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Mayo Clinic For Parkinson’s
My sister diagnosed with Parkinson’s. It took us almost 3 years to get a proper diagnosis . We live in NJ and have found a Neurologist who will be treating her here …. She is 61 years old . I’m questioning if I should take her to the Mayo Clinic and asked his opinion and he said what are you hoping g to gain from it ??? I don’t know . Something more than watching her get worse and take dopamine? Is it worth it . What gave been peoples experience?
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As stated, newly diagnosed with Parkinson's disease. Most troubling symptom was tremors which are now controlled by Carbidopa Levodopa 25-100. I am 71 and newly retired. I try to start every day with an hour, 3 mile, brisk walk. I still jog some and get out on my bicycle once in a while.
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2 Reactions@booplagirl3 I am so scared. My 39 year old son is diagnosed with atypical Parkinson’s. We have an appointment in November. They only mentioned a few days and some tests could be performed in our hometown. Alex is not doing well at all. He has severe tremors and is currently taking huge amount of levadopa (2500 mg). What if they can’t provide some sort of relief?
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3 ReactionsHello @alexsmom,
It is so easy to worry, especially when a child is ill. As you know, Mayo Clinic has a stellar reputation for diagnosis and treatment, and you will undoubtedly get some helpful information.
When did your son's symptoms begin?
You already have your diagnosis and the medicine most commonly used to treat PD. Unless you intend to have her try DBS, then the only other thing to do is physical therapy or join a gym. There is no cure as of yet, but exercise does help. My husband was diagnosed in 2024 at UF Shands. He chose not to do DBS. I recently purchased the Beech Band from the UK. It is actually working. Less tremors, walking well now and has stopped fumbling his words. I was shocked with the quick results. It is great that your sister has you to look out for her and to advocate for her. I know you are seeking a cure, a way to help her. Trust me, we all want that, but for now we have to accept what is available and take one step at a time.
I wanted to give an update on the beech band that my hubby is wearing. He wears it on the unaffected side, his left wrist. It is a band that uses "virotactile stimulation (VTS)—delivering gentle, rhythmic pulses or vibrations to the skin." It doesn't shock you or inject chemicals. It simply gives a vibration. Remarkably, it is working for my husband's PD. For neurological symptoms—such as tremors, freezing of gait, or speech stammers associated with Parkinson’s disease—the rhythmic external signal acts as a sensory cue that helps the brain bypass blocked neural pathways and re-establish smooth movement or speech. My husband has only been wearing the device for several days now, and his gait is better, his tremors are less, and he isn't fumbling his words. He has also told me that he thinks clearer. Just wanted to share our experience so far. I am rooting for you all in OUR fight against PD.
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2 Reactions@eojeda1 I am 76 & have had PD for 10+ years. I took Carbidopa Levodopa 25-100 pills for 8+ years. I switched to Vaylev @18 months ago with mixed results. Vaylev helps my neurological symptoms (such as tremors, freezing of gait, or speech stammers associated with Parkinson’s disease) the pump is attached to me 24/7. I am considering DBS. I would lie to look into VTS. Is this available in the USA?
@haaskencal
Yes, it is available, but comes from the UK. I live in FL, and it took about 2 weeks to get. Cost 75.00+shipping. I have chosen not to do DBS, and I am glad I have as the Beech Band is working great.