Side Effects of Prolia

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

@contentandwell

@parrotqueen I think many of us older people have become hermits. I feel like I am in prison. Granted, it's a nice, spacious prison but not being able to be out and about is very tiresome.
We had a delivery this morning from Whole Foods, much of it produce. As I thoroughly washed everything I said to my husband that the old people will be the survivors because we are the ones being the most cautious — us and my son who tends to be a bit germaphobic.
By the way, do you know that prunes have been shown to help osteoporosis also? Unfortunately they have their own side-effects. They are recommended on a number of sites, one being NOF — National Osteoporosis Foundation.

@lilypaws @lioness The number comparisons between flu and COVID deaths are taking into account a full year of flu deaths, whereas the numbers from COVID are for a much shorter period. The other problem is that COVID is so much more contagious, plus of course we do have a vaccine for the flu that is relatively effective most years for people who get it.
When did you ever hear of stacks of coffins outside of hospitals as they were in NYC, and mass graves for flu victims? When did you hear of hospitals having to choose which victims of the flu to save and which to let go?
JK

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@contentandwell. I didn't say anything about coffins being stacked outside of hospitals, I only know of NYC. And I never said anything about mass graves for flu victims. So, I don't know where those ideas came from, pretty weird to me. But I didn't post them.

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@lilypaws

@lioness You are so right. With this one ( the Covid-19) you have to keep your distance and all the reason. Plus you can't go see your family. It really is the pits, but I won't lose my faith in God. Some feel everyone will get the virus, but not as bad as it is now. I don't know about that and we are really opening up. Take care and I'm positive about my surgery. I'm looking forward getting out of this house and being in a hotel for a few days, even if one day I have a whole bunch of test. Jeanie

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@lilypaws . Absolutely not dont ever lose you faith and God HE/SHE is to important in out lives . I would be looking forward to getting out of the house too. Something good will happen to you once you have these test done another step to feeling better . I just got a wireless printer by Cannon with my stim. check and finally go it all set up . I put the app on my phone and sent one of my pictures from my gallery and lo and behold it printed my picture . Happy dance . Good luck with the test . Linda

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@lioness

@parrotqueen I have been coloring in the adult coloring book we have a group here that does it but not now it is relaxing funny I've turned into a child again lol 😆 Exercise I found a new DVD we will do when we open up here again.No I'm not taking any of those bone drugs they aren't proven to me .As I said my girlfriend almost died from a reclast injection I,LL stick to my regimen ,my Dr agrees .I still do a little canning beets in particular I love them Up till last year I still put up vegetable soup but it's to much work .My friend here is getting a clipper bade machine she is going to try it on me and will see how I do on her our hair is getting so long I got a hairband to keep it out of my eyes. You would enjoy talking with funcountess she has worked in biology in the scientific community I forgot what she told me about it My memory is so bad anymore. I'm not into puzzles to impatient so I play games ,cards ,read,color and paint .Enjoy your garden I loved mine had to put one in and can ,son allergic to dyes and preservatives when very young we found out so we put in a good size garden and I canned have a good night

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@lioness just saw your comment about your girlfriend almost dying from a Prolia injection. My doctor wants me to have one if and when I stop Prolia injections in July. It's bad enough worrying about Covid! How old is your friend (I am 65) and did she end up in the hospital after getting Reclast. It does have loads of side effects when you research it. Glad you are coping well during the pandemic.

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@sue225

@lioness just saw your comment about your girlfriend almost dying from a Prolia injection. My doctor wants me to have one if and when I stop Prolia injections in July. It's bad enough worrying about Covid! How old is your friend (I am 65) and did she end up in the hospital after getting Reclast. It does have loads of side effects when you research it. Glad you are coping well during the pandemic.

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@lioness I meant to say "from the Reclast" regarding your friend.

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@sue225

@lioness just saw your comment about your girlfriend almost dying from a Prolia injection. My doctor wants me to have one if and when I stop Prolia injections in July. It's bad enough worrying about Covid! How old is your friend (I am 65) and did she end up in the hospital after getting Reclast. It does have loads of side effects when you research it. Glad you are coping well during the pandemic.

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@sue225 She is 76 now at that time she was 57 I think . They did keep her in the hospital for a couple of hours but when she felt better they said she could go but call or come back if she felt worse . THey told her to drink plenty of water too. Some people will react differently but for her it was horrible . Depends on the persons makeup

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@sue225

@lioness I meant to say "from the Reclast" regarding your friend.

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@sue225 Yes I knew it was a typo Good luck with whatever you decide .

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@lilypaws

@contentandwell. I didn't say anything about coffins being stacked outside of hospitals, I only know of NYC. And I never said anything about mass graves for flu victims. So, I don't know where those ideas came from, pretty weird to me. But I didn't post them.

