@jerrydrennan I feel like I'm in the same boat. I'm at the top of the wait list but still waiting. They're haven't received the right "size" for me with the right blood type (I am 0+). So the waiting game goes on.

@jerrydrennan I thought I responded to this before, but I don’t see a response out there. I did have malignant lesions that were removed by ablation.
Why would they pass you over for staging? To me, that doesn’t make sense.
JK

@lisamb this is another post I thought I had replied to.
Congratulations to your husband and to you. A rebirth of sorts, it’s such an incredible feeling. I hope your husband is doing great and his recovery will be smooth sailing.
JK

@jerrydrennan I hope this happens for you soon, and will be followed quickly by a transplant.
JK

@jerrydrennan Jerry, so you did have some malignancy in your liver I presume. How many lesions did you have? Were they burned off by ablation as mine were?
It wasn't until recently I suddenly realized that the length of time it took the doctors up here to figure out my problem could have been catastrophic to me, because the lesions could have grown more in size or increased in number and eliminated me from being a transplant candidate. That's a scary thought. I am so happy that it did all work out well. I honestly feel like every day is a gift.
JK

@jerrydrennan this waiting is such a nightmare. I really feel for you. I at least knew I was an active candidate, even though every time they did another test I worried about it eliminating me.
I really feel great empathy for the position you are in and hope all gets resolved very soon. The not knowing must be torturous.
JK

@contentandwell
Hello
I am diagnosed with De Novo prehiliar chalangiocarcinama nonresectable. Bile duct cancer at the liver. From all the CT and MRI all looks good. The laposcopic procedure will confirm whether the cancer has spread.
I try very hard to be patient and understanding. I would rather wait my turn than to be told that you will be staged then it does not happen.
As I have read on the Mayo connect a lot of emotion in most of the post. A lot of support and positive feed back. When they schedule a test or procedure and you want this to find out your next step. Then they canceled it and tell you don’t let this bother you or stress you out.
Yeah right no problem all is good. Thank God for prayer.
God Bless
Jerry

Thank you for the explanation that staging is not as common for lung transplants. I was asking simply to be informed. Much appreciated by you and @jerrydrennan. jerrydrennan

@contentandwell The anxiety of waiting is awful. God be with you and help speed your transplant.

@myson Thank you, but I was referring to when I was waiting. I had my blessed transplant in September of 2016 and have been great ever since.
JK