Mayo Clinic Connect
I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.
Liked by Dee, JK, alumni mentor, Chris Trout, Volunteer Mentor, Merry, Volunteer Mentor ... see all
Attached is my osteoporosis spreadsheet. Make one for yourself. This spreadsheet is from 1999. I am now 70. The T-score that they all use is based on a 32 year old's bone density. The Z score is based on your age. Hmmm. We all know that as you age from 30 on, we lose some bone. Some of us lose more bone at a faster rate as we all know. But look at how long it took you to get where you are right now. Before you take this drug or any injectable drug, get online and research it. Go to the Amgen website and review the tables there. This quote is taken from their medication guide. "• Increased risk of broken bones, including broken bones in the spine, after stopping Prolia. After your treatment with Prolia is stopped, your risk for breaking bones, including bones in your spine, is increased. Your risk for having more than 1 broken bone in your spine is increased if you have already had a broken bone in your spine. Do not stop taking Prolia without first talking with your doctor. If your Prolia treatment is stopped, talk to your doctor about other medicine that you
can take." So when you have to stop taking it at the 3 year level, what happens? Another drug? My endocrinologist agreed to prescribe physical therapy for resistance training. I have been doing that for almost 2 years. I have been doing strength training for 3 years. In the past 4 months I have enrolled in a balance class with other adults. I go to each one every week. My balance class costs me $30 a MONTH and it is ran by a physical therapist. We all get individualized help because we are not all at the same level of fitness. My physical therapist for resistance training is paid for by insurance. My strength training is done by a physical therapist and I do pay for that myself but it's worth it. If you aren't familiar with any good physical therapists, contact a good orthopedic clinic. They can recommend a great one. That's where mine came from. I get my next bone density this summer.
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I set up the same kind of spreadsheet years ago! It is helpful to have this view of how things are going.
Yes. after fosamax I developed jaw necrosis. Lost 4 bottom molars. They just cracked and had to have them extracted. Will never take any of these drugs. I am on algae cal boost. Hoping it will help
Are you getting vitamin K2 (mk4 mk7) and vitamin D3 and magnesium with your AgaeCal? The other thing about AlgaeCal is that it is not approved by ConsumerLab.com – a watchdog group for supplements. They say AlgaeCal has only got 87% of the magnesium they claim to have and also, there is an unacceptable amount of lead in AlgaeCal. Apparently, the calcium most nutritionists recommend comes from oyster shells. I am SO sorry you had that problem with Fosamax. This is why I beg people not to take these "bone growth" drugs. I talked to two women who had taken Prolia and Reclast the night before I was going to get Prolia and they had the problem you had! Bless your heart for speaking up.
Liked by lioness
I as so glad you spoke up. I was on the verge of starting Prolia, but checked in with a support group for osteoporosis on Facebook. They put me in touch with two women who had full-blown osteonecrosis. They told me they lost use of their jaws and the osteonecrosis was now attacking other bones! The next time I saw my endocrinologist, I told her I would not take Prolia. She got up and walked out of the room. Needless to say, I will be looking for another doctor to work with me on bone health. I hope you will alert others to what happened every chance you get. Those bone drugs are poorly studied and have little redeeming features once you study them. I am now studying nutritions books such as "Advance Nutrition: Macronutrients, Micronutrients, and Metabolism" by Carolyn D. Berdanier and Janos Zempleni in my quest for knowledge on how to help my bones. There must be a better way – and I think it can be addressed with diet. I wish you all the best luck with your cancer treatment.
I applaud your self care and research. I am medicine averse period unless it is life saving. I also did the research and before I take any new medicine, I read the contraindications and side effects. Therefore, I am dealing with osteoporosis by keeping as active as possible. When I sit I become stiff and sore and all joints work best if I keep moving. I love to dance all night and am more balanced and coordinated the next day. Amazing. It is easy to just sit, but the payback is ouchy. By keeping my muscles strong and tendons flexible I hope to keep those bones in place and protected. So that is my best solution. Drug companies and doctors don't like it.
Liked by parrotqueen
Hey Diva. Do some research about these drugs. The way they work is by not allowing the old, dead bone to exit the body. Usually it is excreted in the urine. But these drugs keep the dead bone in place until you quit taking it. It makes it appear as though you have new bone – stronger bone – when in fact, it is dead bone. That is why people start fracturing when they stop taking the meds.
Do other "bone meds" also not allow DEAD BONE to exit the body? I am on generic Fosamax, so far no problems, I am aware of. Have not had a bone scan since being on the med. I consulted 2 Orthopedic doctors before I started the generic Fosamax. Do notice popping in lower back when turning, twisting etc. Thank you for all you share with us.