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@lilypaws I didn't mean to indicate that you had posted that, it was mainly a rebuttal to the thought that more people die from the flu than from COVID – "there are more people that die from the flu than the virus". The flu can be bad but it has never caused the devastation that COVID has. We will need to be very careful quite a bit longer. That's everyone, not just us "seniors".
JK

Liked by lioness, parrotqueen

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@sue225

@lioness just saw your comment about your girlfriend almost dying from a Prolia injection. My doctor wants me to have one if and when I stop Prolia injections in July. It's bad enough worrying about Covid! How old is your friend (I am 65) and did she end up in the hospital after getting Reclast. It does have loads of side effects when you research it. Glad you are coping well during the pandemic.

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Please do a lot of research before you take that Reclast or Prolia. I have not talked to one person who got better using that. I wish I could get my new DEXA scan – but I have to wait until the COVID 19 is not so bad (I have NO immune system). I have been doing nutritional supplements, exercise, and also a very low dose of estrogen. My previous DEXA scan score was very bad -5.7 and I was fracturing. The fracturing has stopped. But I need to get a new scan before I can claim I've improved. I refuse to take something with side effects so bad. Talking to those two women whose jaws were ruined by osteonecrosis after using those drugs was enough to convince me not to try it. The doctor was furious when I said I wouldn't take it. She left the room without saying another word. She knew absolutely nothing about nutrition – when I started talking about calcium, magnesium and boron she looked at me like I was speaking some other language. Those women that got osteonecrosis said it didn't stop with their jaws, it continued to waste other parts of their bodies. No way am I going to pay money to take a chance on that.

BTW: I took my parrot off the heart medication they gave her and she is back to normal! I thought she would die last night – but she is back to being herself! It's a miracle!

Liked by lilypaws

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@parrotqueen

Please do a lot of research before you take that Reclast or Prolia. I have not talked to one person who got better using that. I wish I could get my new DEXA scan – but I have to wait until the COVID 19 is not so bad (I have NO immune system). I have been doing nutritional supplements, exercise, and also a very low dose of estrogen. My previous DEXA scan score was very bad -5.7 and I was fracturing. The fracturing has stopped. But I need to get a new scan before I can claim I've improved. I refuse to take something with side effects so bad. Talking to those two women whose jaws were ruined by osteonecrosis after using those drugs was enough to convince me not to try it. The doctor was furious when I said I wouldn't take it. She left the room without saying another word. She knew absolutely nothing about nutrition – when I started talking about calcium, magnesium and boron she looked at me like I was speaking some other language. Those women that got osteonecrosis said it didn't stop with their jaws, it continued to waste other parts of their bodies. No way am I going to pay money to take a chance on that.

BTW: I took my parrot off the heart medication they gave her and she is back to normal! I thought she would die last night – but she is back to being herself! It's a miracle!

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@parrotqueen I,m so glad to hear about your parrot . You sounded so upset so am glad to hear this again. No there, s no way I,m taking any of those bone builders not after what happened to my friend in Pa. Take care

Liked by parrotqueen

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@parrotqueen

Please do a lot of research before you take that Reclast or Prolia. I have not talked to one person who got better using that. I wish I could get my new DEXA scan – but I have to wait until the COVID 19 is not so bad (I have NO immune system). I have been doing nutritional supplements, exercise, and also a very low dose of estrogen. My previous DEXA scan score was very bad -5.7 and I was fracturing. The fracturing has stopped. But I need to get a new scan before I can claim I've improved. I refuse to take something with side effects so bad. Talking to those two women whose jaws were ruined by osteonecrosis after using those drugs was enough to convince me not to try it. The doctor was furious when I said I wouldn't take it. She left the room without saying another word. She knew absolutely nothing about nutrition – when I started talking about calcium, magnesium and boron she looked at me like I was speaking some other language. Those women that got osteonecrosis said it didn't stop with their jaws, it continued to waste other parts of their bodies. No way am I going to pay money to take a chance on that.

BTW: I took my parrot off the heart medication they gave her and she is back to normal! I thought she would die last night – but she is back to being herself! It's a miracle!

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@ parrotqueen I am on Tymlos, I had to be on it for 6 weeks before my surgery. I'm doing great on it with some minor side effects. I will be continueing it until my spine has healed from the surgery. They told me I would have to take it for up to two years, but my endocrinologist said to ask my surgeon about it to see if I can stop it after I heal. Then they would put me on something else. If your bones are that bad, I'm worried about you. Ask about Tymlos and see if she will ok that for you. It is an injection into the stomach once a day and the needle is so small you don't even feel it. Bless you!

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@lilypaws

@contentandwell, @lioness, @parrotqueen, First of all I'm sorry parrotqueen that you lost your parrot. I had to give up my dog because I couldn't take care of her anymore. But she's at where we use to board her and they love her and she's doing great!! I don't think you know me, but I'm having pre-op tests on Monday at Mayo and surgery on the 9th and 11th.
Anyway, we all talk about the Covid-19 virus and I know it's bad, but there are more people that die from the flu then the virus. We just have to take care and not let it get to us. Wear mask, use santizier (SP), wash your hands etc. I hear it over and over. I guess I use my faith and don't worry about it. But, I can understand why people do, because it's all over the news and everywhere.

