Reactions when you tell people you have Parkinson's Disease?
This is not a question so much as a chance to share experiences. My doctor warned me about the reactions I would get. I am 77 so it is not an early diagnosis. He was right. People have all sorts of ideas about the disease most of which are not accurate. I have mostly only told other medical professionals as it is important in terms of what I am taking and how it might impact other conditions I have. The nurses' reactions are sometimes shocking. "Oh I am SO SORRY. My grandpa died of that" and similar. I really get offended and correct their thinking. I have told few friends and mostly just family. Do other PD patients get those kind of reactions? I find it easier not to tell people now that the tremor is controlled. Any input on this.
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I appreciated your response and share the frustration in getting a diagnosis. It took many years to put it all together for me and many, many other PD patients. Glad to hear you are doing better and enjoying life again.
Great positive outlook! When my husband was diagnosed, he looked at the doctor and stated, "Well, look at it this way. I can make a milk shake without a blender." Today, after his last spine surgery, he is up and running, a total mover and a shaker. He doesn't stop. Carbidadopa Levodopa, or Living La Vida Loca as he calls it, did not work for him, but Ropinirole has. My advice is to make life happen, keep moving, and stay positive. Oh, and when someone says it is not possible, prove them wrong and don't accept no for an answer.
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2 Reactions@eojeda1 wheever I see 'L-dopa" I flash back to the days of ZORRO, who was the rich aristocrat in Callifornia who disguised himself in an all black outfit and thwarted the moves of the crooked sherrif in town, fighting his enemies with a fencing sword (I'm sure it has a name, and i used to know it but this will have to do right now). I seE EL DOPA AS ZORRO Dopa!! and he slays the crooked sheriff (Mr. Parkinsons) and after he has defeated each villan, he makes a Z on them before he dashes off to become a rich aristocrat in the daytime hours.
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3 ReactionsLove it! Humor is everything! One of the qualities that attracted me to my husband of 32 years---intelligence, his ability to dance and his ability to make me laugh.
@jatonlouise What fun! It's a foil.
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1 Reaction@goatgirl28 Thank you, my dear! I s hould write that down. but later I might think it was a reminder to me to get more Aluminum l foil.
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1 ReactionSorry for the late repsone love the Zorro reference. we love the old disney zorro show with Guy Williams we raised our boys on this. LOL Aluminum foil !