1. < MAC & Bronchiectasis

Alternative Treatments for MAC: immunotherapy, etc.

Posted by jspremich @jspremich, Apr 5, 2018

I was diagnosed with MAC a little over 2 years ago. Have not yet starting taking antibodies. Although I suspect this will happen in the very near future. Has anyone explored alternative treatment, i.e. immune therapy?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

nick52 | @nick52 | May 20, 2018
In reply to @windwalker "@jspremich, Good morning Jerry. In response to how to build up your immune system; I am..." + (show)
@windwalker

@jspremich, Good morning Jerry. In response to how to build up your immune system; I am on that quest also. I just went on a combined suppliment of vitamin D/magnesium. Both of these eliments are supposed to help boost the immune system.

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@windwalker you sure are good at helping everyone.  Thanks for all of us to be so active and doing research to help all of us. You are great and keep up the good job! Nick

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tdrell | @tdrell | May 20, 2018
In reply to @colleenyoung "Welcome to Connect, @jspremich You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/..." + (show)
@colleenyoung

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

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Jspremich....I know nothing Re immunotherapy Rx for Mac. My ID Dr at NJH says to take at least 2000 units of Vit D to help immunity. Also they tested my blood to see if my immunoglobulins were within normal level...they were. Tdrell

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boomerexpert | @boomerexpert | May 21, 2018
In reply to @boomerexpert "@windwalker Thanks Terri good to know!" + (show)
@boomerexpert

@windwalker Thanks Terri good to know!

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Oh, and yes I have...as I can't do dairy, not a good choice for me but would be for others who can tolerate dairy!

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | May 21, 2018
In reply to @boomerexpert "@windwalker Thanks Terri good to know!" + (show)
@boomerexpert

@windwalker Thanks Terri good to know!

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@boomerexpert Kefir can be made with coconut milk (even better) also.

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1 reply
Jennifer | @megan123 | May 22, 2018
In reply to @windwalker "@jspremich, Good morning Jerry. In response to how to build up your immune system; I am..." + (show)
@windwalker

@jspremich, Good morning Jerry. In response to how to build up your immune system; I am on that quest also. I just went on a combined suppliment of vitamin D/magnesium. Both of these eliments are supposed to help boost the immune system.

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Thank you Terry✌️

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Jo Ann K | @jkiemen | May 25, 2018
In reply to @charlie999 "I am also praying for the NO break thru. Got off the big three because it..." + (show)
@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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I am still hoping that Mayo or some other institution would jump on this

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | May 31, 2018
In reply to @windwalker "@jspremich, Good morning Jerry. In response to how to build up your immune system; I am..." + (show)
@windwalker

@jspremich, Good morning Jerry. In response to how to build up your immune system; I am on that quest also. I just went on a combined suppliment of vitamin D/magnesium. Both of these eliments are supposed to help boost the immune system.

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@nick52 Thanks Nicole! How much longer will you be in Florida?

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pjebp | @pjebp | Oct 29, 2021
In reply to @windwalker "@boomerexpert Kefir can be made with coconut milk (even better) also." + (show)
@windwalker

@boomerexpert Kefir can be made with coconut milk (even better) also.

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Do you have a recipe?

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