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First, I blessedly did not lose my parrot. Once again, her malaise was due to side effects to a new medication. She seemed to be tolerating it well the first week – so I didn't immediately think of that. Then she began slowly getting less and less active, and eating less food, not singing, not participating in anything. Thank goodness I remembered the medication and took her off it immediately. Today was the fourth day off the medication, and she flew today, ate more, and went into every room of the house. But she was pooped out early – so she is not back fully yet. Also waiting for a song.

Second, your statement that more people die from the flu is no longer correct. According to the CDC, there were 24,000 – 52,000 deaths from the flu this past season that ended April 4. There were an estimated 39,000,000 – 56,000,000 cases of flu. COVID 19 is much more deadly than the flu. We have surpassed 90,000 deaths tonight. What is scary is that more people are dying every day NOW – it goes up with each passing day. I have no idea why states are opening up when the numbers are going up. Wear a mask, wash your hands, and do not touch your face. Stay 6' apart. I am having my groceries delivered for the first time this week. My doctor called me and told me not to go out – she is an infectious disease doctor and she said we are having an uptick in my area (and I lack an immune system). It isn't good to worry – it lowers your immune system (if you are lucky enough to have one!).

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@lioness

@parrotqueen I,m so glad to hear about your parrot . You sounded so upset so am glad to hear this again. No there, s no way I,m taking any of those bone builders not after what happened to my friend in Pa. Take care

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Lioness: I know you told me before, but I have forgotten. What happened to your friend in PA that took the bone builder drugs? I am so sorry, but I just forgot.

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@parrotqueen

Lioness: I know you told me before, but I have forgotten. What happened to your friend in PA that took the bone builder drugs? I am so sorry, but I just forgot.

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@parrotqueen. First of all the Dr had her on Fosamax for awhile I forget the time but her jaw bone started to hurt she went to dentist and he told her her teeth where lose and she should talk to the Dr about her med Fosamax . When he told her of the side effects she stopped it right away and started to do strength exercises and more calcium, mag. and swimming . That was Fosamax then he suggested for her Reclast I was with her 'after the injection she started feeling funny and luckily she was in the clinic as the Dr kept her there for awhile . She almost passed out , Her body just would'nt accept that shot . So just the vit, minerals and dairy products . That had to be in the 2000's cant remember date but is doing well now . She went to her endocrinologist and he put her on massive dose of D3 and other things . Her D3 is now within limits she still exercises

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@parrotqueen

Please do a lot of research before you take that Reclast or Prolia. I have not talked to one person who got better using that. I wish I could get my new DEXA scan – but I have to wait until the COVID 19 is not so bad (I have NO immune system). I have been doing nutritional supplements, exercise, and also a very low dose of estrogen. My previous DEXA scan score was very bad -5.7 and I was fracturing. The fracturing has stopped. But I need to get a new scan before I can claim I've improved. I refuse to take something with side effects so bad. Talking to those two women whose jaws were ruined by osteonecrosis after using those drugs was enough to convince me not to try it. The doctor was furious when I said I wouldn't take it. She left the room without saying another word. She knew absolutely nothing about nutrition – when I started talking about calcium, magnesium and boron she looked at me like I was speaking some other language. Those women that got osteonecrosis said it didn't stop with their jaws, it continued to waste other parts of their bodies. No way am I going to pay money to take a chance on that.

BTW: I took my parrot off the heart medication they gave her and she is back to normal! I thought she would die last night – but she is back to being herself! It's a miracle!

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Thanks for your advice. I have had three Prolia injections and really dont want the next one. My bone density based on Dexa results definitely showed significant improvement. I am a big researcher. Reclast or Aclasta as it is called in Canada sounds like a whole new kettle of worms. However, discontinuing Prolia without going on a "relay" drug for one year puts you at risk for vertebral fractures. This is a tiny little fact that many doctors fail to mention at the outset. Amgen, the maker of Prolia, now has this warning in their own literature.
Right now, from my perspective, there are no terrific pharmaceutical choices for osteoporosis.
Wishing your parrot continued good health. Stay safe!

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@sue225

Thanks for your advice. I have had three Prolia injections and really dont want the next one. My bone density based on Dexa results definitely showed significant improvement. I am a big researcher. Reclast or Aclasta as it is called in Canada sounds like a whole new kettle of worms. However, discontinuing Prolia without going on a "relay" drug for one year puts you at risk for vertebral fractures. This is a tiny little fact that many doctors fail to mention at the outset. Amgen, the maker of Prolia, now has this warning in their own literature.
Right now, from my perspective, there are no terrific pharmaceutical choices for osteoporosis.
Wishing your parrot continued good health. Stay safe!

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@sue225 As you say, there really are "no terrific pharmaceutical choices for osteoporosis" but the risk is fracturing something and older people who fracture a hip are often in a wheelchair for the rest of their lives and also many pass way within a year due to lack of mobility. I am doing all of the things that have been advised except medication, which I would have done by now if not for the current situation.

This is very frightening stuff.
JK

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