Does anyone else’s LO forget why they are getting infusions/MRI’s?

Perhaps your orientation could be, 'What would he have wanted if he had been unable to communicate at the time of making a decision, and is it reasonable to assume now that he would no longer wish to have the treatment if asked?'

We’ve not been doing this infusions for long, I think we’ve had 5 and my husband pretty much asks ‘’what they are for” every time we’ve gone. He has no problems going to the infusions and the MRI. I tell him that it helps his brain and he’s good with that. It sounds like your husband also doesn’t recall the purpose of them. I know for me I’m just going to keep on keeping on. Btw I’ve read that the FDA is close to approving injections at home, perhaps already has and that will make the process a bit easier.

@laneywj Thank you for this. We’re only approaching Infusion #5 also - next week. He seems willing, but a bit agitated. I look at it as it being another way to have him out with people, in addition to family and friends. And I have read about the anticipated approval of that, also…so I guess we’ll see. For now, unless something changes in his health, we will continue as planned also. Thank you for writing!

My husband hasn’t started the leqembe infusions yet - we are still waiting for approval from our insurance. I too am worried that it’s a little late, but what else can we do? He did however, and still does get confused about any doctors visits and tests he needs to have. He recently had an mri and biopsy of his prostate and he did not remember what either was for and I had to keep telling him.
I bought a small magnetic white board for our refrigerator so I can write the date and any appointments or activities we are doing each day. He looks at it a lot and it really seems to help him remember what is going on, even though he might not be sure what it is - then he asks me and I explain. He gets anxious because he knows something is happening but he doesn’t know what.
Good luck with the infusions - I really hope they help both our husbands.

@2me My husband gets tripped up on the time and dates, but he still remembers why he's going for the infusions. I think what's helped him some, is I share what others on this site are saying about their infusions, and whether it's helping. We talk about it. I also share with him, what I'm reading about MCI and/or Alzheimer treatment, so it helps support the decision he made to want to do it. That "normalizes" it. He also shares with me, what other infusion patients in the infusion center are saying when he's in there with them. So it's become somewhat of a social thing for him. He's up to his 25th infusion, with 11 more to go, and then some maintenance whatever that may be. The MRI's have stopped for now, that was in the beginning where I think we had three-four done up to the 7th infusion. Maybe on that board you have, (a great idea) write on there not only the dates of his infusions but at the top why, he's going. For example: "Lequembe infusions gives us HOPE in slowing down memory loss. I think the message may be helpful for him: clear yet hopeful. Best, Karla

@elm123 thank you for this note. I agree that we should just continue on the path, and I sometimes need to dig deep for patience, but part of it is just sadness on my part for him, and for us. I will look for a whiteboard. One that is magnetic for on the fridge is a good idea. Thank you! Hugs.

@kjc48 Great idea, Karla…tho I think I*’ll just put one day at a time on the board. Sometimes less information is good. Your reminder to “normalize” is also important! Thank you for reaching out again. I love putting hope in that message, too! 😊

Yes, HOPE. One day at a time, sounds great to make your board work, and to give him, you and all of us hope in dealing with this. My best this morning! Karla