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Liver pre-transplant question

Transplants | Last Active: Aug 24, 2018 | Replies (127)

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@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

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Replies to "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..."

@contentandwell if I did post 36 it was a typo. He went to 30 on May 3rd. He gets some automatic bumps due to his liver cancer. It's supposed to go to 32 on August 3rd. Fingers crossed that he transplants soon.

It is my understanding that O is the universal donor blood type & AB is the universal recipient blood type

@jodeej I got those extra points too, and then had to have MRIs regularly. By some miracle I was transplanted at MELD 28. My MELD would have been bumped up a bit, shortly after that, which had always made me wonder if the transplant center has some discretion in whom gets the call. Is it every three months it can get increased?
JK

@beckyjohnson I didn’t realize that AB is a universal recipient, but it makes sense. I am type B.
JK

@contentandwell
I have a MELD of 33 and I have not even been staged.

thats 31 on the MELD.

@beckyjohnson @contentandwell my husband is A, which is very common.

My husband was staged in march and is now at meld 33 with type O blood. He was activated in march also , right after staging surgery. Our phones have been on 24/7 waiting for the call. Needless to say, still waiting!

@contentandwell Tim's got bumped 21 points 6 months after listed. Since then it's been 2 points every 3 months. It will go to 32 in August. From reading your other post, I'm guessing you got transplanted earlier due to your blood type. B isn't as common.
Blessings,
JoDee

@jodeej I always figured my blood type played a part in it too, but my husband is somehow convinced it was because I was deteriorating, and also because he figures I was a good candidate and would be a success story, which I was. During my wait I lost weight to get my BMI below 30 (it’s about 26 now) and increased my exercise. I was really very healthy going into the transplant, except for the ravages that cirrhosis had dealt me in the last 6 weeks. I shudder to think of that time — water leaking out of my feet and legs, I was retaining so much fluid. I gained 35 pounds of fluid. I was incredibly well, except for occasional HE episodes, up until then so I guess overall I have to figure I was very fortunate.
JK