How did you manage the pain side effects of Prolia?

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

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I will be glad to let you know the scan results, hopefully an improvement,I take Vitamin D 1,500 daily.
What is your Clorox/water ratio?
Personally, I feel life for us will be forever changed - The Corona virus is complicated.

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@pattitoo

I will be glad to let you know the scan results, hopefully an improvement,I take Vitamin D 1,500 daily.
What is your Clorox/water ratio?
Personally, I feel life for us will be forever changed - The Corona virus is complicated.

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@pattitoo I agree I think its a new world now l dont think we will be able to resume as normal again . I use a 40 clorax to 50 water in a spray bottle . Other strengths when using in a bucket of water . Wear mask when out

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@parrotqueen

Lioness - I'm thinking your June or July prediction is maybe a year too soon! We are going to need a vaccine to get out of this mess - and a vaccine is probably 18 months away from now - May 2020. Just take it a day at a time. I am always here to chat if you get lonely. I need a hug from someone - anyone!!! I'm kind of introverted, so I don't mind the shutdown. But I do need hugs from time to time. I am keeping up with my calcium, magnesium, Vitamins D3 and K2 (mk4, mk7), and I'm trying to be better about the collagen. Still doing probiotics and omega 3 along with a good basic multivitamin and extra Vitamin C and B complex. I should be healthy as a horse with all I take. I've been having trouble with my wrists - where the osteoporosis is the worst - so I'm trying to ease up a bit on the gardening, esp. the weed pulling! But housework is just as bad I think. Take care and let me know how you are. Oh still taking boron - but now I'm taking it 4-5 times a day. Apparently if you have osteoporosis, they want you to take close to the upper limit - which is 20 mg a day.

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@lioness I agree with @parrotqueen, this is going to be much longer than many people realize. They are nowhere close to having a vaccine, they are saying it will be one to two years at the earliest, and they may never have one. In this case, it will be similar to AIDS, no vaccine but things that can help to make it less threatening. Of course the difference is that this is so contagious, whereas AIDS is only contagious with body fluids. I know someone who had COVID recently who was wearing a mask and gloves, they figure it must have gotten in through her eyes.
I want so much to be able to see my son and daughter, and my son is trying to figure out how we can do that this summer, keeping us safe, but I think I am going to have to tell him to not come. If he came and I or my husband caught something he would never forgive himself. 😥
JK

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@lioness

@parrotqueen Hi I was wondering where you where . Im doing fine and the July was in reference to staying in as Mayor Garcetti asked people to do since L.A . county is worse in cases in Ca. My building is doing a good job protecting us . We all here wear mask except for some people who think it wont hit them . I am still on the regimen for osteoporosis . Should I increase my Boron then I take 1 a day Dr. wanted me to go on Fosamax but Im not . My girlfriend was on it and had jaw problems. Then Dr gave her a reclast shot it almost killed her so then I did,nt have it only osteopenia told here to just do exercises and a lot of calcium . Dont overdue the gardening I had a good size garden and canned . Our son was allergic to dye,s and perservatives l enjoyed canning . I forgot where you said you where was it near San Francisco? . Im sorry to hear about you parrot . Is 38 old for a parrot? Do you have another one ? I know you said you raised them did'nt you Be safe wear your mask as I do . Gloves in here when touching elevator buttons or doors. Take care good to hear from you

