B-6 vitamin danger!

Posted by Lynsorensen @lynsorensen, Dec 11, 2017

With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don't need him anymore! And I don't. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.

Interested in more discussions like this? Go to the Neuropathy Support Group.

nydiver59 | @nydiver59 | Feb 27, 2018

Hi all, I’m new to the group and hope to find some answers. I was diagnosed in January with high levels of vitamin B6, per the lab sheet normal is 5.3 – 46.7 ug/L and I was at 93. I had been having burning sensations/pain on my hands, feet, face and sporadically on other areas for quite a while. I visited several doctors and finally ended up at an allergist office (he’s the first one to think to test for B6). He felt the B6 was causing peripheral neuropathy. His advice was to stop taking all vitamin supplements and protein shakes and retest in 3 weeks. I spent the last month drinking 90 oz of water per day and really trying to limit my B6 intake. Fast-forward to last week and the blood work came back with normal B6 levels, 22 ug/L. I guess the questions at this point are; how long does it take for the symptoms to resolve and what follow up should I be doing?

Colleen Young, Connect Director | @colleenyoung | Feb 27, 2018

In reply to @nydiver59 "Hi all, I’m new to the group and hope to find some answers. I was diagnosed..." + (show)

Hi @nydiver59, I merged your message with an existing discussion about Vitamin B6 toxicity. If you click VIEW & REPLY in the email notification, you can read back through the discussion to-date. In addition to the information @johnbishop shared with you, I'm tagging @lynsorensen @gman007 and @parus to see if they may have experience to share about how long it takes for symptoms to resolve after getting B6 levels back to normal and appropriate follow-up.

NYDiver, congrats on getting B6 levels back within range.

jenna12 | @jenna12 | Mar 26, 2018

In reply to @linnythepoo "Yikes! My oncologist prescribed 100 mg of vit B6 for my neuropathy! Has anyone heard of..." + (show)

I am also taking b6 as per my oncologist for neuropathy due to chemotherapy and I have noticed no change at all.

melissaw | @melissaw | Jun 9, 2018

@johnbishop @njcarolnjn in regards to your neuropathy, are you still experiencing symptoms? Do you know your calcium and/or iron levels? I have found that low dose calcium brings down B6 levels and improves neuropathy that is induced by elevated B6 levels.

John, Volunteer Mentor | @johnbishop | Jun 10, 2018

In reply to @melissaw "@johnbishop @njcarolnjn in regards to your neuropathy, are you still experiencing symptoms? Do you know your..." + (show)

Thanks @melissaw -- I still have the numbness but it's not progressing since I've been taking supplements. I've had all the blood panels taken and all are within normal range.
John

matrixxtreme | @matrixxtreme | Jun 28, 2018

I am new to this community. Are there still members following this B6 discussion?

airialsmith | @airialsmith | Oct 4, 2018

I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

John, Volunteer Mentor | @johnbishop | Oct 4, 2018

In reply to @airialsmith "I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming..." + (show)

Hi @airialsmith, welcome to Connect. I know vitamin b6 toxicity can be hard to pin down. I found a website with a lot of good information that may be helpful to you.

Find Out the Real Reason For Vitamin B6 Toxicity
-- https://www.easy-immune-health.com/vitamin-b6-toxicity.html

@airialsmith have you ever been tested for the MTHFR gene? The MTHFR gene is extremely common and can lead to a problem processing the B Vitamins.

Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

John

Lisa Lucier, Moderator | @lisalucier | Oct 4, 2018

In reply to @airialsmith "I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming..." + (show)

Hi, @airialsmith - I would like to join @johnbishop in welcoming you to Mayo Clinic Connect. You may notice that I merged your discussion with an existing discussion titled, "B-6 vitamin danger." I moved it here so you could read through some of the other members' posts on Vitamin B6 toxicity and interact with some of them.

Hoping that members like @gman007 @parus @arnrob @nydiver59 who have talked about Vitamin B6 toxicity will join in to share their experiences and offer any thoughts on the difficulties getting the level down no matter what you try, and dealing with symptoms of electric shocks, numbness, and pins and needles.

I also would echo what @johnbishop said about considering contacting Mayo Clinic about the potential of being seen.

How are you managing your symptoms currently, @airialsmith?