1. < Caregivers: Dementia
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Am I losing it too?

Posted by wtr2026 @wtr2026, 4 days ago

Two weeks ago, I had my annual wellness visit and I scored 100% on the memory test, including counting back by 7's. Last week, my husband's brain PET Scan results came into MyChart. He has Alzheimer's. Since then, we have looked at senior living communities in person and rented an apartment near our children. I feel as if I can't remember anything and I think I misplaced my son's house key. I don't want to think I am losing it, yet that's how it feels. Very worried. Has anyone experienced this and did it resolve for you? Thank you!

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marilynt | @marilynt | 6 hours ago
In reply to @judimahoney "@georgescraftjr Thanks ☺️ I am currently the only one awake, so I said, "Happy f@#&ing birthday"..." + (show)
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@georgescraftjr
Thanks ☺️
I am currently the only one awake, so I said, "Happy f@#&ing birthday" to myself.
Life is so weird right now, like we're all in a bad movie.
I will attempt to enjoy my birthday today, thanks so much for your kind words. 🤗

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@judimahoney
Happy Birthday, Judi! You are loved❣️You have had it so difficult. I have been amazed with all the kind words you say to others.

My birthday is Sept. 14 and I will be with my siblings in Chicago for a respite from my husband. He finished Prostate cancer last week and has Alzheimer’s. Hopefully my daughters will check on him but for my sanity I need this week away. He is still at the beginnings of cognitive decline and just does irritating behavior with me. I have stopped watching Teepa Snow on UTube because I can’t yet say sweet answers to him for all his criticisms to me. Sorry I am complaining.😬

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marilynt | @marilynt | 6 hours ago

@wtr2026 Do not worry! Forgetting where your keys are is perfectly normal! We all have such stress in dealing and worrying about our loved ones. Sometimes I even think my husband is sharper than me mentally, but I have anxiety that makes me even draw blanks at times. Breathe and count on us at Mayo Connect to help you!💖

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judimahoney | @judimahoney | 4 hours ago
In reply to @marilynt "@judimahoney Happy Birthday, Judi! You are loved❣️You have had it so difficult. I have been amazed..." + (show)
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@judimahoney
Happy Birthday, Judi! You are loved❣️You have had it so difficult. I have been amazed with all the kind words you say to others.

My birthday is Sept. 14 and I will be with my siblings in Chicago for a respite from my husband. He finished Prostate cancer last week and has Alzheimer’s. Hopefully my daughters will check on him but for my sanity I need this week away. He is still at the beginnings of cognitive decline and just does irritating behavior with me. I have stopped watching Teepa Snow on UTube because I can’t yet say sweet answers to him for all his criticisms to me. Sorry I am complaining.😬

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@marilynt
Thanks for the birthday wishes. You are allowed to complain!
Enjoy your well-deserved time off. 🌼

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dederickve | @dederickve | 2 hours ago
In reply to @wtr2026 "@dederickve Thank you so much. Overwhelmed sums up our situation well. A long time ago, when..." + (show)
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@dederickve Thank you so much. Overwhelmed sums up our situation well. A long time ago, when I was facing a serious challenge said "You're going to get through this one way or another, you might as well get through it well." Of course I was a lot younger then :). My new mantra is "I can do hard things" - I don't quite believe it yet. How wonderful your doctor sounds. Thank you so much for taking time to help me!!!!

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@wtr2026 you are welcome, wtr2026. Seems like I am almost constantly, needing some advice, myself. Or, maybe some encouragement !

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annedallas | @annedallas | 1 hour ago
In reply to @wtr2026 "@annedallas you've lived with caregiving for such a long time. Do you know about the Guide..." + (show)
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@annedallas you've lived with caregiving for such a long time. Do you know about the Guide Program? https://www.cms.gov/priorities/innovation/innovation-models/guide. It's a demonstration project to see if providing support for caregivers can keep people with dementia at home longer. Part of it is funding for some home care so the family caregiver can have a break. If you had someone during the early evening hours, that could be a godsend for you. It's human to get annoyed I think. Sending a virtual hug.

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@wtr2026 Thank you! I've heard of the Guide Program (I think) but haven't checked it out. Are you or a LO by any chance participating?
We do have a caregiver, but her schedule ends at 4, when he goes upstairs to take a long nap. Maybe I need to rethink that!

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annedallas | @annedallas | 1 hour ago
In reply to @carolreid "@annedallas I've seen others suggest having a white board on the fridge with the day's activities..." + (show)
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@annedallas I've seen others suggest having a white board on the fridge with the day's activities to cut down on the questions. I've gone to a pocket planner by his recliner. I fill in his sports schedules for the whole month along with any other activities either of us have. He can just reach over and get it, which he does maybe twenty times a time. That has helped somewhat to save my sanity.

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@carolreid Thanks, Carol. I will try something along those lines. He loves his computer-generated calendar, which he's used for years, but it's software that no one maintains any more and it doesn't accommodate such granular detail as he seems to want. I will work on a paper solution!!!

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