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Lioness! I am so glad to hear you are doing well. Mayor Garcetti is a smart man - I grew up in Los Angeles. I live in Oakland now (since 1971). It's a shame some of the people aren't wearing a mask where you live - they are putting everybody at risk. I don't know how on earth wearing a mask became a politicized thing. We are so lucky to be in CA - CA has been smarter than some of the states when it comes to the pandemic. My infectious disease doctor called me Tuesday and said because of what is happening in the states where they are going back to opening up too soon, we are going to see the second wave faster than they anticipated. She told me I must stay inside since I have no immune system. I work in my yard every day - I'm so lucky to have a garden. I'm growing a ton of vegetables, fruit and flowers. Last weekend I gave garden tours one after the other. Yes keep a paper towel handy to use when you push the elevator button. And don't touch your face!!! I know, the minute you put the mask on, your face starts itching! It isn't fair. Oh yes about parrots - 38 is very old for a parrot in captivity. My vet says he only has 1 or 2 parrots in their 30s and he is the #1 parrot veterinarian in the USA. The Baby has a worn out heart. Chester has serious arthritis. They are 38 and 36 this month. I don't know how I will make it if they go - they have been my babies since they hatched. I love them SO much! Regarding boron, I got spoiled - I don't want to feel any arthritis pain. So I started taking one with every meal (3 times a day) and one before bed. That way, I don't have to deal with any arthritis or fibromyalgia pain. I read something by Douglas Johnson, a nutritionist who writes a lot on the FB page - and he said to take as close to 20 mg a day as you can for osteoporosis. If I take five a day - that's 15 mg. That's about as close as I want to go. I had serious problems with my jaw and hip when I was taking Fosamax - I am not willing to take any of that "bone-building" pharmaceutical stuff. After talking to a couple of dentists, it was the only choice I could see that made sense. Dentists see the bad effects of those drugs. It would be different if they worked. As you know, they only prevent the old bone from leaving the body, which makes it looks like your bones are getting bigger. But the moment you stop taking the drugs, your bones go back to the size they were before you started taking that junk - as you pee out all your "new" bone. Better to do the supplements, exercise, etc. That is what I believe. I am taking estrogen because my bones were so depleted after the pituitary tumor robbed me of calcium. Speaking of the pituitary tumor - I just got diagnosed with diabetes insipidus because of it also! At least they can medicate that so I don't have to get up to pee 30 times every night after I go to bed! I hope everyone is doing well on their journey to getting better bones!

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@contentandwell

@lioness I agree with @parrotqueen, this is going to be much longer than many people realize. They are nowhere close to having a vaccine, they are saying it will be one to two years at the earliest, and they may never have one. In this case, it will be similar to AIDS, no vaccine but things that can help to make it less threatening. Of course the difference is that this is so contagious, whereas AIDS is only contagious with body fluids. I know someone who had COVID recently who was wearing a mask and gloves, they figure it must have gotten in through her eyes.
I want so much to be able to see my son and daughter, and my son is trying to figure out how we can do that this summer, keeping us safe, but I think I am going to have to tell him to not come. If he came and I or my husband caught something he would never forgive himself. 😥
JK

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JK: I am so sorry you cannot visit with your son and daughter right now. This is brutal for families. My best friend just became a grandmother and she has to take a test every time she is with the baby. She has become a hermit to avoid getting COVID 19. And you are so right about the comparison to AIDS. I wish there were something easier we could avoid to not get COVID 19. I was in the drug store earlier this week and the man ahead of me in line started coughing so hard. I got the heck out of there. I have to pick up a prescription on Friday and again on Sunday - I wish they would just give me everything at one time. I really don't want to get this virus. I've been on a ventilator before and it was no day at the beach- I never want to be on one again if I can help it. I just keep taking vitamin D3 and K2 - D3 has saved me from other corona viruses in the past - although there is NO guarantee it will work with this one. And although nobody has spoken about Vitamin K2 and (and just plain K) for COVID 19, I know the K vitamins work on coagulation - and coagulation is a problem with COVID 19. Don't take what I say as medical advice - I'm just giving anecdotal advice that has worked for me in the past. We all just need to be very careful, wear our masks, and wash out hands often. I'm praying for all of us.

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@lioness

@pattitoo I agree I think its a new world now l dont think we will be able to resume as normal again . I use a 40 clorax to 50 water in a spray bottle . Other strengths when using in a bucket of water . Wear mask when out

Jump to this post

According to the CDC, you need to use either 75% alcohol or 75% Clorox to 25% water. I got a spray bottle and I mix it up fresh every week. I hope that alcohol starts appearing in drug stores sometime soon - I am running out. I wear the mask whenever I go out. It seems like it is so easy to get. That NBC doctor got it because he wasn't wearing goggles - I didn't even know goggles were necessary! I'm so grateful for the scientists and doctors that are speaking out.

