Side Effects of Mavacamten (Camzyos)

Tried Camzyos and most of all the heart medications they didn't work, had a Septical Myectomy 22 months ago and that didn't work and now a ReDo Septical Myectomy.
I am done no more I am in such pain three weeks post opp and I feel worse...

@deanna529 Everyone needs to listen to their bodies as you do so well! I am sorry for the loss of your husband, yes, one of the biggest stresses we could ever have in our lives. As a scar of surgery heals, the scar of loss is always there on the surface.

Yes, stress, whether physical or mental, has that effect on BNP, mine, normally for me in the 300s-400's, went sky high over 1000 when I had Lyme in June and July 2025. While my cardiologist and others on his team were concerned, he said, "wait and see what the Doxycycline does." This antibiotic prescribed for 21 days to combat the Lyme brought it down within a week.

My HCM was asymptomatic for about 20 years from diagnosis until one day (during the night on the way to the bathroom) in February 2022 when suddenly I had a syncope. I was an active walker and bike rider, slowing down a bit, I was in my mid-70's along with my obstruction growing worse. Was taking Verapamil since diagnosis. In July 2022, I went to Mayo for a septal myectomy and am on Metoprolol SUCC 50mg each morning ever since. After a couple of post-surgery complications - leg blood clots - Eliquis for 5 months - arrythmias - ICD named Buddy - all fixed by 2023, all has been very well from then on. I will never walk as fast as I did, but I do 10,000 steps almost daily and gym 3X a week. That's the main story.

The hundreds of people following these discussions each have a unique story such as we do. Most important, sharing our stories shows that HCM is chronic, we are fortunate to live in a time where it can be managed, and we can adjust our lives to live our best lives possible.

Started 3 weeks ago. Dry mouth!
Really tired!!

Hi there...sending you hugs! Started a year ago and I have found that after a few months I was less tired.
I also found that I was tired upon wakening but after a couple of hours I regained energy for several hours so those were more productive hours at work and at home. Usually have a later afternoon slump but I get a cup of tea and a healthy snack of carb/protein and bounce back. Able to keep going well through the evening. My point is...listen to your body and adjust your work and activities as you learn your more energetic times of day.
I feel that HCM and Camzyos are my new normal and I have make adjustments for myself instead of being frustrated with being or feeling less productive. I have learned to try to regain control during this new normal.
Yes, very dry mouth too...For whatever reason, I found that getting my teeth cleaned more often has been helpful...perhaps just in my mind but one more thing that I can control. I have healthy teeth, it just makes me feel better. All the best to you, judbuds!

@christine270 thanks for this!! I am 84 and I don’t have to go to work so I can pretty well manage my tiredness till some of the lessons. Thanks gof the encouragement.

@judpuds Blessings to you! Keep on keeping on! 🫶🏻

Certainly, my mouth has been very, very dry. My doctor told me to increase my fluid intake to include 4 L of water a day.
That’s like four quarts!
If I managed to take three, it does help considerably.