1. < MAC & Bronchiectasis

Alternative (herb) medications

Posted by charlie999 @charlie999, Jan 11, 2018

Anyone here tried alternative medications for mac? I was on the big three for a short time, but it was wrecking my body. liver still abnormal. I got off and not going back. Maybe try herbal solutions. I rarely ever cough and have no other symptoms. Doc says =according to my ct scans, I have mac=. Appreciate any herbal info/advice. Thanks. Charley

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Apr 1, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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@sophie1019 I just read back over your previous posts. I am guessing you were taken off the cicktail due to intolerance. What's next for you? My doctor put me on a rotating monthly antibiotic that wasn't those harsh ones and it seems to work for me. There is also inhaled cipro now available. Do you have a copy of your suseptability test?

REPLY
Sophie | @sophie1019 | Apr 1, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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I tolerated the med very well. Besides talking oral meds, for nearly two years, I was on an iv drip from Oct 2017 just ending thursday this week. The doc stated that I still have a small cavity in my lung, BUT since I haven't been sick from mac for nearly two years, I am still working and exercising regularly, she ( the I'd doc) aND my pulmonary doc decided to take me off. Please pray for me as I do for you and all others on this forum.. the I'd doc told me if I started feeling bad to get on touch with her asap. I also took a CT scan but I don't have any results yet...

REPLY
tdrell | @tdrell | Apr 1, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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@irene5.....when do you go to NJH.?terrid

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irene5 Irene Estes | @irene5 | Apr 1, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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In the process of being referred from ID and then getting an appointment. I will let you know when I know. 

REPLY
irene5 Irene Estes | @irene5 | Apr 1, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Definitely will keep you in my thoughts and prayers. Thank you for keeping us in yours.

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Sophie | @sophie1019 | Apr 1, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Thank you......

REPLY
Jo Ann K | @jkiemen | Apr 2, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

Jump to this post

I will pray for you. We all need to pray for each other. Kind of like we are all a family joined in a very unfortunate way but keep each other supported.

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Jane S. Brown | @macjane | Apr 2, 2018

You always write such nice emails. You give all of us support.

REPLY
nick52 | @nick52 | Apr 2, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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@alleycatkate thanks for getting back . I would be glad to talk with you.  Right now we are not home much because we are preparing our new house. We bought another house and we shall be moving within the next 3 weeks.  You can send me your phone number through

the private email and will call you before we return to Canada in May. It would be a pleasure for me to talk to you. Nick52

REPLY
Jo Ann K | @jkiemen | Apr 4, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

Jump to this post

What were your Alternative Meds?

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