1. < Parkinson's Disease
Profile picture for booplagirl3

Mayo Clinic For Parkinson’s

Posted by booplagirl3 @booplagirl3, Jun 17 9:36am

My sister diagnosed with Parkinson’s. It took us almost 3 years to get a proper diagnosis . We live in NJ and have found a Neurologist who will be treating her here …. She is 61 years old . I’m questioning if I should take her to the Mayo Clinic and asked his opinion and he said what are you hoping g to gain from it ??? I don’t know . Something more than watching her get worse and take dopamine? Is it worth it . What gave been peoples experience?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for tsch
tsch | @tsch | Jul 5 9:20am
In reply to @joeynolegs "There is no clinical diagnosis for Parkinson’s. I had a DAT scan. That’s as close as..." + (show)
Profile picture for joeynolegs @joeynolegs

There is no clinical diagnosis for Parkinson’s. I had a DAT scan. That’s as close as you can get to a test, but even then they have to go from symptoms. It’s fuzzy logic.

Jump to this post

Isnt the DAT scan pretty conclusive? What about a spinal tap looking at alpha-synucleon? Or skin punches? These all are markers I believe. Also, RBD and loss of smell of common symptoms. A person can have symptoms, but not have the full disease for many years apparently.

REPLY
1 reply
Profile picture for joeynolegs
joeynolegs | @joeynolegs | Jul 5 10:44am
In reply to @tsch "Isnt the DAT scan pretty conclusive? What about a spinal tap looking at alpha-synucleon? Or skin..." + (show)
Profile picture for tsch @tsch

Isnt the DAT scan pretty conclusive? What about a spinal tap looking at alpha-synucleon? Or skin punches? These all are markers I believe. Also, RBD and loss of smell of common symptoms. A person can have symptoms, but not have the full disease for many years apparently.

Jump to this post

Yeah pretty conclusive. Not 100%. The neurologist takes a set of symptoms as proof. I got off the table from the DaTscan which took only like 10 minutes and they charge $5000 - so I looked over the shoulder of the technician at the image on the color monitor and immediately I recognized one of the dopamine transporters was irregular in shape. I knew immediately I had PD. The radiologist report came in three hours later and confirmed that. But the neurologist won’t confirm it off DaTscan. They need other symptoms because DaTscan could also be showing different dopamine related issues.

REPLY
Profile picture for booplagirl3
booplagirl3 | @booplagirl3 | Jul 11 11:10am

I'm Leaving This Wknd. I Will Let You Know How It Goes . We Are From New Jersey .
They Told Us We Will Be There 7 to 10 Days .

GM

REPLY
View MoreView Less
Please sign in or register to post a reply.