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Chronic Kidney Disease added to Chronic Heart Failure?

Posted by mikeydc2008 @mikeydc2008, Sep 25 7:57am

Just saw Chronic Kidney Disease added to Chronic Heart Failure in my Nurse Practitioner’s After Visit notes. What does this mean? Does this mean I have CKM (Cardiovascular Kidney Metabolic Syndrome)? How does this change things? What is my next move? I am thin now and limit my sodium, fluid, and glucose. I have never been diabetic. I do not have high potassium levels. My BUN and Creatinine levels are always low.

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mikeydc2008 | @mikeydc2008 | Sep 27 3:55pm
In reply to @jenatsky "Mike, why didn’t you simply ask the NP or your docs? There is certain criteria for..." + (show)
Profile picture for jenatsky @jenatsky

Mike, why didn’t you simply ask the NP or your docs? There is certain criteria for the syndrome you described that is easily searchable online. Since you know your health best see if you fit in the bucket for this.

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@jenatsky — Yeah, I found the AHA/ACA 2026 guidelines and I can understand how a Nurse Practitioner could think I have CKM syndrome. I never had diabetes (but my father and his mother did). And I had childhood obesity (but have been thin-medium-thin since age 22). I think the trace amount of blood in my urine every yearly physical for the last 20 years might be a reason for the diagnosis. Thanks!

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shmerdloff | @shmerdloff | Sep 27 9:35pm
In reply to @mikeydc2008 "@shmerdloff — Congrats on figuring out how to get great heart numbers! I promise not to..." + (show)
Profile picture for mikeydc2008 @mikeydc2008

@shmerdloff — Congrats on figuring out how to get great heart numbers! I promise not to tell your cardio doctor anything! Thank you for telling me about amiodarone! Fortunately for me, I have not had to take that one yet! I think pacing, pacemakers, and balancing may be in my future. I am trying to do everything I can to prevent or forestall that. I just started taking 40mg of Kerendia and I think it is helping me to stay balanced. I can walk and do gardening now without getting dizzy or short of breath. I think all the blood tests are helpful. They gave them to me to check on how I am doing on Kerendia. I am not convinced I now have Congestive Kidney Disease though. Good luck!

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@mikeydc2008
Just sayin'. Got a pacemaker. Won't let HR go below 60. Used to be high thirties. Took care of brady. Meds are "pushing down" the tachycardia. It's called tachy brady (afib). Anyway, it's working great. The pacemakers are so advanced, they have an accelerator in them in case I want to do semi-strenuous activity. Gotta watch out for motors and landscaping gas engines tho'. Zzzzelectrical interference. Good luck.

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mikeydc2008 | @mikeydc2008 | Sep 27 10:16pm
In reply to @shmerdloff "@mikeydc2008 Just sayin'. Got a pacemaker. Won't let HR go below 60. Used to be high..." + (show)
Profile picture for shmerdloff @shmerdloff

@mikeydc2008
Just sayin'. Got a pacemaker. Won't let HR go below 60. Used to be high thirties. Took care of brady. Meds are "pushing down" the tachycardia. It's called tachy brady (afib). Anyway, it's working great. The pacemakers are so advanced, they have an accelerator in them in case I want to do semi-strenuous activity. Gotta watch out for motors and landscaping gas engines tho'. Zzzzelectrical interference. Good luck.

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@shmerdloff — Your turbo pacemaker sounds pretty cool! I like that you can exercise now too! I am going to get me one just like yours! Cheers!!!

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Mentor
Cheryl, Volunteer Mentor | @cehunt57 | 5 days ago

@mikeydc2008 CKD and CKM are NOT the same. Contact your nurse practitioner and ask for clarification on what you saw in the notes. (I really dislike acronyms and abbreviations; it is too easy for misperceptions and miscommunication to occur)
I have rarely even heard of an estimated glomeruler filtration rate (eGFR) of over 100. That is too perfect. Most people are considered just fine with an eGFR in the 60’s.
Regarding a trace amount of blood in the urine; there are lots of reasons for that. It could be from staples or sutures from an old abdominal surgery. It could be from a urinary tract infection (UTI), could also be from passing a kidney stone. I nearly always have a trace amount of blood in my urine. Theories are that it was from a hysterectomy in 1997, a pancreas transplant in 2005, an enteric conversion surgery in 2006, an incisional hernia repair using mesh and staples in 2012, from a cystoscopy also 2006 and or UTI’s. Again, it is a question for the provider ordering the tests and doesn’t necessarily mean you have a bad kidney condition.
It is always better to ask questions and find out if any treatment is recommended.

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mikeydc2008 | @mikeydc2008 | 4 days ago
In reply to @cehunt57 "@mikeydc2008 CKD and CKM are NOT the same. Contact your nurse practitioner and ask for clarification..." + (show)
Profile picture for Cheryl, Volunteer Mentor @cehunt57

@mikeydc2008 CKD and CKM are NOT the same. Contact your nurse practitioner and ask for clarification on what you saw in the notes. (I really dislike acronyms and abbreviations; it is too easy for misperceptions and miscommunication to occur)
I have rarely even heard of an estimated glomeruler filtration rate (eGFR) of over 100. That is too perfect. Most people are considered just fine with an eGFR in the 60’s.
Regarding a trace amount of blood in the urine; there are lots of reasons for that. It could be from staples or sutures from an old abdominal surgery. It could be from a urinary tract infection (UTI), could also be from passing a kidney stone. I nearly always have a trace amount of blood in my urine. Theories are that it was from a hysterectomy in 1997, a pancreas transplant in 2005, an enteric conversion surgery in 2006, an incisional hernia repair using mesh and staples in 2012, from a cystoscopy also 2006 and or UTI’s. Again, it is a question for the provider ordering the tests and doesn’t necessarily mean you have a bad kidney condition.
It is always better to ask questions and find out if any treatment is recommended.

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@cehunt57 — Yes, my CHF/HFPEF has been reclassified as “Non-Ischemic Cardiomyopathy”. I am now trying to get long term heart monitoring (a Holter monitor and maybe more). Thanks!

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