Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.

Profile picture for judimahoney @judimahoney

@frannee
I've read some posts here that warn of the side effects of anesthesia for folks with dementia. Was he under anesthesia for something recently?

Jump to this post

@judimahoney
No. He was not under or taking anything but Tylenol. The tests he took scored 54 out of 94. They said memory and attentive skills were the issue.
But socially he is just fine. Most would never know he has problems. Only those close to him see it.

REPLY

@franee You know when your husband isn't operating on full capacity. Your question on how do you know if he has MCI? Seek out your primary care and/or make an appointment with a neurologist. I saw the rehab team did some memory tests on your husband.....my husband did okay in some areas but couldn't remember the words they gave him. He could, however, draw the clock. However, we went off to the neurologist after the primary care, and the rest is history. He's on his 25th lequembe infusion for MCI. And it's obvious to me, what he's dealing with isn't age related memory loss. It's MCI, in it's early stages. He was constantly losing things, couldn't remember words, would have difficulty sequencing thoughts in his mind. It became very obvious something was wrong, why we ended up at the neurologists for full testing.
Best, Karla

REPLY
Profile picture for vgen @vgen

@frannee my husband scored 75% on memory tests but that really didn’t test his everyday abilities. He has lost his mechanical skills, he can’t learn new things and has a hard time following a show on TV. It’s hard to have a conversation because he can’t follow if I change the subject. I feel I’ve lost my partner. Now i take care of him and have to explain many things he used to know how to do. It’s depressing and tiring. He thinks I get crabby for no reason. Now the way I thought we’d spend our old age.

Jump to this post

@vgen My husband was a very successful tax attorney and now I have to explain the tax implications of our move to him. I am so sad for both of us.

REPLY

This was me 3 weeks ago --- show them this site and have them read what other wives are going through --- then run for a therapist. Once the "light" goes on with acknowledgement then you can work together to solve the frustrating issues going on in everyday life. A notebook for my husband has been so helpful. Things I think he will forget and not admit to forgetting I date and write down --- he goes back and reads these or rather checks in. I also got him a huge markerboard calendar to SEE what is coming up and what has happened this month rather than trying to remember and then arguing over if it happened or not. Just some thoughts --- I am in the being phases of this!!! @kordahl (Stay Strong)

REPLY
Profile picture for frannee @frannee

How do you know if husband has MCI? My husband broke his hip 3 weeks ago and spent 2 weeks in a rehab facility. The team did several tests on his cognitive abilities. The memory test asks him to repeat 3 -4 items backwards, and then choose 2 out of 4 items that don't fit a category. He did well on the 3 but not on 4 items backwards. He was about 75% on category items.
Afterwards, the team made up charts for him so he can go home and remember dates, appointments, etc, and told me to set up his phone and watch for warnings of falls.
No one told me that he has MCI but obviously, his memory and attentive skills lack in some ways. Is this something that would be categorized as MCI?

Jump to this post

His PCP can refer him to an academic medical facility department of Alzheimer’s and Aging for a neuro evaluation. We live in Oregon and my husband was evaluated and diagnosed with MCI at OHSU in Portland. He has been in a Detect study there for several years as well. They are very helpful and do excellent monitoring.

REPLY

My husband has the response that he’s good it’s me that has the problem. He has problems with online banking because they keep changing things. It’s NOT him. Now i just say ah ha and show him how to do it. Yes, it takes a toll on both of us.

REPLY
Profile picture for vgen @vgen

@frannee my husband scored 75% on memory tests but that really didn’t test his everyday abilities. He has lost his mechanical skills, he can’t learn new things and has a hard time following a show on TV. It’s hard to have a conversation because he can’t follow if I change the subject. I feel I’ve lost my partner. Now i take care of him and have to explain many things he used to know how to do. It’s depressing and tiring. He thinks I get crabby for no reason. Now the way I thought we’d spend our old age.

Jump to this post

@vgen The body is the same but the person we married is slipping away, little by little. We eventually become strangers to them, too.

REPLY

When we socialize I have to do all the talking. It makes me want to just stay home

REPLY
Profile picture for vgen @vgen

My husband has the response that he’s good it’s me that has the problem. He has problems with online banking because they keep changing things. It’s NOT him. Now i just say ah ha and show him how to do it. Yes, it takes a toll on both of us.

Jump to this post

@vgen What your husband has, aside from memory loss, is called deflection. It's amazes me they can't remember but still know how to get defensive and deflect! It's not me, it's you. I get that too! But we know........
Best, Karla

REPLY
Profile picture for kjc48 @kjc48

@vgen What your husband has, aside from memory loss, is called deflection. It's amazes me they can't remember but still know how to get defensive and deflect! It's not me, it's you. I get that too! But we know........
Best, Karla

Jump to this post

@kjc48
Deflection is very difficult to listen to and difficult to forgive --- it gets old. I often wonder if my husband had to defend himself in his family growing up and this behavior just continued through his adult life.?? Sometimes I look at him and say...What's another way we could approach this? We don't have to argue over this or see who is right or wrong .
Or walk away if your peace is being attacked! It's a clear message that he doesn't have the right to take your peace away. Boy, I'm on a roll this morning! Too much coffee!!! @ kordahl

REPLY
Please sign in or register to post a reply.