Just wondering...sometimes after the call, it doesn't work out?

@rosemarya
Where us this place in Jax...want to alert Mayo to NOT put it on the list they give you at evaluation.

@jeanne5009 There is a Hampton Inn one exit south off 202 (JAX Beaches, Marsh Landing). You cannot miss it after you exit. Also, for 10 weeks we have rented an apartment and furniture at Ocean Park. No carpeting in formal areas so easy to mop up the dust. Screened porches, better appliances including washer/dryer. Pool if you need it and gym. Good staff. They do 3 month rentals.

Hi @jodee, How is your son doing after checkups? My husband received a double lung transplant just over two years ago and he has a lot of ups and downs in his breathing capacity. A decrease in pulmonary function is always a sign of something going on and triggers his team to investigate and treat.

@hansonca03 you have tagged the wrong person, you want @myson. My husband's head a liver transplant this past July.myson My husband's head a liver transplant this past July.

hansonca03 @hansonca03, I want to welcome you to Mayo Connect. I am a liver/kidney transplant recipient, so I don't have experience with lung transplant. But from what I understand it is a complex surgery that requires a well coordinated recovery. I met a woman with a new lung transplant at my local lab once, and she was wearing a mask that she needed for protection. I don't know how long she will wear it or if she'll choose to wear it whenever she goes to the lab.
You say that your husband has had ups and downs with his breathing capacity. Are you near his transplant team to get treatment? I can imaging that that must be frightening for you when it occurs.
I want to introduce you to @myson. She recently shared the news that her son had a double lung transplant early November 2018. If you scroll back through this discussion, you can read about her son's experience from her eyes. I think she would appreciate meeting you. Your experience with lung transplant as a caregiver is a special gift that can be a comfort and blessing to her and to other lung transplant patients.
How is your husband doing at this point?

@hansonca03. Good morning from South Carolina. My son did receive double lung November. He is doing great and just sent us home. At 10 weeks he is driving and desires more independence. We love it but still worry all the time. I understand the fear when spirometer readings go down. He now has a fungal infection. Have you had to deal with that? The meds for just that are very expensive.
He has 3 girls, 12 and under. They are doing so good dealing with the separation plus anxiety and look forward to having him home.
The drs and staff are so amazing. It has been a real learning experience.
I am curious about the first 2 yrs. Please feel free to share with me any time. Thank you @rosemarya.

@jeanne5009 The Mayo Inn that is connected to the Mayo Clinic. Not the hotel that is disconnected. Room 211 specifically. If they wish to check me, they can pull out the nightstand on the right side of the bed that is to the right when you enter the room. There is no denying. And get this.....we brought our son 8 days after surgery to this room and beginning with the first night there was no hot water for 3 nights. I had to boil water on the stove for cleaning our bodies, etc. I was just about hysterical with worry.

@myson,
I’m sorry that you had a bad experience at this hotel. We certainly don’t want your visit as a patient or caregiver to Mayo Clinic to be marred by a bad experience with your hotel accommodations. This facility is located on the campus of Mayo Clinic in Florida but is independently operated. The hotel is actually scheduled to close in a few weeks. The building will be demolished and there are future plans for a replacement. There are several other hotels on or near our campus that are available to serve the needs of our patients.

@myson That's wonderful that your son is doing so well, what a relief that must be for all of you. It's such an incredible feeling when you finally have that transplant. I presume the fungal infection can be taken care of easily.
I read about your experiences at the hotel. That's really terrible. It's a shame that the hotel has the Mayo name, making it sound associated with the Mayo Clinic.
JK

Was this the Marriott in Jax?