Therapy Homework: How Caregiving Affects Relationships

Posted by judimahoney @judimahoney, Oct 16 8:02am

Greetings all:
I told my therapist how much help and support I feel from this Connect site, it's so comforting.
So, she gave me homework to start a new post and ask all of you to respond to this question:

How has being a caregiver changed your relationships with others?

For me, it has brought me closer to some family and friends, and others have pulled away and downright ghosted us.

Looking forward to reading what you have noticed in your relationships.
Thanks for helping me with my homework!
☺️

Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.

Profile picture for porfe81 @porfe81

Mostly they have become absent, and are busy with their own lives. Some new aquaintances though from all the visits to fill prescriptions, get food and whatnot. I have read that long term illness is when friends become strangers and strangers become friends. A very good book about caregiving is We are Stronger than We Look by Jill Brown.

Jump to this post

@porfe81 thank you for the book suggestion. just downloaded the book

REPLY
Profile picture for dbamos1945 @dbamos1945

@judimahoney: Being a caregiver for MCI brings sadness faced with losing my loved one a little more every day. I remind myself that I have many reasons to be grateful that we can still share moments of clarity; however, those fleeting moments are so illusive I can’t say it brings happiness into my life.
To put it in a nutshell: Death comes suddenly - MCI results in a slow, unpredictable pattern that bleeds you to desiring death. dbamos1945

Jump to this post

@dbamos1945 Boy, that is a perfect description. "Slow unpredicatable pattern that bleed you to desiring death". A double edged sword as then we feel "guilty" about what we desire.

REPLY

Interesting theme, Judi. Most difficult of all is the relationship with our loved one. He is just a shadow of his former self. I have made new friends since his diagnosis that are a great support. Lost relationship with some family and have great support from other family members. I guess a mixed bag for sure. Another day of a roller coaster of emotions.

REPLY
Profile picture for Fred @fred1

@brn2tch, Caring for your husband, raising three small children and still holding down a teaching position - You Madam are a superhuman. Hopefully you have a very extensive and reliable source of support. Please remember to take care of yourself - read this message that I found online recently; it is a good guid to follow for all caregivers.
Be well and best of luck with all of your missions, you certainly have a full plate.

Jump to this post

@brn2tch, Sorry, I think I forgot to post the connection to the article that would be of help for all to remember to take care of ourselves. Here it is.

http://www.roadscholar.org/blog/prioritizing-caregiver-health/

REPLY
Profile picture for JennFH @jenniferkr

Interesting theme, Judi. Most difficult of all is the relationship with our loved one. He is just a shadow of his former self. I have made new friends since his diagnosis that are a great support. Lost relationship with some family and have great support from other family members. I guess a mixed bag for sure. Another day of a roller coaster of emotions.

Jump to this post

@jenniferkr
Yeah, I didn't even discuss how the relationship has changed with my husband. Just like you said, a shadow of his former self. It's like Invasion of the Body Snatchers!
I miss my best friend and loving husband, who is here but not here.
Thanks for your reply. ☺️

REPLY
Profile picture for dbamos1945 @dbamos1945

@judimahoney: Being a caregiver for MCI brings sadness faced with losing my loved one a little more every day. I remind myself that I have many reasons to be grateful that we can still share moments of clarity; however, those fleeting moments are so illusive I can’t say it brings happiness into my life.
To put it in a nutshell: Death comes suddenly - MCI results in a slow, unpredictable pattern that bleeds you to desiring death. dbamos1945

Jump to this post

@dbamos1945
So sad and true and tragic.
An artist would have a field day trying to capture all of our strong emotions.
Thanks for responding and all the best. 💗

REPLY
Profile picture for porfe81 @porfe81

Mostly they have become absent, and are busy with their own lives. Some new aquaintances though from all the visits to fill prescriptions, get food and whatnot. I have read that long term illness is when friends become strangers and strangers become friends. A very good book about caregiving is We are Stronger than We Look by Jill Brown.

Jump to this post

@porfe81
Friends become strangers and strangers friends; I like that.
So many losses to deal with. It's so hard, isn't it?
Take care and hope you find a little joy in your day. 🦭

REPLY
Profile picture for judimahoney @judimahoney

@porfe81
Friends become strangers and strangers friends; I like that.
So many losses to deal with. It's so hard, isn't it?
Take care and hope you find a little joy in your day. 🦭

Jump to this post

@judimahoney Joy may be a bit if a high bar, but I would say Peace better describes it. I have a few reminders that have helped:
1. Don't expect too much.
2. We (my wife and I) take it just one day at a time.
3. Each day is its own season (with ebbs and flows).
4. Tomorrow is a new day.

REPLY
Profile picture for brn2tch @brn2tch

We’re in what everyone calls a “unique “ position because he’s 58, I’m 57, and we’re Parenting 2.0 with 3 littles…ages 5, 4, and 2 1/2. We were already dealing with the loss of friends, retirement plans, etc when BAM! Early Onset Alzheimer’s diagnosis this May for him. My world is shrinking all the time. No one knows what to say or do because it’s like a bad joke.😢. This is my 30th year teaching, and he can be by himself for now, so I will continue teaching and raising our kids while managing this new chapter. We have no one. It’s not easy.

Jump to this post

@brn2tch
Oh my goodness, so much to deal with.
I often think of that John Lennon lyric: life is what happens while we're busy making other plans.
I truly hope you get some support from somewhere. Otherwise this is just too much of a burden for you to handle alone.
Virtual hugs and support. 🫂

REPLY
Profile picture for porfe81 @porfe81

@judimahoney Joy may be a bit if a high bar, but I would say Peace better describes it. I have a few reminders that have helped:
1. Don't expect too much.
2. We (my wife and I) take it just one day at a time.
3. Each day is its own season (with ebbs and flows).
4. Tomorrow is a new day.

Jump to this post

@porfe81
Yes, true joy is hard. We've been having a rough few days and I was just happy to catch myself laughing at something our dog did. I will desperately grab on to any miniscule amount of joy that comes my way. Hope you find a wee bit of joy somewhere. 🌺

REPLY
Please sign in or register to post a reply.