REPLY
@parrotqueen

Lioness! I am so glad to hear you are doing well. Mayor Garcetti is a smart man - I grew up in Los Angeles. I live in Oakland now (since 1971). It's a shame some of the people aren't wearing a mask where you live - they are putting everybody at risk. I don't know how on earth wearing a mask became a politicized thing. We are so lucky to be in CA - CA has been smarter than some of the states when it comes to the pandemic. My infectious disease doctor called me Tuesday and said because of what is happening in the states where they are going back to opening up too soon, we are going to see the second wave faster than they anticipated. She told me I must stay inside since I have no immune system. I work in my yard every day - I'm so lucky to have a garden. I'm growing a ton of vegetables, fruit and flowers. Last weekend I gave garden tours one after the other. Yes keep a paper towel handy to use when you push the elevator button. And don't touch your face!!! I know, the minute you put the mask on, your face starts itching! It isn't fair. Oh yes about parrots - 38 is very old for a parrot in captivity. My vet says he only has 1 or 2 parrots in their 30s and he is the #1 parrot veterinarian in the USA. The Baby has a worn out heart. Chester has serious arthritis. They are 38 and 36 this month. I don't know how I will make it if they go - they have been my babies since they hatched. I love them SO much! Regarding boron, I got spoiled - I don't want to feel any arthritis pain. So I started taking one with every meal (3 times a day) and one before bed. That way, I don't have to deal with any arthritis or fibromyalgia pain. I read something by Douglas Johnson, a nutritionist who writes a lot on the FB page - and he said to take as close to 20 mg a day as you can for osteoporosis. If I take five a day - that's 15 mg. That's about as close as I want to go. I had serious problems with my jaw and hip when I was taking Fosamax - I am not willing to take any of that "bone-building" pharmaceutical stuff. After talking to a couple of dentists, it was the only choice I could see that made sense. Dentists see the bad effects of those drugs. It would be different if they worked. As you know, they only prevent the old bone from leaving the body, which makes it looks like your bones are getting bigger. But the moment you stop taking the drugs, your bones go back to the size they were before you started taking that junk - as you pee out all your "new" bone. Better to do the supplements, exercise, etc. That is what I believe. I am taking estrogen because my bones were so depleted after the pituitary tumor robbed me of calcium. Speaking of the pituitary tumor - I just got diagnosed with diabetes insipidus because of it also! At least they can medicate that so I don't have to get up to pee 30 times every night after I go to bed! I hope everyone is doing well on their journey to getting better bones!

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@parrotqueen Good to hear from you . Fosamax is what The Dr wanted me to go on it she is a very pushy Dr . I really am not thrilled with her . I am not taking it and will let my PCP know this . She wants some labs done so I will get them but may not go for appt will have to see how things are by then . Yes Im glad Im in Ca also . Gov . Newsome has been on top of this from the beginning . I am wearing mask using gloves when I go out . Doing the clorax wash on soles of shoes we have alot of foot traffic here . I like Mayor Garcetti and out mayor in Long Beach everyday he puts out a email for us here I wish they would close all again as out case rates are going up again. All we can do is stay in and stay safe according to the rules given . They opened up to soon all over . It is sad . Im so sorry you now have Diabetes Insipidus You know what to do the diet and exercise are most important I would get so upset with diabetics that didnt follow the Dr.s advice . Im sorry again about your parrot . I hope the other one you will have longer . I will up my Boron as Im doing all the other vitamin minerals . The minerals are the ones our body doesnt make so very important . Glad you have your garden . I use to can all my food from out garden this may come again to people us older ones know how to can but the young people are use to fast food . My girlfriend almost died on the Reclast so I wont take that or any of them Prolia is to knew . I go for the older , estableshed meds when I do take perscription . But am more holistic in my health . As a retired nurse saw to much about the side effects and they just give you something else to counter that . You stay in with your immune system . Take care .

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@parrotqueen

According to the CDC, you need to use either 75% alcohol or 75% Clorox to 25% water. I got a spray bottle and I mix it up fresh every week. I hope that alcohol starts appearing in drug stores sometime soon - I am running out. I wear the mask whenever I go out. It seems like it is so easy to get. That NBC doctor got it because he wasn't wearing goggles - I didn't even know goggles were necessary! I'm so grateful for the scientists and doctors that are speaking out.

Jump to this post

@parrotqueen O.K. I will adjust . thanks

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@lioness

@parrotqueen Good to hear from you . Fosamax is what The Dr wanted me to go on it she is a very pushy Dr . I really am not thrilled with her . I am not taking it and will let my PCP know this . She wants some labs done so I will get them but may not go for appt will have to see how things are by then . Yes Im glad Im in Ca also . Gov . Newsome has been on top of this from the beginning . I am wearing mask using gloves when I go out . Doing the clorax wash on soles of shoes we have alot of foot traffic here . I like Mayor Garcetti and out mayor in Long Beach everyday he puts out a email for us here I wish they would close all again as out case rates are going up again. All we can do is stay in and stay safe according to the rules given . They opened up to soon all over . It is sad . Im so sorry you now have Diabetes Insipidus You know what to do the diet and exercise are most important I would get so upset with diabetics that didnt follow the Dr.s advice . Im sorry again about your parrot . I hope the other one you will have longer . I will up my Boron as Im doing all the other vitamin minerals . The minerals are the ones our body doesnt make so very important . Glad you have your garden . I use to can all my food from out garden this may come again to people us older ones know how to can but the young people are use to fast food . My girlfriend almost died on the Reclast so I wont take that or any of them Prolia is to knew . I go for the older , estableshed meds when I do take perscription . But am more holistic in my health . As a retired nurse saw to much about the side effects and they just give you something else to counter that . You stay in with your immune system . Take care .

