Rosemary, Volunteer Mentor | @rosemarya | Oct 2, 2017
@becky53, Hi, and welcome to Mayo Connect. I am a liver/kidney transplant recipient and a mentor in the transplant Discussion. I would like to introduce you to some of our members who have recently shared information about lung transplant. I am posting your question to them; I believe they are better qualified that me to respond to your question.
You should get an email notification soon. Or you can go to https://connect.mayoclinic.org/discussion/how-many-of-you-decided-to-move-permanently-to-be-near-mayo/ Yes, the discussion title is misleading.
It currently at the end of the conversation:
Looking forward to seeing you there.
Rosemary
Colleen Young, Connect Director | @colleenyoung | Oct 2, 2017
Hi @becky53
I'm also tagging @keggebraaten on this discussion. She may have access to information about BMI requirements for lung transplant.
Becky, I noticed that you posted your question in the MAC group. Has MAC infection contributed to your need for a transplant? Would you like me to move your message to the Transplant group?
Hi Becky,
I moved your message to the Transplants group. Here is some information about lung transplantation eligibility at Mayo. While we wait to hear from other lung transplant recipients, specifically about BMI, it would be nice to get to know a bit more about you if you're comfortable telling us more. Have you gone through evaluation for transplant? What has led to your considering a lung transplant?
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
@keggebraaten this is interesting to me. When I was on the list waiting for transplant (liver) and considering dual listing I read that some transplant centers require a BMI under 30, which my transplant center (MGH) did not but "just in case" I went worked hard at losing weight to get it below that. At this point it is just above 25, I would love to get it under that mark.
On my vacation in the last couple of weeks I didn't really exercise at all and I ate more than usual but somehow I low three pounds! I can't figure that out at all.
JK
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
Hello, sorry I haven't been back in touch.i started back my rehab this pass week this will be the third time I have been in rehab.okay I want to share with the group a little of my journey with this disease. About 3 years ago I gotten pneumonia after that I countiued getting pneumonia 3 more times. The doctors found a mess on my lower left lung I had it removed it was sent to Pathology and was finally diagnose with. Obliterative Bronchitis under the umbrella of IPF . this has progressed. I'm on oxygen 24-7. My doctor said I would be a good candidate for a transplant.Also this lung disease is caused from the environment is what I was told.If y'all could give me any insight on this disease I would greatly appreciate it.Thank you
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
@becky53, Welcome back, It is good to hear from you. There is no need to be sorry, ever, for an absence. We understand that our medical treatments need to come first. I hope that your rehab is producing some positive benefits for you.
I would like to bring one of our mentors, Terri @windwalker, into this conversation. I think she will be better able to give you some information or resources.
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
@becky53, Hello Becky. I am curious, what kind of environmental exposure are they saying that could have caused your IPF? I don't know a whole lot about IPF, but I am willing to learn more about it in order to be of better support to you. I have met several people who had lung transplants because of IPF. (they are doing quite well by the way) They got their IPF disease either from genetics or workplace exposures.
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@becky53, Hi, and welcome to Mayo Connect. I am a liver/kidney transplant recipient and a mentor in the transplant Discussion. I would like to introduce you to some of our members who have recently shared information about lung transplant. I am posting your question to them; I believe they are better qualified that me to respond to your question.
You should get an email notification soon. Or you can go to https://connect.mayoclinic.org/discussion/how-many-of-you-decided-to-move-permanently-to-be-near-mayo/ Yes, the discussion title is misleading.
It currently at the end of the conversation:
Looking forward to seeing you there.
Rosemary
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2 ReactionsHi @becky53
I'm also tagging @keggebraaten on this discussion. She may have access to information about BMI requirements for lung transplant.
Becky, I noticed that you posted your question in the MAC group. Has MAC infection contributed to your need for a transplant? Would you like me to move your message to the Transplant group?
Yes please
Hi Becky,
I moved your message to the Transplants group. Here is some information about lung transplantation eligibility at Mayo. While we wait to hear from other lung transplant recipients, specifically about BMI, it would be nice to get to know a bit more about you if you're comfortable telling us more. Have you gone through evaluation for transplant? What has led to your considering a lung transplant?
Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient's BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
- Kristin
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Helpful -
Hug
4 Reactions@keggebraaten this is interesting to me. When I was on the list waiting for transplant (liver) and considering dual listing I read that some transplant centers require a BMI under 30, which my transplant center (MGH) did not but "just in case" I went worked hard at losing weight to get it below that. At this point it is just above 25, I would love to get it under that mark.
On my vacation in the last couple of weeks I didn't really exercise at all and I ate more than usual but somehow I low three pounds! I can't figure that out at all.
JK
-
Like -
Helpful -
Hug
1 ReactionHello, sorry I haven't been back in touch.i started back my rehab this pass week this will be the third time I have been in rehab.okay I want to share with the group a little of my journey with this disease. About 3 years ago I gotten pneumonia after that I countiued getting pneumonia 3 more times. The doctors found a mess on my lower left lung I had it removed it was sent to Pathology and was finally diagnose with. Obliterative Bronchitis under the umbrella of IPF . this has progressed. I'm on oxygen 24-7. My doctor said I would be a good candidate for a transplant.Also this lung disease is caused from the environment is what I was told.If y'all could give me any insight on this disease I would greatly appreciate it.Thank you
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Helpful -
Hug
1 ReactionThank you so very much
@becky53, Welcome back, It is good to hear from you. There is no need to be sorry, ever, for an absence. We understand that our medical treatments need to come first. I hope that your rehab is producing some positive benefits for you.
I would like to bring one of our mentors, Terri @windwalker, into this conversation. I think she will be better able to give you some information or resources.
Rosemary
-
Like -
Helpful -
Hug
1 Reaction@becky53, Hello Becky. I am curious, what kind of environmental exposure are they saying that could have caused your IPF? I don't know a whole lot about IPF, but I am willing to learn more about it in order to be of better support to you. I have met several people who had lung transplants because of IPF. (they are doing quite well by the way) They got their IPF disease either from genetics or workplace exposures.
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Like -
Helpful -
Hug
1 Reaction