copd end stage.

Posted by robertjr @robertjr, Dec 16, 2017

Sorry havent been spending much time writing lately.Been going to hospital few times for breathing lately..Had a few discussions with pulmonologist,fev was 16 ,going to needa wheel chair.Right now cant even walk out to the car.Even room toroom getting hard..I realize copd doesnt get better but im only 63 not that old.

@robertjr

Waterboy,i also own a house but cant do any work on it now,my son has helped a lot.Cant mow or even clean yard anymore,going to have to sell house and get a small retirement place,cant exspect mywife to do the work at home..Seeing what needs to be done and not able to do it really bothers me.Being told by doctors that theres not much they can do besides getting my ox level to normal range doesnt help.never realized how bad copd is.

Jump to this post

I Decided to keep my house. I have hired a gardener who comes weekly to cut the grass and will on request trim/clean flower beds in front and back. He also does snow removal if the winter. I think this is much cheaper than condo fees and still gives me the convenience of living in a house as apposed to a crowded high rise. I have been doing this for 3 years.

REPLY

@sews Good for you. That is a great way to remain independent.

REPLY

what is the name of the wire placement method used to help copd breath easier ?

REPLY

I'm so sorry Robert. I pray there is something the docs can do to lessen your suffering.I know, through my job, morphine is used for end stage COPD and it helps , at least with mood.

REPLY

@joangma can you tell us more about the wire insertion treatment? I think you might be referring to Lung Volume Reduction Coil Treatment for Patients With Severe Emphysema. Here's video about a study being done in France.

Mayo Clinic is also doing clinical trials with coil treatment. What have you heard about it?

REPLY
@ethanmcconkey

@joangma can you tell us more about the wire insertion treatment? I think you might be referring to Lung Volume Reduction Coil Treatment for Patients With Severe Emphysema. Here's video about a study being done in France.

Mayo Clinic is also doing clinical trials with coil treatment. What have you heard about it?

Jump to this post

Ethan McConkey , @joangma– Good morning. Boyohboy does this look promising! I had not heard of this. Here is more info:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5937153/
Has anyone on this thread received this treatment?

REPLY

I have applied to join this trial at Mayo Clinic Jacksonville as l come here every month. On the surface according to the company's website I qualify.
But the great news is that my pulmonologist at Mayo is one of doctors involved with this trial.
After my bronchoscopy yesterday we had a long talk about it and will be visiting the subject during my stay in the hospital this next week as I recover from a pneumothorax.
As I learn more l will share.

REPLY
@djallan

I have applied to join this trial at Mayo Clinic Jacksonville as l come here every month. On the surface according to the company's website I qualify.
But the great news is that my pulmonologist at Mayo is one of doctors involved with this trial.
After my bronchoscopy yesterday we had a long talk about it and will be visiting the subject during my stay in the hospital this next week as I recover from a pneumothorax.
As I learn more l will share.

Jump to this post

@djallan oh no,,, pneumothorax, how did that happen? I have to read about this coil treatment, I've never heard about this.

REPLY
Please login or register to post a reply.