Does anyone else’s LO forget why they are getting infusions/MRI’s?

Posted by 2me @2me, 23 hours ago

It seems every time he sees an appointment on the calendar, he is surprised and disappointed that the infusions will go on for 18 months. Today was an MRI, which also threw him, as he could not remember the reason, or what he was going to the Radiology facility for.

Perhaps we were too far along in this journey to have started infusions if he gets discouraged and confused by the very reason he needs them. Back when the Neurologist first proposed Leqembi, he was all in favor…it was his decision, and now I have to convince him to go, almost. He is 80.

I guess we’ll just keep on keepin’ on, eh? Suggestions/encouragement welcome!

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Perhaps your orientation could be, 'What would he have wanted if he had been unable to communicate at the time of making a decision, and is it reasonable to assume now that he would no longer wish to have the treatment if asked?'

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