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@keggebraaten

Good morning @becky53 and @rosemarya,
At Mayo Clinic, we would like patient’s BMI to be below 35 to undergo lung transplant. I think someone mentioned that even if you are over the maximum BMI for a transplant center, you should connect with a transplant program anyway. If it has been determined that you need a lung transplant, transplant centers such as Mayo Clinic can assist you with ideas and programs that can help you with your weight loss. It would be our recommendation that you contact us by phone to see if the doctors wish to see you for evaluation. I am happy to provide more information if you would like to talk more, or if you are more comfortable you can reach me via email at transplant-rst@mayo.edu. Thanks all!
– Kristin

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Replies to "Good morning @becky53 and @rosemarya, At Mayo Clinic, we would like patient's BMI to be below..."

@keggebraaten this is interesting to me. When I was on the list waiting for transplant (liver) and considering dual listing I read that some transplant centers require a BMI under 30, which my transplant center (MGH) did not but “just in case” I went worked hard at losing weight to get it below that. At this point it is just above 25, I would love to get it under that mark.
On my vacation in the last couple of weeks I didn’t really exercise at all and I ate more than usual but somehow I low three pounds! I can’t figure that out at all.
JK

Hello, sorry I haven’t been back in touch.i started back my rehab this pass week this will be the third time I have been in rehab.okay I want to share with the group a little of my journey with this disease. About 3 years ago I gotten pneumonia after that I countiued getting pneumonia 3 more times. The doctors found a mess on my lower left lung I had it removed it was sent to Pathology and was finally diagnose with. Obliterative Bronchitis under the umbrella of IPF . this has progressed. I’m on oxygen 24-7. My doctor said I would be a good candidate for a transplant.Also this lung disease is caused from the environment is what I was told.If y’all could give me any insight on this disease I would greatly appreciate it.Thank you

Thank you so very much

@becky53, Welcome back, It is good to hear from you. There is no need to be sorry, ever, for an absence. We understand that our medical treatments need to come first. I hope that your rehab is producing some positive benefits for you.

I would like to bring one of our mentors, Terri @windwalker, into this conversation. I think she will be better able to give you some information or resources.

Rosemary

@becky53, Hello Becky. I am curious, what kind of environmental exposure are they saying that could have caused your IPF? I don’t know a whole lot about IPF, but I am willing to learn more about it in order to be of better support to you. I have met several people who had lung transplants because of IPF. (they are doing quite well by the way) They got their IPF disease either from genetics or workplace exposures.