Adults On The Autism Spectrum

Ahoy, mateys. Captain Jane from the Good ship Mamacita, here. Just dropping in to say that the Plagues of Egypt Fairy has yet another surprise for me. I have shingles. All over my scalp, on my forehead, and on one eyelid. So I am fully prepared to go to the ER at any time. If it gets actually into my eye, I am at risk of losing sight in that eye. An ophthalmologist will have to treat me to prevent that or glaucoma. Chants, prayers, good vibes and anything else would be greatly appreciated. I will keep you posted. Love you big! Oh....and here's a thought. Can you imagine how it feels to be Autistic, an introvert, sensory sensitive, and anticipating a midnight right to the ER? Yep. Fun.

Ahoy, mateys. Captain Jane from the Good ship Mamacita, here. Just dropping in to say that the Plagues of Egypt Fairy has yet another surprise for me. I have shingles. All over my scalp, on my forehead, and on one eyelid. So I am fully prepared to go to the ER at any time. If it gets actually into my eye, I am at risk of losing sight in that eye. An ophthalmologist will have to treat me to prevent that or glaucoma. Chants, prayers, good vibes and anything else would be greatly appreciated. I will keep you posted. Love you big! Oh....and here's a thought. Can you imagine how it feels to be Autistic, an introvert, sensory sensitive, and anticipating a midnight right to the ER? Yep. Fun.

Ahoy, mateys. Captain Jane from the Good ship Mamacita, here. Just dropping in to say that the Plagues of Egypt Fairy has yet another surprise for me. I have shingles. All over my scalp, on my forehead, and on one eyelid. So I am fully prepared to go to the ER at any time. If it gets actually into my eye, I am at risk of losing sight in that eye. An ophthalmologist will have to treat me to prevent that or glaucoma. Chants, prayers, good vibes and anything else would be greatly appreciated. I will keep you posted. Love you big! Oh....and here's a thought. Can you imagine how it feels to be Autistic, an introvert, sensory sensitive, and anticipating a midnight right to the ER? Yep. Fun.

Autism and I go way back. As far as I can remember. And I can remember as far back as my infancy. Can any of you Auties remember before you were a year old? I would love to have you tell us your story.
Steps. So many steps. And Neurotypical people wonder why we Auties burn out, seem antisocial, and have melt downs. My youngest daughter, who just had a baby a month ago, was explaining all she had to do in order to prepare for the baby. The list went on and on. I was tired before she finished. "So many steps!"

I couldn't help but think about how ironic that statement was. She was explaining my life, everyday, with that statement. And she is not Autistic. She is ADHD, and does have a few traits from her beloved Mama. That is to be expected, of course. Everything I do, every day of my life has so many steps. It is exhausting.

Learning how to present as Neurotypical in this society is exhausting to us Auties. We hate small talk yet we must learn a bit about it or we are perceived rude and uncaring everywhere we go. That's just the way life is.

Some situations can be life threatening, if not approached properly. Witness the shootings of persons who could not follow a police officer's directions. Delays in language or auditory processing, can appear to be defiance and endangerment to an untrained law enforcer's eye. The end result can be deadly.

My challenge today is to simply show up at an ER and present my shingles, which advanced precariously close to my eyeball during the night. The eyelid itself is red, my cornea is scratchy, and it looks a bit red in certain areas. I want to be proactive and go ahead and go before it gets any worse. That's what the nurse practitioner told me to do. Go at the first sign of irritation on the cornea.

Going to the emergency room is like going to the police station to me. I feel intimidated. I feel like they have all the power over me. And if I make one mistake they will throw the book at me. I feel judged. But I have learned so much from all of you. I have been encouraged to be strong, and to do self care. I have been told that I am good enough, that I am worthy, that there is a greater purpose going on here and I am part of it.

I feel loved and supported. I feel like I have friends and family here. It gives me hope that I can slay the dragons in my path. You all are amazing. And if I can ever do anything for you, I'm your girl. Can I ask you for responses about this dissertation? Do any of you have major concerns about going to the ER? Please let me know.

@gingerw Hi Ginger! I’m not on the autism specter (i hope I said that correctly) but I searched for you and this is where I ended up. I’m admitting it-I’m sliding down into that black hole of depression and I need help. I read the instructions for sending someone a private message . It tsaid after you are brought to member’s profile page to click “send private msg”, which of course, was not on my screen. So here I am. I have so many physical things going wrong and all my friends are back where I used to live. I live with my younger brother and the relationship is horrible. I can’t get my strength back from my recent hospital stay. I’m having panic attacks, but running quickly out of medicine, for which I’ll have to go to dr to refill( more $) which we don’t have. My brother lost his job and works part time-he supports me as I am on disability. I’ve been the soc serv route and the waiting lists here are at least 1 year. I don’t know where we’re going to live, as we have no relatives. I can’t go through this with my physical problems as well as mental ones......Karen

Autism and I go way back. As far as I can remember. And I can remember as far back as my infancy. Can any of you Auties remember before you were a year old? I would love to have you tell us your story.
Steps. So many steps. And Neurotypical people wonder why we Auties burn out, seem antisocial, and have melt downs. My youngest daughter, who just had a baby a month ago, was explaining all she had to do in order to prepare for the baby. The list went on and on. I was tired before she finished. "So many steps!"

I couldn't help but think about how ironic that statement was. She was explaining my life, everyday, with that statement. And she is not Autistic. She is ADHD, and does have a few traits from her beloved Mama. That is to be expected, of course. Everything I do, every day of my life has so many steps. It is exhausting.

Learning how to present as Neurotypical in this society is exhausting to us Auties. We hate small talk yet we must learn a bit about it or we are perceived rude and uncaring everywhere we go. That's just the way life is.

Some situations can be life threatening, if not approached properly. Witness the shootings of persons who could not follow a police officer's directions. Delays in language or auditory processing, can appear to be defiance and endangerment to an untrained law enforcer's eye. The end result can be deadly.

My challenge today is to simply show up at an ER and present my shingles, which advanced precariously close to my eyeball during the night. The eyelid itself is red, my cornea is scratchy, and it looks a bit red in certain areas. I want to be proactive and go ahead and go before it gets any worse. That's what the nurse practitioner told me to do. Go at the first sign of irritation on the cornea.

Going to the emergency room is like going to the police station to me. I feel intimidated. I feel like they have all the power over me. And if I make one mistake they will throw the book at me. I feel judged. But I have learned so much from all of you. I have been encouraged to be strong, and to do self care. I have been told that I am good enough, that I am worthy, that there is a greater purpose going on here and I am part of it.

I feel loved and supported. I feel like I have friends and family here. It gives me hope that I can slay the dragons in my path. You all are amazing. And if I can ever do anything for you, I'm your girl. Can I ask you for responses about this dissertation? Do any of you have major concerns about going to the ER? Please let me know.