Aortic Aneurysms – Introduce yourself & meet others

Luky06 İ am sorry.i did’nt understand.

I have Pneumatosis Cystoides Intestinalis. I was wondering if the AAA is repaired would it help the PCI in anyway, i.e. would it stop the gaseous cysts from reoccurring, etc. I hope this helps, and thank you for asking.
Sincerely,
Pam

Hi, I've been followed for AAA since 2006, with yearly US and occasional CTA's in the Twin Cities. It has grown from 3.5 to 5.2 cm. The AAA was infra-renal until a thoratic one formed and covered the renal arteries. My new cardiologist said that he thought that I would need an open surgery, which I would like to avoid. I saw Dr Oderich at Rochester Mayo last December who advised that he might be able to do an EVAR , but suggested waiting until the maximum size was 6.0 cm. I will get CTA's every 6 months until then.

Thank you for the invite to join. I had open surgery for an abdominal aortic aneurysm that was discovered at 5.7cm in Nov. 26, 2018. I had surgery Dec.18, 2018 and have been recovering for the past 3 months. Just got cardiac clearance to return to work on 3/18/19. I would like to hear about exercise and from any one else who received a diagnosis without any previous cardiac distress.

Though I had an ascending aortic aneurysm, my story is much like yours. I too had open heart the aneurysm was discovered accidentally as I had no symptoms. It was about 6 cm. Had the surgery May 10, 2016. I did the cardiac rehab program at Mayos suggestion in my home town. After that, I have tried to walk at least a couple of miles each day. I have had no problems with any exercise and know I should do more. Really have had no aftereffects from the surgery. If I were you, I would ease into excercise, perhaps talking to your doctor about it, and then try to increase your time spent exercising. As I am now 75, I find I need to do some kind of fitness program to keep from being stiff. Hope this helps a bit and the very best to you.

I had hoped that I would be eligible for cardiac rehab--checked with my insurance and various hospitals in the area about self pay rehab--the answer was still a no go. I have been walking but need to build up my lung strength. I feel that being monitored would be a good thing--since this is still so new and my blood pressure has not yet stabilized to under 130 systolic. I appreciate your insights and wish you well!

Hi, I am told that I have an arterial infundibulum; But no one has bothered to tell me much, except not to worry. In the meantime, I think about my Mom who died when she bled out from an aneurysm, "in her back." That's really all I know. For the most part I am healthy, but have had a lot of headaches, lasting for more than a month now. After seeing the dentist, they had me do a MRI, & MRA test. Now I'm scheduled to see the physical therapist. I am wondering if I should be doing more? Any thoughts? LLouiseT

Llouise T,
I hope you are seeing a Cardiologist. Ask the Cardiologist if you should be pre-medicating before going to the dentist. This is usually a large dose of antibotics before they work in your teeth to abate any bacteria from your mouth that may get into your blood stream and causing an infection. I have to do it every time before I go in for a cleaning or any dental work.

All the best.

Bruce
Texas

My diastolic pressure goes from 50-120 at rest. My O2 rate drops to the 80s when I walk. EKG and sonogram and stress test are normal. Could this be an AA?

I too have a 4.4 aneuysm. I am scheduled for my yearly checkup in May. I do not have chest pain but experience shortness of breath and tiredness. Should I be concerned?