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Just wondering...sometimes after the call, it doesn't work out?
Transplants | Last Active: Jan 27, 2019 | Replies (46)Comment receiving replies
@hansonca03. Good morning from South Carolina. My son did receive double lung November. He is doing great and just sent us home. At 10 weeks he is driving and desires more independence. We love it but still worry all the time. I understand the fear when spirometer readings go down. He now has a fungal infection. Have you had to deal with that? The meds for just that are very expensive.
He has 3 girls, 12 and under. They are doing so good dealing with the separation plus anxiety and look forward to having him home.
The drs and staff are so amazing. It has been a real learning experience.
I am curious about the first 2 yrs. Please feel free to share with me any time. Thank you @rosemarya.
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@myson That's wonderful that your son is doing so well, what a relief that must be for all of you. It's such an incredible feeling when you finally have that transplant. I presume the fungal infection can be taken care of easily.
I read about your experiences at the hotel. That's really terrible. It's a shame that the hotel has the Mayo name, making it sound associated with the Mayo Clinic.
JK