Reactions when you tell people you have Parkinson's Disease?
This is not a question so much as a chance to share experiences. My doctor warned me about the reactions I would get. I am 77 so it is not an early diagnosis. He was right. People have all sorts of ideas about the disease most of which are not accurate. I have mostly only told other medical professionals as it is important in terms of what I am taking and how it might impact other conditions I have. The nurses' reactions are sometimes shocking. "Oh I am SO SORRY. My grandpa died of that" and similar. I really get offended and correct their thinking. I have told few friends and mostly just family. Do other PD patients get those kind of reactions? I find it easier not to tell people now that the tremor is controlled. Any input on this.
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I appreciated your response and share the frustration in getting a diagnosis. It took many years to put it all together for me and many, many other PD patients. Glad to hear you are doing better and enjoying life again.
Great positive outlook! When my husband was diagnosed, he looked at the doctor and stated, "Well, look at it this way. I can make a milk shake without a blender." Today, after his last spine surgery, he is up and running, a total mover and a shaker. He doesn't stop. Carbidadopa Levodopa, or Living La Vida Loca as he calls it, did not work for him, but Ropinirole has. My advice is to make life happen, keep moving, and stay positive. Oh, and when someone says it is not possible, prove them wrong and don't accept no for an answer.
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