COPD end stage: Anyone else?

Posted by robertjr @robertjr, Dec 16, 2017

Sorry havent been spending much time writing lately.Been going to hospital few times for breathing lately..Had a few discussions with pulmonologist,fev was 16 ,going to needa wheel chair.Right now cant even walk out to the car.Even room toroom getting hard..I realize copd doesnt get better but im only 63 not that old.

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

My husband is 60 and he has same story as you. I feel so bad. I can’t fix it. But he can’t walk to car without feeling like he’s going to pass out

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@kitkatkellykat @sneakerss . Im sorry about your loved ones.
My mother-inlaw suffered many years with COPD. Prior to her diagnosis with COPD she suffered a major stroke. She was paralyzed on the whole left side of her body. She spent the last 15 yrs of her life wheelchair bound, on oxygen. It is a very helpless feeling watching the struggles a loved one goes through with this disease. God bless them.

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@robertjr

waterboy,with copd im alive but thats about it most of the time.

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Do you ever feel like bric_brac just sitting there no energy or air to get up and move?

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I have a friend I have known since we were 3 yrs. old. We are both 68 now. She has COPD and I don't think she realizes how bad it is. She walks with a walker and can get around to bathroom to bed and to lift chair. I live in florida and she was in Indiana but I went to Indiana and brought her to live with me now. Guess I keep hoping she will get better and she has some but I wonder what to expect next. And how can I help her help herself more as I feel I have waited on her hand and foot but am thinking she should be able to do more on her own as far as making it to refrigerator for a snack or simple things. And from what I am learning she will only get worse. But she needs to be with me even if she ends up in assisted living since she has no family or friends in her home state. Am I dreaming thinking she will get better???

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Hi @jaynel77,

Before anything else, I want to applaud you on your dedication to your friend! I'm certain you've already made a difference just by letting her know how important she is to you. I'd like to introduce to other members on Connect talking about COPD and emphysema. Please meet @robertjr @oldkarl @waterboy @ppeschke @cognac @littleonefmohio @sneakerss @jo54 @crashnam @penlee @redsox. You can read more about them in these discussions:

– COPD/ Emphysema https://connect.mayoclinic.org/discussion/copd-emphysema/
– Just wanted to say hello. Have congestive heart failure & COPD https://connect.mayoclinic.org/discussion/just-wanted-to-say-helllo/
– Howdy fellow worriers: Questions about lung biopsy for COPD https://connect.mayoclinic.org/discussion/howdy-fellow-worriers-i-speak-mainly-for-myself-ive-got-a-bunch/

The Mayo Clinic COPD Diagnosis and treatment web page (found here https://www.mayoclinic.org/diseases-conditions/copd/diagnosis-treatment/drc-20353685) mentions seeking a support group. Is she part of a support group in Florida? Has she had any treatment for COPD?

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@robertjr

Waterboy,i also own a house but cant do any work on it now,my son has helped a lot.Cant mow or even clean yard anymore,going to have to sell house and get a small retirement place,cant exspect mywife to do the work at home..Seeing what needs to be done and not able to do it really bothers me.Being told by doctors that theres not much they can do besides getting my ox level to normal range doesnt help.never realized how bad copd is.

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I Decided to keep my house. I have hired a gardener who comes weekly to cut the grass and will on request trim/clean flower beds in front and back. He also does snow removal if the winter. I think this is much cheaper than condo fees and still gives me the convenience of living in a house as apposed to a crowded high rise. I have been doing this for 3 years.

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@sews Good for you. That is a great way to remain independent.

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what is the name of the wire placement method used to help copd breath easier ?

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I'm so sorry Robert. I pray there is something the docs can do to lessen your suffering.I know, through my job, morphine is used for end stage COPD and it helps , at least with mood.

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@joangma can you tell us more about the wire insertion treatment? I think you might be referring to Lung Volume Reduction Coil Treatment for Patients With Severe Emphysema. Here's video about a study being done in France.
https://www.youtube.com/watch?v=gIa2Ey5ag7E

Mayo Clinic is also doing clinical trials with coil treatment. What have you heard about it?

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