Acceptance & Compassion

Posted by Gratia @gratia, Sep 20 8:05pm

Watching our mother’s decline is the most heartbreaking part of the dementia caregiving journey. It’s a slow cruel game. Of course there are good and bad days, but I’m really trying to bypass my exhaustion and do the best I can to be present while she still has her good days.
How do you keep cheerful while your heart is breaking? 💔

Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.

Profile picture for grandmajoan @grandmajoan

This morning I am having a difficult time responding to your question in an upbeat way. I recently learned that my 52 year old daughter was diagnosed with Type 1 Diabetes. She is in the hospital being stabilized. She was helping me deal with my husband’s MCI and now will need help dealing with her own medical issues. Her husband and grown children are amazing. She will be fine but my heart hurts for how this will make her life harder.

Still, I hope we are all able to take one day at a time and find joy and comfort in nature, love, friendship, exercise, art and spiritual growth.

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@grandmajoan Dear Joan,
I’m so sorry to hear this😞. I can’t imagine what you’re going through with the addition of your daughter’s health crisis. The good thing is she’s getting treatment, and hopefully once she’s stabilized, she will be able to manage the condition with a few lifestyle changes and good care. I’m sending you hugs, love and healing energy.🤗❤️✨

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Profile picture for leslieherbert @leslieherbert

@leslieherbert adding to my own thoughts…. I try to remember that my husband would never want me to spend my life being sad, frustrated, and bitter. This also helps me when I grieve over my parents deaths in 2022. So when I feel down, I do everything possible to take a break from the situation and focus on something else. I’m learning to savor little moments alone in nature. Or in a good book. We can’t control what’s happening to our loved ones, we can only cope and find ways to escape and live a bit.. even if it’s just an hour.

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@leslieherbert you are absolutely right. I try to remember that myself, I know our mother would not want us to be wearing ourselves down & going broke…. It’s hard to find that balance in all of it✨🤗❤️

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Profile picture for Gratia @gratia

@grandmajoan Dear Joan,
I’m so sorry to hear this😞. I can’t imagine what you’re going through with the addition of your daughter’s health crisis. The good thing is she’s getting treatment, and hopefully once she’s stabilized, she will be able to manage the condition with a few lifestyle changes and good care. I’m sending you hugs, love and healing energy.🤗❤️✨

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@gratia Thank you for your reply. I appreciate the supportive words and the sunflowers!

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Profile picture for creatividee @creatividee

@gratia, I love the Pooh and Piglet graphic you posted with your question! And it's kind of an answer to your own question in a way, isn't it? When my mom doesn't know what day it is, well, it's just today, and she doesn't need to know anything more except that we're together today, finding something fun to do to distract us both from reality. I often think in the exact words you used: "trying to bypass my exhaustion and do the best I can to be present while she still has her good days." It's a task in itself to keep my mind focused on maintaining that attitude, especially when exhausted and stressed! Godspeed to all of us in the journey 💜

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@creatividee Your answer to @gratia "Well, it's just today." I love that. It is what it is. "Pooh and Piglet" are now fixated in my mind.
Best, Karla

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@gratia "It's today," squeaked Piglet. "My favorite day," said Pooh. My good morning recharge - I love this. Best, Karla

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