1. < COPD: Chronic obstructive pulmonary disease

COPD and Emphysema: Confused by pulmonary function test and more

Posted by redsox @redsox, May 29, 2018

Confused by PFT. So much to absorb ! What are the treatments for Mild, Moderate and Severe ?

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

clipper | @clipper | Feb 15, 2019
In reply to @merpreb "@waterboy- Good morning- This has been on the market for about 8 months. I'm not sure..." + (show)
@merpreb

@waterboy- Good morning- This has been on the market for about 8 months. I'm not sure how beneficial this has been or how many people it's been used on. It is for sever emphysema. There are a lot of contraindications but I couldn't find how well it is doing. Any idea what the cost has been?

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I know someone that is getting the valves on Wednesday. I have an appointment with Dr Criner at Temple University Lung this Thursday. I will pass on what I learn.

It is for severe to very severe emphysema. https://www.atsjournals.org/doi/10.1164/rccm.201803-0590OC
This article mentions heterogeneous emphysema but they are also using them on patients with homogenous emphysema.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 15, 2019
In reply to @clipper "I am going to jump in here. At this time time there are no legitimate, effective..." + (show)
@clipper

I am going to jump in here. At this time time there are no legitimate, effective FDA approved stem cell treatments. Unfortunately the private companies that offer stem cell treatments are not proven to be effective nor are they proven to be safe. There are lawsuits and the FDA is attempting to shut them down. Here are links to official statements on stem cell treatment by reliable trustworthy organizations...

American Lung Association https://www.lung.org/our-initiatives/research/about-our-research/stem-cell-therapy.html
COPD Foudnation https://www.copdfoundation.org/Take-Action/COPD-Policy-Issues/COPD-Foundation-Position-on-Stem-Cell-Therapy.aspx
FDA https://www.fda.gov/ForConsumers/ConsumerUpdates/ucm286155.htm
And an assembly of world wide organizations https://www.thoracic.org/members/assemblies/assemblies/rcmb/working-groups/stem-cell/resources/statement-on-unproven-stem-cell-interventions-for-lung-diseases.pdf

There is legitimate stem cell research being done so we might have an option in the future but unfortunately not today.

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Thanks for jumping in @clipper. You're absolutely right. I appreciate your posting these links. I hate to see people throw money at unproven treatments. It is so hard to accept that the promise of regeneration medicine isn't ready yet.

Where evidence shows effectiveness, FDA approval can be expedited, like for the Zephr valves.
- FDA Approves Zephyr Endobronchial Valve For Treating Severe Emphysema https://www.copdfoundation.org/About-Us/Press-Room/Press-Releases/Article/1391/FDA-Approves-Zephyr-Endobronchial-Valve-For-Treating-Severe-Emphysema.aspx

All the best with the procedure and yes, please return to tell us about your experience. How long are you expected to be in the hospital?

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Mentor
Merry, Volunteer Mentor | @merpreb | Feb 16, 2019
In reply to @clipper "I know someone that is getting the valves on Wednesday. I have an appointment with Dr..." + (show)
@clipper

I know someone that is getting the valves on Wednesday. I have an appointment with Dr Criner at Temple University Lung this Thursday. I will pass on what I learn.

It is for severe to very severe emphysema. https://www.atsjournals.org/doi/10.1164/rccm.201803-0590OC
This article mentions heterogeneous emphysema but they are also using them on patients with homogenous emphysema.

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Thank you @clipper. This is valuable information and gives hope to everyone with emphysema!

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joangma | @joangma | Feb 16, 2019

thanks for the tip bill going there now.

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clipper | @clipper | Feb 16, 2019
In reply to @colleenyoung "Thanks for jumping in @clipper. You're absolutely right. I appreciate your posting these links. I hate..." + (show)
@colleenyoung

Thanks for jumping in @clipper. You're absolutely right. I appreciate your posting these links. I hate to see people throw money at unproven treatments. It is so hard to accept that the promise of regeneration medicine isn't ready yet.

Where evidence shows effectiveness, FDA approval can be expedited, like for the Zephr valves.
- FDA Approves Zephyr Endobronchial Valve For Treating Severe Emphysema https://www.copdfoundation.org/About-Us/Press-Room/Press-Releases/Article/1391/FDA-Approves-Zephyr-Endobronchial-Valve-For-Treating-Severe-Emphysema.aspx

All the best with the procedure and yes, please return to tell us about your experience. How long are you expected to be in the hospital?

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I am going for my first consult Thursday. If the first appointment goes well then I believe there will be a series of tests to determine if I really am a candidate or not. It could be weeks/months before I know.

I believe the procedure takes about an hour and it is a 5 day stay in the hospital. They keep you that long for observation in case of complications.

I will be sure to post about it.

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clipper | @clipper | Feb 16, 2019
In reply to @walkro9 "Will the VA approve it" + (show)
@walkro9

Will the VA approve it

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I don’t know about the VA. There aren’t that many hospitals doing it yet. I am sure in time more and more hospitable will offer it.

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walkro9 | @walkro9 | Feb 17, 2019
In reply to @clipper "I don’t know about the VA. There aren’t that many hospitals doing it yet. I am..." + (show)
@clipper

I don’t know about the VA. There aren’t that many hospitals doing it yet. I am sure in time more and more hospitable will offer it.

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I would wondering if they would take on a test patient that can’t afford the procedure, I had a broncostamie done n I got a fungal infection that almost killed me, before I had the procedure I could breathe and know I can’t n I went from 110 lbs to my regular weight n I have a very strong heart that kept me going I’ll do anything to

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2 replies
clipper | @clipper | Feb 17, 2019
In reply to @walkro9 "I would wondering if they would take on a test patient that can’t afford the procedure,..." + (show)
@walkro9

I would wondering if they would take on a test patient that can’t afford the procedure, I had a broncostamie done n I got a fungal infection that almost killed me, before I had the procedure I could breathe and know I can’t n I went from 110 lbs to my regular weight n I have a very strong heart that kept me going I’ll do anything to

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You could talk to your pulmonologist, maybe they can help you locate a hospital doing the Zephyr valve procedure in your area. That is how I would go about it.

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1 reply
Mentor
Merry, Volunteer Mentor | @merpreb | Feb 18, 2019
In reply to @walkro9 "I would wondering if they would take on a test patient that can’t afford the procedure,..." + (show)
@walkro9

I would wondering if they would take on a test patient that can’t afford the procedure, I had a broncostamie done n I got a fungal infection that almost killed me, before I had the procedure I could breathe and know I can’t n I went from 110 lbs to my regular weight n I have a very strong heart that kept me going I’ll do anything to

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@walkro9 and @clipper - I know that it seems redundant but please use a person's name at the beginning of each conversation. There are so many posts that after a while it gets confusing. Thank you

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