Alternative Treatments for MAC: immunotherapy, etc.

Posted by jspremich @jspremich, Apr 5, 2018

I was diagnosed with MAC a little over 2 years ago. Have not yet starting taking antibodies. Although I suspect this will happen in the very near future. Has anyone explored alternative treatment, i.e. immune therapy?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Hi Linda, Sophia and all our Brothers and Sisters on the forum. I am tied up today on a project, but will put together the info you asked for tonite, and send it to you. God Bless. Charlie

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@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Charlie, I thank you for naming what you are taking. Jane Brown

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@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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My pleasure, Jane. I listed a few supplements in my previous post and have been asked to list all, so here we go...MSM (methylsufonglmenthame), white mulberry,mushroom extract, maqui, clove, resveratrol, ground flaxseed, artichoke extract, blueberry extract, nut rim oats, aakg nitric oxide, and elderberry. I buy all these in powder form and mix with 8 oz of apple juice in a blender. Don’t like to swallow capsules. tip: I usually prepare a two week supply in zip bags.
Please understand ** I am not a medical person of any kind. Over the past few years I have developed an interest in alt supplements and wish I could find a real professional recipe. If anyone has an idea on this, or can suggest an additive to mine, sure would be glad to know about it.

Blessings to all,

Charlie

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At the request of several members, I posted a list of supplements that I take. I am not suggesting that anyone take any supplement without first clearing it with your medical provider. This is very important.
Courteously,

Charlie

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Thank you so much, Charlie! I printed out that list and will do some research of my own to see what would work best for me. Blessings, Linda

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My pleasure, Linda. Run it by your Dr. to be sure it does not conflict with current meds.
Blessings,
Charlie

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@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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I am interested in the nitric oxide especially since they are doing inhaled nitric oxide research. Although inhaled goes right to the lung nd directly contacts the MAC, I am not sure how ingested nitric oxide would work or if that might still have a benefit.

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@jspremich, Good morning Jerry. In response to how to build up your immune system; I am on that quest also. I just went on a combined suppliment of vitamin D/magnesium. Both of these eliments are supposed to help boost the immune system.

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@colleenyoung

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

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@jspremich Jerry, are you familiar with Dr. Andrew Weil? He is a Harvard grad M.D. that chose to practice Integrative Medicine. He combines Eastern medicine with Western. He is mainly a Naturopath. He has some very good books out there that I started reading 12 yrs ago. I followed his suggestions and felt improvement within weeks. I eliminated my asthma by changing my diet. He has one book titled 'Eating for Optimal Health'. I like that he explains on a cellular level what is in various food and how it acts in our bodies. He talks about the different flowers, herbs, mushrooms, etc. that can boost our immune system. I reference my collection of his books frequently.

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@colleenyoung

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

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@jspremich I also wanted to add that since you are on the verge of needing meds to treat your mac; you may want to at least be doing the inhaled 7% saline breathing treatment. Are you familiar with this?

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