Thyroid? Or something else? Constant internal shakiness

It appears that many doctors are clueless when it comes to pain and Autoimmune diseases. I put off calling my doctor for two days now. All I have to say to her is I cannot take it anymore. I feel sorry for you Amtxo. I complained of serious withdrawal pain for three nights at the ER. They sent me home Next day, Gall Bladder was an urgent surgery. I was full of infection. We do not know what this does to our organs. Xanex is strong. I could not take it.

Hi I also have internal shakiness but I call it electricity. Not sure if we have the same symptom. I have it in my legs (calves) bad and over the last few years in my hands. It gets much worse if I don't sleep well. I also need pain killers for it as the vibrations don't stop and the shakiness is also painful after I start feeling it for 5 minutes. Nothing else has helped me. I am also hypothyroid. It was also spreading to the bottom of my lumbar. I had that for a week and I did read on line that there is not enough calcium in your body and the nerves are not connecting and can cause this tremor. This person recommended taking Tums - since I was desperate for it not to be in another spot in my body I did take Tums , the first 2 weeks every day just 2 or 3 at the most. And believe it or not that stopped the vibrations in my lower back. Who knows? I now take Tums about 3 or 4 times a week to make sure, if they are helping to stop this weird electricity, that I have enough calcium in my system. Maybe it is part of a calcium issue? NO dr. in 20 years has any idea why this happened but it happened to me at the exact same time my thyroid went. I am sorry that this is going on at only 28, but maybe the Tums might help you.

Hi amtxo, I have experienced the internal tremors as well. It is in the back of my head, spine and hips. I have hashimotoe's (autoimmune thyroid disease) but not hypothyroid as of yet that I know of. I also experience neuropathy and weird imbalance issues like I am walking on sand or bouncing up and down really fast even though I am walking on normal ground and not bouncing! It's worse after using elevators and wearing heeled shoes. I have no diagnosis yet but I wanted to let you know that internal tremors I looked up may be harmless. I to do not know what causes it but I will keep you updated as I am undergoing test and treatments.

Sorry that you’re going through this. It sounds similar to what I’ve been going through the last few weeks and the doctors have no answers yet. Any update on your end?

Hello @joyg and @buddah, Welcome to Mayo Clinic Connect. It sounds like you both have upcoming doctors appointments. I hope they will be able to come up with a diagnosis and treatment plan for each of you. If possible, can you share an update with us after your appointment?

I did find some articles that may provide some more information for you.

What causes internal vibrations?
-- https://www.medicalnewstoday.com/articles/322217.php

If I were you I'd get a second opinion.

I had this problem as well. A neurologist diagnosed it as Essential Tremors and put me on medication to control them. Some days I could hide them really well but as the day went on they became worse and my hands would shake so badly I just opted to stay home more and more often. They felt the same on the inside as they looked on the outside. Some days I was so off balance form them that I would actually fall in my home. I was misdiagnosed for 7 1/2 years from everything to MS to Fibromyalgia and Chronic Fatigue. I went through the Mayo Clinic Pain program and even Mayo missed it. I have Hashimoto's Disease. All of the symptoms sound completely unrelated because they cover a very large spectrum. Once diagnosed and correctly medicated the tremors got much better. I opted to remove my Thyroid (my choice, not done at the physicians urging) after 7 months into treatment because leveling out my medication was really difficult after so many years of damage. It's a good thing that I did because the pathology showed Stage One Papillary Cancer that we didn't even suspect that I had. You should go see an Endocrinologist specifically one who deals with Hashimoto's Disease. One simple blood test will confirm or dismiss the diagnosis. My Endocrinologist said that he once saw maybe 1 or 2 people get the diagnosis every few months but he is seeing more and more women developing the disease. I removed my Thyroid 2 years ago and I am glad to say that the tremors disappeared completely soon after surgery. Hashimoto's Disease does not specifically list tremors/essential tremors as a symptom but I know a few people in Orlando who had the same experience that I did even thought they both still have their Thyroid. Go to the Mayo web site's search bar and type in Hashimoto's Disease you can read all of the symptoms and other information. I hope you do not have HD but if you do I assure you there is an end of the road with the struggle with the tremors and one simple blood test can change your entire life. Good Luck!

@blulilbaby, Oh wow!! I can relate to those symptoms and more!! I have also been diagnosed with Hashimoto's. I do have hypothroiditis. My thyroid hormones check out well with my medications, however, my TPO antibodies and TG antibodies remain crazy high! I have had numerous falls (2 broken bones) due to imbalance issues, temors in my hands and head-neck. The tremors seem to be more obvious to others the more physically tired I am. I have memory issues, possible witnessed absence seizures, loss of words, horrble spasms in my feet....ugh!! I could go on and on! I have been doing test after test for more than 5 years now! These symptoms come and go! I can tell you a bunch of things i DONT have! It IS frustrating!! I just wish i could find even i trigger to feel like i have some control over this

@blulilbaby, welcome to Connect. I noticed that you tried to include a link in your message. You will be able to add URLs in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post was not spam. Please allow me to post it for you.

About Hashimoto's disease from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/hashimotos-disease/symptoms-causes/syc-20351855

I think this is what I have as well. Mine happens at night and wakes me up with this strange shaking feeling inside my body. I first noticed it in my chest so thought I was having SVTs or something (I have Graves). But in the past few weeks it has moved into my head and neck. It makes me very anxious, can cause dizziness and also like I want to get up and move around to make it go away. I cannot sleep a normal night anymore they have gotten so bad. I see an endocrinologist so hoping she has some answers. Doe anyone also consult a functional medicine doctor for their auto-immune disease? I am currently seeking one that has experience in Graves and would appreciate any info. Thank you.