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What a coincidence - my best friend since I was a toddler lives in Long Beach! You are smart to do a bleach treatment to your shoes when you get in. I leave my shoes at the back door when I come home from being out. Diabetes insipidus isn't really diabetes - it is a lack of anti-diuretic hormone - so your body keeps making urine more and more, you have constant thirst, and you crave only cold beverages. It is caused by damage to the pituitary gland usually. I've been off sugar for five years because of candida overgrowth caused by the steroids I have to take for adrenal failure. I don't blame you for not wanting to take Prolia. The night before they were going to give it to me, I went to that Facebook Osteoporosis Natural Remedies group - and two (2) women who had taken it and gotten osteonecrosis saw my post and spoke to me by phone about their experience. I will never take any of those bone-building drugs. It would be different if they worked. But the bone "growth" is only old, dead bone piled up on top of your real bones - and it all goes the minute you stop taking the drug. It looks good on a DEXA scan - but it is just dead bone. Lioness - it's been years since I thought about canning! Living in CA, we never really think about canning anymore - you can get whatever you want whenever you want it here! This is the first year I haven't been able to get pomegranates all year round. I have two pomegranate trees, two lemons, two Asian pear apples, and a fig tree! That's a lot of fruit for someone who can't eat anything but lemons and strawberries! I'm putting strawberries and peppers and bush beans out next week. I'm having a heck of a time finding my bush bean seeds! I put them where I wouldn't lose them! Thank you for thinking good thoughts for my parrot - I love her SO MUCH! I cannot imagine life without her. I keep hoping the sun will come out and she will perk up. I love Chester, the male, too - but The Baby (the female) has been my sweetie for 38 years (Chester is 36). I raised both from the time they hatched - I had their parents since I was 15 years old. The Baby is such a sweet bird - very affectionate - she is bonded to me. Regarding the boron - I have read that it is very necessary for bone growth and that it is safe up to 20 mg per day. I know there are some people who take doses much higher than that, but I'm not going to risk it. If I take 12-15 mg per day, my arthritis just vanishes. I was pretty good with 9 mg, but I was waking up in pain - so I increased it to 12-15 mg. It certainly is affordable. Wouldn't it be lovely if all of a sudden they figured out exactly what and how much we should take of each thing to regrow our bones? I read an article the other saying saying that taking Vitamin K2 (mk4, mk7) only increases bone growth by (I think they said) 2%. I'll take that 2%. In fact, I'd take it even if it just stopped me from losing any more bone. I wish I could get a DEXA scan tomorrow. My doctor wants me to wait until this pandemic isn't quite so hot. We just have to take it a day at a time - it will drive you crazy if you think of another year or two hunkered down. My bangs are so long - I can barely see where I am going. I really cannot cut hair! I may have to try. Desperate times call for desperate measures. What are you doing to pass the time? Once I have my garden in and my house all cleaned up, I will go back to making masks and I think I'll start a jigsaw puzzle - possibly I will crochet. Maybe I will go out there right now and plant my new rose.

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@parrotqueen I have been coloring in the adult coloring book we have a group here that does it but not now it is relaxing funny I've turned into a child again lol 😆 Exercise I found a new DVD we will do when we open up here again.No I'm not taking any of those bone drugs they aren't proven to me .As I said my girlfriend almost died from a reclast injection I,LL stick to my regimen ,my Dr agrees .I still do a little canning beets in particular I love them Up till last year I still put up vegetable soup but it's to much work .My friend here is getting a clipper bade machine she is going to try it on me and will see how I do on her our hair is getting so long I got a hairband to keep it out of my eyes. You would enjoy talking with funcountess she has worked in biology in the scientific community I forgot what she told me about it My memory is so bad anymore. I'm not into puzzles to impatient so I play games ,cards ,read,color and paint .Enjoy your garden I loved mine had to put one in and can ,son allergic to dyes and preservatives when very young we found out so we put in a good size garden and I canned have a good night

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