Parkinson's and Any non-medicine treatments.

Posted by kristin428 @kristin428, Sep 28 8:52pm

My PT told me this morning that he has had some Parkinson's patients that are using things from health stores, but he couldn't remember what they were. Does anyone have any ideas? He thought one of them started with a B. I have very recently been diagnosed with PD (3 months) although looking back, I think I have had it for several years.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

ditto on exercise, any amount helps!
Can be just walking, or following exercises on youtube, or going to an in-person group or the Y. My favorite online is Power for Parkinsons , they have dozens of youtubes and exercises at all levels beginner to advanced. I also go to the Y and use the recumbent exercise bikes.
https://www.powerforparkinsons.org
https://www.youtube.com/@PowerforParkinsons/search

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Profile picture for emmit @emmit

@goatgirl28
you do NOT need a smart phone for the beech band. However, I think they are developing one that can be used with the smart phone. The ones I have you wear like a watch and push a button, and it vibrates sends a pulse like a heartbeat. very simple

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@emmit Thanks. My issue is I don't have a cell phone.

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Profile picture for goatgirl28 @goatgirl28

@emmit Thanks. My issue is I don't have a cell phone.

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@goatgirl28
then the simple beech band would be perfect. I need the simple one too b/c I'm sure I would not know how to work a "smart" one

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I do know about exercise being good for Parkinson's. My problem right now is that I have two broken ankles that I recently had surgery on. That's why I was looking for other things until they healed and I was allowed to exercise.

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Profile picture for kristin428 @kristin428

I do know about exercise being good for Parkinson's. My problem right now is that I have two broken ankles that I recently had surgery on. That's why I was looking for other things until they healed and I was allowed to exercise.

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@kristin428 Man, two broken ankles. Well, one exercise I do is lay on the bed and lift weights with my arm that extends off the bed. I do it in three positions. It really helps when my arm becomes fidgety.

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American Parkinson's Disease Assn -- probably the most well-regarded source!
https://www.apdaparkinson.org/article/why-exercise-with-pd/
Th issue often is that Not-exercising is taken as being lazy and uncaring to self -- far from it.
The reason some of us are able to do adequate levels (yes it will change not only from person to person but also for the Same person from one time or situation to another. So how do you know How Much?

Thankfully our bodies have a Built-in mechanism - the same that tells us how MUCH to eat or sleep or stare on screens and how to sit, are mostly given us by Body's signals. Trouble is such signals get rusted because of our unhealthy ways. Looks circular? Sure, it also tells us our bodies are Marvelous at hinting us when it is 'enough' or near Optimal. It Happens to us when we are generally in optimal physical/mental/social/spiritual state.

I recently got out of nowhere swelling in my right lower half leg and foot. I have seen my doctor and told how her that I use it As Much As I can Bear it.
She hasn't warned against it. My take is what is good for the body within Your Body's capacity is the right way to keep it in its near-optimal form.

But my rest of the body is completely FINE. So if I were averse to exertion, I'll seek out reasons for NOT doing it. The reason I do it because it gives me PLEASURE. It is this link that almost no exercise (the name itself sound like a sentence, right!) therapist/trainer would mention. Yet that is the KEY to people who Invent/devise ways to make body reach for the optimal gain On Their Own. In my case, sometimes I use fitness room just before meals if it's handy, other times I do dips in the stairwell or walk up now six floors, panting the last two, for the Feeling of close-to-burn. No competition, No shaming, no habit forming ... just Shear Pleasure of Movement. We all did so as 5-yr-olds!

It's this attitude (among some others like in food, rest and most of all My Purpose) that kept me not having to see my doctor with absences as long as ten years, with no meds, tests (avoided colonoscopy in my 70s, no special diets, supplements, just simple tasty food, with acceptance of what life IS. Yes with old age impairments like vision and hearing.

So let's approach healthy lifestyle because it is more Pleasurable, Not so much because it will save us from ills. You see the difference. That's the key to LIKING exertion.
Good luck folks!

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I do not have Parkinsons Disease, but I thought I would share with you what my neurologist (who specializes in motor disorders, 40+ years experience) shared with me.

I once had very severe gait issues that shared aspects of Parkinsonian-like gait for a period of almost two years and kept me in a wheelchair outside of my home. My muscles were stiff and my body was bent when I would try and walk. I do not yet, and may not ever have an official diagnosis, but I found that a low-glutamate diet helped me immensely-- it is by the grace of God that I was ever able to figure that out.

The neurologist I just saw has said that a low-glutamate diet can indeed help a person with neurological disease and aid with symptom relief and progression of disease. Glutamate is an amino acid found in all food and also a neurotransmitter in the brain.

There are certain foods that are higher in glutamate that I avoid, such as foods that are processed, especially processed meats and foods that are high in fats and sugars. High levels of glutamate are also found in foods that have been cooked for long periods of time, such as tomato sauces, condiments that use tomatoes or soy sauces, chilis, broths, and stews. Also foods that are leftover, fermented, or foods that have been sitting out (fruits and veggies that are over ripe) contain higher levels of free glutamates. There are also a few odd veggies that I avoid because of their high levels, like tomatoes-- especially cooked, mushrooms, snap peas, peanuts, and yogurts and dairy, (especially things like strong cheeses like Parmesan, though I've heard that some people can tolerate some dairy in the form of milder cheeses like mozzarella).

Ultimately, many things that taste savory or strong contain high levels of glutamate. (I tested my symptoms by eating a half of a block of Parmesan cheese, and my symptoms worsened within 45 min-- it was a scary reaction but I knew then that if I cut many of those things out of my diet, I may improve-- and I did!)

I found that keeping a food journal was helpful and then I discovered how many of those high free- glutamate foods I was eating (many of them very healthy!). It is not that I cannot have any high glutamate foods. I have to be careful to eat just a bit of something and keep a balance, and not overdo. Some I am more sensitive to and avoid completely, for example- I can tolerate a few baby tomatoes but not snap peas; I think this may be different for everyone. It is a restrictive diet but I am learning to be creative and I have felt better than I have in years.

Just thought I would share my experience. I hope this helps! The neurologist I just saw said that he has seen some patients with Parkinsons improve by following a low glutamate diet, maybe it could be worth thinking about?

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Profile picture for goatgirl28 @goatgirl28

@barryl WOW!! You got a neuro appt and diagnosis in 5 mos! Most of us struggled for years,

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@goatgirl28 Yes, after several years of blaming my symptoms on Heart disease and Hypothyroidism, and they were actually Parkinsons Disease symptoms. That's why my Neurologist diagnosed on my first appointment. I already had the documentation of those symptoms when I first visited him. He watched me walk, and told me I had Parkinsons Disease.
Barry

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Profile picture for emmit @emmit

I have been using the beech band. it is a wearable device like a watch that helps control/eliminate tremors. google beech band and do some research. the man that invented it in the UK has suffered with Parkinson's for years. I am very pleased with the result and I use quite frequently. I'm starting to use it to see if it helps with other symptoms. my wife said just use it for everything--can't hurt. after I wear it for a while my symptoms esp. tremors go away for a long time.

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@emmit First day using Beech Band. Wish me luck.

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Profile picture for goatgirl28 @goatgirl28

@emmit First day using Beech Band. Wish me luck.

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@goatgirl28
Best of luck ! Praying for you!
I’ve got mine on right now just sitting watching football

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