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Should patients with long COVID get the COVID vaccine booster?

Posted by mel62 @mel62, Aug 23 9:58am

I was diagnosed with LC in June. I was planning on getting a fall Covid booster and flu shot. However I’m seeing reports that LC symptoms worsen after a booster. Does anyone have more information about?

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mel62 | @mel62 | 5 days ago
In reply to @djg3012 "@mel62 It's a test to see if I possibly would feel better after 5 years." + (show)
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@mel62
It's a test to see if I possibly would feel better after 5 years.

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@djg3012 Thank you and good luck

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h2998sc | @h2998sc | 5 days ago
In reply to @debbiedsf "I had gotten every available Covid vaccine prior to getting my first Covid infection a year..." + (show)
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I had gotten every available Covid vaccine prior to getting my first Covid infection a year ago. After long Covid developed, my primary care physician (who is not particularly well informed on the subject) suggested that getting another vaccine shot might jumpstart my immune system and fix the long Covid. (I think this is based on a flawed assumption that the problem is fighting the virus, rather than how the virus has changed our system. ) I took this advice and it made me much sicker. It took about a month to get back to where I was.

I am doing better now after many interventions, although it’s not clear exactly which might have made a difference. I’m scared of getting any vaccine, which might set me back again.

Has anyone gotten the vaccine after Covid and had a positive or neutral experience?

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@debbiedsf sorry to hear this.I got the moderna shot in 2020.Got Covid in 2020.Been a 6 year marathon of trying to get well again.I'm almost there.Seriously.NO shots for me.Got covid later like two years later again and didn't know I had it again.Found it on a fluke test or something.Didn't feel anything though.I'm not a fan of the vaccines.
It's like what came first...shot,or covid.IDK.Can't seem to nail it down when the time frames were.

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meike | @meike | 4 days ago
In reply to @debbiedsf "I had gotten every available Covid vaccine prior to getting my first Covid infection a year..." + (show)
Profile picture for debbiedsf @debbiedsf

I had gotten every available Covid vaccine prior to getting my first Covid infection a year ago. After long Covid developed, my primary care physician (who is not particularly well informed on the subject) suggested that getting another vaccine shot might jumpstart my immune system and fix the long Covid. (I think this is based on a flawed assumption that the problem is fighting the virus, rather than how the virus has changed our system. ) I took this advice and it made me much sicker. It took about a month to get back to where I was.

I am doing better now after many interventions, although it’s not clear exactly which might have made a difference. I’m scared of getting any vaccine, which might set me back again.

Has anyone gotten the vaccine after Covid and had a positive or neutral experience?

Jump to this post

@debbiedsf
I had a bad experience with a Covid vaccine shot -after developing symptoms after my first Covid infection and
The symptoms got worse.

Sorry/ but I wouldn’t recommend any further covid vaccine in an already stressed body with post Covid Symtomes.

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mishabear2025 | @mishabear2025 | 9 hours ago
In reply to @colleenyoung "@mel62, this is a good question. Like others have said, follow the guidance of your health..." + (show)
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@mel62, this is a good question. Like others have said, follow the guidance of your health care provider.

Here is some information from Mayo Clinic:
- COVID-19 vaccines: Get the facts https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/coronavirus-vaccine/art-20484859
Looking to get the facts about COVID-19 vaccines? Here's what you need to know about the different vaccines and the benefits of getting vaccinated.

- Mayo researchers find vaccine may reduce severity of long-haul COVID symptoms https://newsnetwork.mayoclinic.org/discussion/mayo-researchers-find-vaccine-may-reduce-severity-of-long-haul-covid-symptoms/

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@colleenyoung
MAY REDUCE ???
I'm not risking another episode of LC on a supposition of "may REDUCE "
Wake up doctors of America. There are thousands maybe millions of us trying to live with this disease.
We all have been marginalized by the medical community because they just don't know
.

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mel62 | @mel62 | 7 hours ago
In reply to @mishabear2025 "@colleenyoung MAY REDUCE ??? I'm not risking another episode of LC on a supposition of "may..." + (show)
Profile picture for mishabear2025 @mishabear2025

@colleenyoung
MAY REDUCE ???
I'm not risking another episode of LC on a supposition of "may REDUCE "
Wake up doctors of America. There are thousands maybe millions of us trying to live with this disease.
We all have been marginalized by the medical community because they just don't know
.

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@mishabear2025 Thank you for your response. But please clarify, do you think getting the vaccine can increase risk to get LC from vaccine?

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