Adults On The Autism Spectrum
Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question "Why?" At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn't really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don't speak these people's language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn't tell a joke, and you never "got" any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn't appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!
Interested in more discussions like this? Go to the Autism (ASD) Support Group.
Dear @sirgalahad, thank you so much for your virtual hugs and warm fuzzies. Today I had an appointment with one person I already knew, and another person I had never met before. My anxiety level was up a bit, considering I really wanted to make a good impression. I cannot look at myself in the mirror and see what is really there. If I am depressed, which I have been recently, I will not think favorably of my reflection. Fortunately, a new medicine has been added to my regimen and I am able to function. Your hugs from afar mean a lot to this Autie. We are all better togethet.
Mamacita
Dear ones, I am friends with those who believe that vaccines cause Autism. I am friends with those who believe our brains are constructed differently from the moment of conception. When I started working in the field years ago, we really didn't know very much. We basically hoped, prayed, and flew by the seat of our pants. Early on we knew that too much clutter would distract our precious little Auties. (We didn't refer to them in that way then. We used the term " on the Spectrum.") We covered up the books on the shelves with plain white curtain material, and only used one object at the time in instruction. I used puppets early on, and made the puppet a naughty little bear, who was a kindergartener. I would show them the "wrong" way of doing something by having the little bear act it out. The children would squeal with delight at his antics, and shout "No, no, that's not the way to do it!!!!" Then together, hand over hand, we would act out the correct way. Music was good therapy during this time. I found one particular radio station that seemed to soothe them. No other station would do. I tried. Really, I tried. ABA was the going thing back then and we were desperate In our sheltered little corner of the South, we only used rewards for completed tasks. Never punishment. We allowed them to "stim " which again, seems to be the going thing in Autism circles now. Good thing. Researchers and teachers alike are saying that even Neurotypicals "stim." So it is considered appropriate for them to express their feelings. We didn't take away privileges for tantrums. We added more PE time. Try explaining that to a group of regular education professionals. They tried to understand, some of them. But many just thought that we were crazy and didn't know what we were doing. Well, they were halfway right. We were crazy in love with this precious child that so many wanted to give up on. We knew there was a purpose and a plan. Heaven itself was our teacher and guide. So if you or someone you love is Autistic, read every book you can get your hands on. Check out support groups and blogs online and in the community . Look for the ones who support the child in their gifts. Look for the ones who support the rights of those who speak differently, or not at all. We come in all sizes, shapes, and colors. We hurt, we feel, deeply. We are different, not less than. And we make very loyal friends once you understand that we think outside the box. Shalom,
Mamacita
I am not Rain Man, although I do crave order and simplicity. I do not like surprises. I am not the Good Doctor. I do not see every aspect of my life in flashes on a computer screen, pictures drawn in brilliant colors. I am not apathetic. I just don't understand all the social cues and rules that abound in our society. I think outside of the box, and sometimes that doesn't make any sense to the average person. I am not arrogant. I do not think that I am better than anyone else. It's just that I know that I am not less than. I do want friends. I adore people. I enjoy helping wherever I can. But if I have been with a group all day, I need to go home and just read a book or watch some mindless tv. I need down time to recharge my batteries. I am hypervigilant. My senses are extremely acute. They wear me out. They also come in very handy. I have other conditions alongside my differently wired brain. For some of these, medication is beneficial. Cognitive Behavioral Therapists come in handy as well. I do not have good coordination. It's almost as if I don't quite know where to put my hands, or how to walk correctly. I collect things and know lots of useless bits of trivial information. I still love to spin around. But these days, doing so might get me a broken hip. I stim with my bracelets. Lots of regular folks do that as well. So, do you feel like you know me a little better? Good. Love you all,
Mamacita
hi Marmacita , based on a scientific medical research paper from BOSTON UNIVERSITY WRITTEN GILBERT AND MAN .called the Fundamental Elements in autism: From Neurogenesis and Neurite Growth to Synaptic Plasticity. This paper identifies 30 different genes involved in the physiological changes to the brain at the making of the brain at theend of the first Trimester of a babies development and its this point where the changes occur and leading to a child being on the ASD
@mamacita You make yourself known in such a refreshing way! Teresa
hopeful33250, your name on here gives me hope. It reflects your personality. After a particularly distressing event, I slept from six pm until eight thirty pm. I was so overwhelmed with sensory involvement, if I had a tunnel to China I would have gladly taken it. But only if it was guaranteed to land me in a quiet rice paddy. Autism is complex. It is all of the things I mentioned, yet it is none of these. Each description could pretty well describe an issue that could stand on its owm. Self harm? I doubt the readers want me to go there. Labeled an Aspie does not mean that those with Aspergers are unfamiliar with clawing one's skin in a meltdown, or banging a cabinet door with one's head. Pretty serious, huh? That's why ADHD didn't cut it. Anxiety doesn't completely define it. And no medication alone will "cure" it. Please, you have my permission to edit whatever you feel is appropriate. I am being as transparent as I can be. It is not always fun and games when dealing with the Spectrum. That's why these discussions need to be held. I am not throwing a pity party, because I have learned that no one will come! You just get up and get started. A new day as arrived. Let's make tge best of it, Typical and Atypical alike.
Peace.
Mamacita
I look forward to reading this information and discussing it further with you. Peace,
Mamacita
Thank you for this discussion. I am new to this community and hope I am directing my comments correctly by replying to your post. How do I comment on other members comments to your initial post? I'll get the hang of this shortly. I appreciate a community where it is easy to ask question, learn from others and hear the latest info out there and what people have done to learn more and do more while living on the spectrum. Thank you.
Thank you for sharing the scientific background of Autism Spectrum disorders. I want to learn all that I can.
Do you have a link to that research? Fascinating information! Lifelong learner on Autism Sectrum. Thank you.