Should patients with long COVID get the COVID vaccine booster?

I’m curious I have long COVID Dysautonomia and am concerned

For the, first time this year ,I am foregoing the covid vaccine.

There are very different opinions about the vaccine. Some of us get every single vaccine as it becomes available - I'm not one of them, but I believe the thinking is that getting Covid again would likely make their symptoms much worse than the vaccine.

In my case, I developed chronic heart issues from the vaccine, and Long Covid after having Covid for the fourth time. I will never take another Covid vaccine, because it might worsen my heart problems. It's a discussion I've had with my doctors, and no one questions my decision because I'm the one who has to live with the consequences either way.

If you have doctors you trust, I recommend you talk the issue through with them. I've gotten a lot of support and encouragement from both my primary care and my cardiologist.

@homemarcy thank you for sharing this.

@djg3012 Will you share why you’re not getting it?

I had covid infection in 2022 and it resulted in rapid heartbeat along with profuse sweating. I also had concerns about getting vaccinated because I thought that it would make my symptoms worse, however this didn’t happen. My feelings were that getting reinfected would have more serious consequences than the vaccine, it was my choice to make and I didn’t consult the doctor about.

@mel62, this is a good question. Like others have said, follow the guidance of your health care provider.

Here is some information from Mayo Clinic:
- COVID-19 vaccines: Get the facts https://www.mayoclinic.org/diseases-conditions/coronavirus/in-depth/coronavirus-vaccine/art-20484859
Looking to get the facts about COVID-19 vaccines? Here's what you need to know about the different vaccines and the benefits of getting vaccinated.

- Mayo researchers find vaccine may reduce severity of long-haul COVID symptoms https://newsnetwork.mayoclinic.org/discussion/mayo-researchers-find-vaccine-may-reduce-severity-of-long-haul-covid-symptoms/

@mel62
It's a test to see if I possibly would feel better after 5 years.

I had gotten every available Covid vaccine prior to getting my first Covid infection a year ago. After long Covid developed, my primary care physician (who is not particularly well informed on the subject) suggested that getting another vaccine shot might jumpstart my immune system and fix the long Covid. (I think this is based on a flawed assumption that the problem is fighting the virus, rather than how the virus has changed our system. ) I took this advice and it made me much sicker. It took about a month to get back to where I was.

I am doing better now after many interventions, although it’s not clear exactly which might have made a difference. I’m scared of getting any vaccine, which might set me back again.

Has anyone gotten the vaccine after Covid and had a positive or neutral experience?

I am forgoing my Covid shot this fall for the same reason.