Anyone have experience with new fibromyalgia drug Tonmya that came Aug

Posted by jeannesf1 @jeannesf1, Nov 3, 2025

Is Tonnya already prescribed by doctors?

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Profile picture for lisa87 @lisa87

I am using Lyrica and it seems to be working good for me. I will be on Medicare next month so this new drug won't be for me if Medicare doesn't cover it. I also transition to Arizona for the winter months so that I can feel better. It works out well so I can also look after my dad who lives nearby and 90-years old (still living on his own). But, have any of you on this thread experienced increased symptoms as you got older?

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@lisa87
Hi
I’m 71 and have had fiber for 25 years. I do feel like it’s gotten different in the pain. When I had it when I was younger, it was more like stabbing pain and now it’s all over pain. But it sometimes confusing wondering, how much is my osteoarthritis and just plain old wear and tear on a body at age 71. I have been on Tamaya 2.8 for three months and it has been helpful. Decided to take the big leap and try a month at 5.6. The cost doubles but at 71 what am I saving all my money for lol. So in a couple months, I will let everyone night how it is working. Perhaps at that time I will be able to wean off the gabapentin or Savella. And Medicare does not pay for this drug. My husband and I are going to submit paperwork to refuse their refusal. But I doubt it will work so we’re just going through the steps in case. We’ll probably have to just wait until a couple years and the drug cost goes down. Unfortunately us on Medicare can’t use the manufacturers website coupons. It’s a stipulation that if you’re on government program, you can’t use manufacturers coupons. Great information let’s keep it all flowing between us all. That’s really how we learned.

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Profile picture for daisy17 @daisy17

Tonmya is a reformulated version of the drug cyclobenzaprine (aka Flexeril) that has been on the market for years as a muscle relaxant. It's available as a low cost generic. Tonmya is that same drug reformulated to a lower dose (2.5mg I think) and taken subliminally rather than as a pill you swallow. By reformulating the drug, the drug company can charge lots more money (approximately $250 per month.). When I have a fibro flare, I take a 5mg tablet of cyclobenzaprine (lowest dose available) before bed. I think it helps with sleep and pain.

An article by Pradeep Chopra, MD (a Harvard-trained pain medicine specialist with over 25 years of experience treating complex chronic pain and multisystem disorders) said: "In summary, sublingual cyclobenzaprine (Tonmya) is essentially a repackaged low‑dose formulation of cyclobenzaprine, marketed as a novel drug through its patented delivery system. Its pharmacokinetic differences are small, its clinical benefit is modest and comparable to existing oral formulations, and its unique adverse effects may outweigh the theoretical advantage of reduced metabolite formation. Clinicians should therefore critically evaluate manufacturer claims and consider whether simple, low‑dose oral cyclobenzaprine would provide equivalent benefit at far lower cost."

I also take low-dose Naltrexone which has helped me tremendously. It has to be purchased from a compounding pharmacy and isn't covered by insurance. You slowly work up to a maintenance dose of 4.5mg. There are very few side effects and it takes a few months on the maintenance dose to notice results.

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@daiseys17

You summed that up perfectly! I take 5mg. of cyclobenzaprine at night when needed. Like you it helps me sleep when the pain is bad. My insurance wouldn't even cover Tonmya . I don't blame them. They do however cover cyclobenzaprine, which as you said is a lot cheaper. When I first saw Tonmya I thought it was something new that could help me but realized it wasn't. Another money making move.

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Profile picture for daisy17 @daisy17

Tonmya is a reformulated version of the drug cyclobenzaprine (aka Flexeril) that has been on the market for years as a muscle relaxant. It's available as a low cost generic. Tonmya is that same drug reformulated to a lower dose (2.5mg I think) and taken subliminally rather than as a pill you swallow. By reformulating the drug, the drug company can charge lots more money (approximately $250 per month.). When I have a fibro flare, I take a 5mg tablet of cyclobenzaprine (lowest dose available) before bed. I think it helps with sleep and pain.

An article by Pradeep Chopra, MD (a Harvard-trained pain medicine specialist with over 25 years of experience treating complex chronic pain and multisystem disorders) said: "In summary, sublingual cyclobenzaprine (Tonmya) is essentially a repackaged low‑dose formulation of cyclobenzaprine, marketed as a novel drug through its patented delivery system. Its pharmacokinetic differences are small, its clinical benefit is modest and comparable to existing oral formulations, and its unique adverse effects may outweigh the theoretical advantage of reduced metabolite formation. Clinicians should therefore critically evaluate manufacturer claims and consider whether simple, low‑dose oral cyclobenzaprine would provide equivalent benefit at far lower cost."

I also take low-dose Naltrexone which has helped me tremendously. It has to be purchased from a compounding pharmacy and isn't covered by insurance. You slowly work up to a maintenance dose of 4.5mg. There are very few side effects and it takes a few months on the maintenance dose to notice results.

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@daisy17 Thank you for the info. I have been on that med a number of years ago. It just wasn’t enough for me.

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I started tonmya several weeks ago. Even though I couldnt really feel its affects at first..once is started taking 2 tabs at night I started sleeping better without pain awakenings all night long. I do not feel dizzy, drowsy day of or next day sleepiness. Im pleasantly pleased with how I have been affected so far. I cant wait to see if this gets better the longer I am on this drug. The taste is not pleasant , the numbing affect wears off fairly quickly. Please try this med. Its had an impact on my night pain and sleeping through the night. Which is like a taste of heaven for me. ALSO I HAVE A ZERO COPSY USING THE TONIX COUPON NOT BLINK RX. I have my husbands insurance for my meds. Give it time at first I didn't think it was working at all.

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Profile picture for leoandbear @leoandbear

Hi
I skeptically decided to try one month myself. We all have to go thru a myriad of drugs and therapies. Which one will fit us is so varied. So i was about to give up and then at day 20 i felt better. Not cured but i think anything that hits over 30% less pain is a game changer. You take under tongue at night. It seems my body relaxes more so better nights rest. It is very expensive as Medicare doesn’t cover . Taking muscle relaxers has never helped me and that is why skepticism. I take 2.8 and know I would benefit if I took 2 tablets. But manufacturers say you must pay by the bottle. The Fibromyalgia Syndrome Association (www.fibromyalgia fund.org ) has the study with results, efficacy and treatment.

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@leoandbear
I didn't feel much until I took 2 at night. Then it made a huge difference! I have ME/CFS FM and an autoimmune liver disease. My body has pain ALL day. But even though it is subtle I feel a huge improvement in my pain and sleep.

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Hi all😸,
There is a difference between Tonmya and the generic cyclobenzaprine. The new drug is taking under the tongue and because of this it goes directly to the brain to work. Cyclobenzaprine on the other hand goes through the gut before it can be in your brain. So the Tamaya is much more effective due to this process.

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Profile picture for binblessed @binblessed

I started tonmya several weeks ago. Even though I couldnt really feel its affects at first..once is started taking 2 tabs at night I started sleeping better without pain awakenings all night long. I do not feel dizzy, drowsy day of or next day sleepiness. Im pleasantly pleased with how I have been affected so far. I cant wait to see if this gets better the longer I am on this drug. The taste is not pleasant , the numbing affect wears off fairly quickly. Please try this med. Its had an impact on my night pain and sleeping through the night. Which is like a taste of heaven for me. ALSO I HAVE A ZERO COPSY USING THE TONIX COUPON NOT BLINK RX. I have my husbands insurance for my meds. Give it time at first I didn't think it was working at all.

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@binblessed
Glad that Tonmya is working for you. Had you been taking regular cyclobenzaprine prior to starting Tonmya?

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