1. < Lung Health

Paralyzed Diaphragm

Posted by giller198 @giller198, Jul 3, 2018

My name is John and I was diagnosed this past January with a paralyzed right diaphragm. Phrenic nerve damage has been ruled out because of the amount of time between my heart valve surgery and when this started. I still cannot figure how this happened, I have a couple of ideas but nothing conclusive. I have seen two pulmonary doctors and both say there is a surgical procedure that can be done but no guarantee that it will work. I would like to know if anyone out there has been diagnosed with a paralyzed diaphragm and if they had it fixed.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 5, 2019

@usmccam
Thanks for checking in. I'm sorry to read of your increased breathing problems. Will pray extra for you today. Only respond as you feel up to it.

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alamogal635 | @alamogal635 | Apr 5, 2019
In reply to @usmccam "@jenniferhunter, @terri, @rosemary, @alamogal635, @burrkay, @Teresa, @Merry, The past few days have not been very good..." + (show)
@usmccam

@jenniferhunter, @terri, @rosemary, @alamogal635, @burrkay, @teresa, @merry,

The past few days have not been very good at all due to my atelectasis. Breathing has become very difficult, to say the least. I will respond to your comments above in time but for now, I need to rest and limit my exertion. Hope ev1 is doing good. Ciao.

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Am so sorry this is happening to you. Your rest, take it easy, and get better. Will continue t keep you in my thoughts and prayers. Blessings, to you.

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alamogal635 | @alamogal635 | Apr 5, 2019

@usmccam Want you to know I'm thinking about and praying for you. You just take it easy and do what you have to do--feel better and have some breathing relief. Don't worry about responding--just rest and take care of YOU. Blessings to a fine man and a fine Marine. If you get my other post, great--if not, this one says about the same thing. Hang in there and fight this damned thing. Pulling for you.

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usmccam | @usmccam | Apr 12, 2019

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

REPLY
6 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 12, 2019
In reply to @usmccam "@alamogal635 @Merry, @Teresa, @windwalker @jenniferhunter @burrkay Have had several emergencies since my last post that required..." + (show)
@usmccam

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

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@usmccam

I am sorry to hear about all of your emergencies. I am glad that you find yourself stable enough to post again. We will all "hold on to hope" for you as you deal with this difficult disorder.

We care about you and look forward to hearing from you whenever you can post.

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Merry, Alumni Mentor | @merpreb | Apr 12, 2019
In reply to @usmccam "@alamogal635 @Merry, @Teresa, @windwalker @jenniferhunter @burrkay Have had several emergencies since my last post that required..." + (show)
@usmccam

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

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@usmccam- Good morning. I hope that today will be another stable day for you and that you will continue to have more of them. I'm very disappointed that you are not a candidate for a transplant. The infections that you have are so stubborn and they just don't want anyone interfering with their presence. They are like cancers, well in a way, kind of... I'll look forward to hearing from you when you next post. Are their TV or videos that you are watching that keep you amused when you are strong enough to watch?

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alamogal635 | @alamogal635 | Apr 12, 2019
In reply to @usmccam "@alamogal635 @Merry, @Teresa, @windwalker @jenniferhunter @burrkay Have had several emergencies since my last post that required..." + (show)
@usmccam

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

Jump to this post

@usmccam Glad you are able to post again. Was wondering how you are doing. Darned, was hoping for a lung transplant for you. Please take care fo yourself as you go through this. Also when you feel able, keep us posted as to how you are doing. I hope you are comfortable and still able to do the beautiful graphics work you do. I am still pulling for you and am improvements to your health despite what is said. You remain in my prayers and thoughts. God bless you always. Mary

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 12, 2019
In reply to @usmccam "@alamogal635 @Merry, @Teresa, @windwalker @jenniferhunter @burrkay Have had several emergencies since my last post that required..." + (show)
@usmccam

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

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@usmccam, It is a blessing to hear from you this morning. I hope that you can get some peaceful healing rest as your body works to strengthen itself. I would like to send you a gentle hug.

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Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | Apr 12, 2019
In reply to @usmccam "@alamogal635 @Merry, @Teresa, @windwalker @jenniferhunter @burrkay Have had several emergencies since my last post that required..." + (show)
@usmccam

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

Jump to this post

@usmccam Good morning. Thanks for your update. You've been an inspiration to us, and I was wondering, what inspires you? Who are your heroes? I'm praying for you and wish you peace. If you are unable to answer, I understand. We all care about you and wish we could do more to help.

REPLY
Mentor
Terri Martin, Volunteer Mentor | @windwalker | Apr 12, 2019
In reply to @usmccam "@alamogal635 @Merry, @Teresa, @windwalker @jenniferhunter @burrkay Have had several emergencies since my last post that required..." + (show)
@usmccam

@alamogal635 @merry, @teresa, @windwalker @jenniferhunter @burrkay

Have had several emergencies since my last post that required intervention and am currently stable enough to post. I was told that transplant is not an option for me due to several negative factors, age, and other health issues being the most critical. My condition is listed as stage 4 (end stage) COPD with advanced bronchiectasis and severe atelectasis (round). I wanted to update what is going on presently and thank everyone for their previous posts. I will post when I can.

Jump to this post

@usmccam, Hi there. I too am sorry to hear of your recent setbacks. I wish like hell you weren't going through this. Still keeping you in my prayers. Haven't posted for a few days because I have been a jurist most of the week on a criminal case. It was sad and emotionally draining. I am pet sitting now for a friend down in Florida, so I will also enjoy this time as a vacation as well. I brought my fishing pole and will try to catch some dinner over the weekend. It lifts my heart when you are able to post your replies, and understand when you can't. Sending you cyber hugs.

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