Hello what are the BMI restrictions at the mayo clinic for a lung transplant
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Hi, My doctors have said it could have been from when I was down on the coast alot with my husband during Hurricane Katrina, or from burning leaves at the campground.
@becky53, I do know that lots of people get lung illnesses after hurricanes from all of the rotting debris. Never knew IPF is one of them.
I have Obliterative Bronchitis it’s under the umbrella of IPF
@becky53, Becky, I looked this up, and want to discuss it further. I have to be somewhere in 30 mins and need to shower, so I will get back to you this evening.
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Ok thanks that would be great!
@becky53, Hi Becky. I apologize for the delay in getting back to you. As I said before, I did look up ‘obliteraive bronchitis’. How much do you already know about this disease? Do you know what your current lung function level is? Are your doctors suggesting a lung transplant soon?
Hi, no need to apologize, I’m excited to hear back from you.the last time I had my function test it was 43% and the bad air was 26% I am on 6 liters of oxygen when up doing things and 3 or 4 at rest.I hope I have spelled my disease correctly.it’s called Obliterative Bronchiolitis.this effects my broncular tube.causes inflammation
@becky53, Hi Becky. Have you already taken the pre-qualifying tests for a lung transplant? If so, are you listed already? Or are they waiting for your lung function to drop further before doing so? When I looked up oblitirative bronchiolitis, there was mention of very infected air sacs. Is that what you understand it to be also?
@becky53, Becky, thank you for sharing your numbers for your oxygen use and lung function level. That has to be hard for you. Not just physically, but mentally too. It is hard to accept that we cannot do the things the used to do; and other people our age are still doing. I met with another member on this forum in person several weeks ago. She is on 9 liters of oxygen 24/7 and her lung function is between 17-20%. She was going through the pre-qualifying tests for a lung transplant at the Mayo. I could not believe her champion attitude and wonderful spirit. We walked together and that girl could go! I asked her how she does it. She said the only option she has is to keep on going. She said she somewhat ignores her condition and just keeps going forward with her life. She was a real inspiration to me. I know it isn’t that easy for many who struggle to breathe.
My was denied transplant once before because my chest wall was to thick even with my BMI being 31 she went ahead.I go the 29th of this month to get a new CT scan to see if it has went down.this has what has brought me to learn about Mayo Clinic because my Dr told me I would have to be sent to a high risk hospital and also just the very short time I have been on here it’s been a blessing to me.I want to give everyone a big Thank you and God bless!
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