Anyone have experience with new fibromyalgia drug Tonmya that came Aug

I’ve taken cyclobenzaprine for years but carefully and sparingly. If I take it for several nights in a row I will for certain have several days of a bad flare. So I’m surprised to hear that it’s being used as a treatment.

Yes very helpful! Thank you so much!

@daisy17 We haven’t talked about taking it long term yet. I don’t foresee using it long term. I have EDS and some of my symptoms can be corrected with surgery. Right now I’m taking it as I need it to desensitize my brain and be able to get through the work week. 5mg is a low dose and I can take it in the morning too, as needed. Hope this helps

It is simply Flexeril sublingual! I was hoping something new

@jeanninec By making that change, the drug manufacturer can increase the price significantly because the new version won't be generic.

Tonmya (sublingual cyclobenzaprine) is priced at approximately $916.32 for 30 tablets, while the average cost of Flexeril (cyclobenzaprine), available as a generic, without insurance only costs about about $20 for a 30-tablet supply of the 10 mg dosage.

Hi,
I have fibro and ic. I went thru a series of bladder installations which helped. I take mibregon meds and uquora products. It’s managable but still have a lot of frequency, but no pain.

@daisy17
I think you mean sublingual which is under the tongue. Subliminal is by brain waves. So it’s an old drug to look new.

Hi
I skeptically decided to try one month myself. We all have to go thru a myriad of drugs and therapies. Which one will fit us is so varied. So i was about to give up and then at day 20 i felt better. Not cured but i think anything that hits over 30% less pain is a game changer. You take under tongue at night. It seems my body relaxes more so better nights rest. It is very expensive as Medicare doesn’t cover . Taking muscle relaxers has never helped me and that is why skepticism. I take 2.8 and know I would benefit if I took 2 tablets. But manufacturers say you must pay by the bottle. The Fibromyalgia Syndrome Association (www.fibromyalgia fund.org ) has the study with results, efficacy and treatment.

I am using Lyrica and it seems to be working good for me. I will be on Medicare next month so this new drug won't be for me if Medicare doesn't cover it. I also transition to Arizona for the winter months so that I can feel better. It works out well so I can also look after my dad who lives nearby and 90-years old (still living on his own). But, have any of you on this thread experienced increased symptoms as you got older?

@lisa87 I can honestly say I’ve gotten better! Of course I wish I didn’t have any symptoms and the energy of a 15 year old (I’m 67) but your question makes me realize that I’m doing amazing as compared to when first diagnosed and years afterwards. I’ve was diagnosed about 17 years ago. I’m off Cymbalta and gabapentin and only on LDN 6 mg, heating pad, biofreeze and occasionally ibuprofen and faith in God! Using magnesium glycinate for sleep. (Right now sleep is good but usually really bad). My energy runs out by early noon but can keep going if I have to. I’m in process of changing my diet (from bad to good) so hopefully that will also help. I know everyone is different however now that I think about it I didn’t think I would ever get to where I’m at right now. Peace, hope, love.