't be surprised if your doctor doesn't know much about vitamin K2. My doctors know a little bit about vitamin K - but nothing about K2 (mk4 mk7). The mk4 and mk7 are the type of K2 that helps humans. It is very specific. I think vitamin K2 and vitamin D3 deficiencies may be the culprit for people with osteoporosis. If you take calcium, subtract the amount you eat every day. There are trackers you can download on your phone - you just tell it what you ate and it figures out your calcium intake for you. Also, both calcium and magnesium are minerals. The total amount your body can absorb is 500-600 mg TOTAL for both. So if your calcium is 1000 mg, break it in half and take it then take the other half at least four hours later... and if it has magnesium in it - you have to add that into the equation. The best way is to eat your vitamins. But you cannot really eat enough K2 and D3. I am in a support group with other women who won't take those drugs. Many of them are seeing real success with their DEXA scans. Some of them have walked their osteoporosis back to osteopenia and some are getting even better than that. I will be getting a DEXA scan in a couple of months - and I will share my results. I was fracturing in 2018 - thank goodness that has stopped. Another thing about vitamin D3. Research has proven that vitamin D3 reduces the number of falls in the elderly by more than 50%. You can Google that and see the medical journal articles to prove that. So it is good for bone growth and it reduces falls in the elderly! If you can afford to see a nutritionist, do so! If not, there are support groups out there that will cheer you on and give you more to read than you can handle. Here is the website for the vitamin K2 ultimate resource - if the moderator takes it down - just do a search. This guy has a book coming out - and I have preordered it. He has great information. Good luck to all of us! https://chrismasterjohnphd.com/blog/2016/12/09/the-ultimate-vitamin-k2-resource

@parrotqueen just wanted to say thankyou for mentioning the Prolia Support Group on FB. Found a second one called "Prolia Side Effects" which has already been an eye opener.

My favorite FB group is the Ostoporosis Natural Remedies group. Lots of great information there. If you don't see anything new - give it a day or two and it will come back to life with tons of stuff to read. You can always go to the area that says something like Search This Group and type in what you want to read about. I'm reading about anti-nutrients again today - I have to read that article again and again - I can't seem to get the names to stick in my head for some reason.