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@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK
Replies to "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..."
@jodeej I think A, along with B, tends to get transplanted sooner than O does. I am thinking of you and your husband a lot, i feel like I know you now. I hope this happens soon for him. If I recall you said he was still working. That’s amazing. I had stopped before all of this happened and ended up glad about that because I felt like I would have been somewhat unreliable.
JK
@contentandwell I actually read that in my research. I will find the link if you want me to.
2 of my 3 children are AB which is the rarest. 30+ years ago they were referred to as ABOs & it was believed that the only way you could be an ABO is if there was an rh- up line which my maternal grandmother was.
@beckyjohnson Read that As and Bs get transplanted sooner? I have read that many places. What I never knew before though is that ABs are a universal recipient. Thanks though.
JK
@beckyjohnson RH negative is related to type O? I never knew that.
JK
We are in region 7. My husband has cholangiocarcinoma /bile duct cancer. Staging surgery is done to explore the abdomen area to make Sure cancer has not spread outside of the bile ducts. Staging is done close to transplant time . It is of course hard to judge for the transplant team when the exact date will be. We assumed when he had it done March 23rd it would be within a month. We are now at 3 months and are praying there has been no spread of the cancer.
@contentandwell It is related to AB but I'm not sure about O. My maternal grandmother was an rh-. I was told when I had 2 ABO (is what it was called in the 1980s) children that there has to be an rh- family member upline (parent/ grandparent/ great grandparent) in order to have an AB (as it's called today) child.
@jerrydrennan If someone answered this before, I am sorry for repeating the question, but I didn't see a response. I do not remember the term "staged", what is that? Does it refer to the multitude of tests you must have before being accepted as a transplant candidate?
JK
@lisamb The wait is hard, for sure, and must be very hard with his MELD at 33. What region is he listed in, and do you know what the typical MELD is in that region for having a transplant?
JK
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@lisamb I am unfamiliar with “staging”, what is that? What region are you in? It sounds like it must be one of the ones where getting transplanted happens at a higher MELD due to demand. My region (1) is that way also, but somehow I got lucky.
JK