Liked by Becky, Volunteer Mentor
@pattitoo how long have you been on Fosamax? More than one year? It's good to have a repeat bone density test done to see if the drug is doing its job.
Liked by Chris Trout, Volunteer Mentor, Becky, Volunteer Mentor
Any of the biphosphonate drugs (of which Fosomax is one) tend to leave old bone in the bone, not leaving room for new bone growth…. which in long run causes brittle bones that break easier. Lots of research out there that shows that’s true.
Liked by Becky, Volunteer Mentor, parrotqueen
Hi – I've been gone for a while. I had hoped to get my DEXA scan – but they locked down California the night before. Since I don't have an immune system, I decided I should not go out for any reason. So now I'm thinking maybe in June or July I will get it done. I hope you are all soldiering on – fighting the osteoporosis.
Hey Cool! I used to have the same reaction to sitting still for long periods. I will be 70 in December, but I still average 18,000 steps per day! However, I have found that if I take 3 mg of Boron three times a day, not only are my aches and pains gone, I CAN enjoy sitting down for a minute without paying the price in stiffness later. I also eschew doctors.
Hey Cool – I used to have the same problem when I sat still. I now take 3 mg of boron three times a day. The upper limit for boron is 20 mg per day – so you are well below it. You should ask your doctor if you are worried about it – though I have found doctors do not know much about boron. All of my aches and pains are pretty much gone. But like you – I feel SO much better when I stay active. I live on a hill and I've been pulling weeds in between the rain storms. The upside is I'm going to have hardly any weeds by the time my roses start putting on their show!
@parrotqueen just read this . Im thinking it will be June or July till this is over . I just hope then it doesn't return like Ive heard Im still on the routine meds for this naturel ones that is .
Has anyone had severe jawbone infection? I have dealt with this almost 6 months with part of the time wasted by doing dental surgeries to solve the problem. This has been very serious and a result of taking Prolia for cancer prevention along with a cancer medication. It seems now I find out my bone density was fine and didn’t need Prolia.
That is really sad that they put you on Prolia. I hope you are improving. Please post again and let us know.
Lioness – I'm thinking your June or July prediction is maybe a year too soon! We are going to need a vaccine to get out of this mess – and a vaccine is probably 18 months away from now – May 2020. Just take it a day at a time. I am always here to chat if you get lonely. I need a hug from someone – anyone!!! I'm kind of introverted, so I don't mind the shutdown. But I do need hugs from time to time. I am keeping up with my calcium, magnesium, Vitamins D3 and K2 (mk4, mk7), and I'm trying to be better about the collagen. Still doing probiotics and omega 3 along with a good basic multivitamin and extra Vitamin C and B complex. I should be healthy as a horse with all I take. I've been having trouble with my wrists – where the osteoporosis is the worst – so I'm trying to ease up a bit on the gardening, esp. the weed pulling! But housework is just as bad I think. Take care and let me know how you are. Oh still taking boron – but now I'm taking it 4-5 times a day. Apparently if you have osteoporosis, they want you to take close to the upper limit – which is 20 mg a day.
Liked by JK, alumni mentor
@parrotqueen Hi I was wondering where you where . Im doing fine and the July was in reference to staying in as Mayor Garcetti asked people to do since L.A . county is worse in cases in Ca. My building is doing a good job protecting us . We all here wear mask except for some people who think it wont hit them . I am still on the regimen for osteoporosis . Should I increase my Boron then I take 1 a day Dr. wanted me to go on Fosamax but Im not . My girlfriend was on it and had jaw problems. Then Dr gave her a reclast shot it almost killed her so then I did,nt have it only osteopenia told here to just do exercises and a lot of calcium . Dont overdue the gardening I had a good size garden and canned . Our son was allergic to dye,s and perservatives l enjoyed canning . I forgot where you said you where was it near San Francisco? . Im sorry to hear about you parrot . Is 38 old for a parrot? Do you have another one ? I know you said you raised them did'nt you Be safe wear your mask as I do . Gloves in here when touching elevator buttons or doors. Take care good to hear from you
I have been on Generic Fosamax for two years, no issues at all. You take it once a week,
so it would not be hard to get off of its if issues developed. I talked with two Orthopedic
doctors before I was willing to try this med. I will be getting a bone scan when the
Corona virus lets up. Even with gloves on, I use a knuckle to push an elevator button.
@pattitoo I would be interested in your results when you have your scan will you let me know ? I do use a gloved hand but also when I come back home I spray with clorax water , even the soles of my shoes we have 6 floors here lots of foot traffic . No sense taking chances
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