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Side Effects of Mavacamten (Camzyos)

Posted by deanna529 @deanna529, Nov 16, 2023

I was on Mavacamten (Camzyos) for 6 months. It immediately triggered Burning Mouth Syndrome, Chronic Lingual Papilitis, and a metal taste in my mouth. I have never had this before. I had to stop the drug because this was worse than HOCM. Quality of life was awful. I couldn't taste anything. Reported it to Bristol Meyers Squib. It had only been on the market for 1 1/2 years when I tried it. At least it is documented.
Has anyone had any bad side effects on Mavacamten?

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reeha37 | @reeha37 | 1 day ago

Yes I have it I’m on 5 mg have burning around my tongue had ulcers in my mouth they have settled.
Headaches nothing tastes and cannot stand any form meat crazy I know but that’s what’s happening

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christine270 | @christine270 | 13 hours ago
In reply to @elepez "Hi I’m on Camzyos 6 months now I have had a hard lump on my lip..." + (show)
Profile picture for elepez @elepez

Hi I’m on Camzyos 6 months now I have had a hard lump on my lip for 2months now and just started to see another one start i’m thinking it’s coming from the Camzyos as a side effect. I will be going to a dermatologist sometime next week. I’m also on Metoprolol 100 mg has anyone else had a breakout around their mouth from Camzyos

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@elepez Yes, two breakouts by my mouth since starting Camzyos in October. Both cleared up in a couple of days. ALl the best, Christine

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